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Just Diagnosed With Celiac

wakefield

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wakefield Apprentice
wakefield
Posted

I was just diagnosed on Friday evening with celiac and am so happy to have found this site. Both my parents have been in hospital for 3 weeks and are very ill so you can imagine my stress level. I had no apparent reason to believe that I had any health issues until I went for a regular physical last week and found out that I was anemic. I have been gaining weight which is most unusual for me and then suddenly last week I lost 18 pounds. Wednesday I had a colonoscopy and endoscopy with biopsy and now I know. I find I am beyond exhausted--which I thought was due to my parents condition--and my heart pounds with any exertion. I am most eager to learn from all of you and have never ever posted on a forum before so I do not know if this is the correct place. I know my diet must change--although I have never eaten that much bread etc. I do wear makeup and am crushed it that is going to be an issue. I have started to read the internet and soap and medicines are also an issue? Thanks in advance for your help.

Wakefield

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happygirl Collaborator
happygirl
Posted

Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice
wakefield
Posted
  • Author
Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice
wakefield
Posted
  • Author
Welcome to the board!

Here are some of my favorite resources on the web. There is a LOT of info in these pages. Hopefully they will give you a good start....

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Ingredients and Food Labels

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Open Original Shared Link

wakefield Apprentice
wakefield
Posted
  • Author

I am so sorry. I do not know how to use a forum and I clicked to reply and messed everything up. I can't thank you enough for the list. I will start right now. Wakefield.

Ursa Major Collaborator
Ursa Major
Posted
I am so sorry. I do not know how to use a forum and I clicked to reply and messed everything up. I can't thank you enough for the list. I will start right now. Wakefield.

No need to apologize. It can be tricky if you have never participated in a forum before. You'll be a pro in no time.

When you click on the reply button that is part of the post window, it will then quote what has been previously said. Which is good if there are several posts, but you want to respond to one post in particular. You can also then edit/take out some of that quoted post, if you just want to respond to part of it.

But you just add what you want to say underneath or above it, and then click on 'add reply'. If you want to see what it looks like and if you have done it right, you click on 'preview' to check if it looks right, and if your links work (if you have added any).

If you don't want to quote anything, you click on the 'reply' button that is farther down (as you have apparently done for the above quoted post).

I didn't follow all of those links, so don't know what advice you got this far.

Just take a deep breath. There is lots of makeup out there that is guaranteed gluten-free. I can't tell you which brands, because I don't wear makeup. But others can help you there. It takes some time to learn how to live gluten-free, but believe me, you will figure it out and soon it will be easy.

In the meantime, the easiest and least stressful way to eat would be to just eat naturally gluten-free foods like meat, vegetables, fruit, fish and eggs. If you have prepared it from scratch, you don't have to worry.

And it might be best if for now you also eliminate dairy, and probably soy, as those can hinder healing.

That must be tough to have both your parents in the hospital at the same time. Are they suffering from the same problem? I hope they will be better soon.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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