Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And A Sudden Relapse Of Symptoms


pickles177

Recommended Posts

pickles177 Newbie

Was diagnosed with celiac disease only two months ago and from that date undertook a completely gluten free diet. My most severe symptom before this was extreme bloating (looking 7 months pregnant) and a lot of pain. Within 3 days of going gluten free my stomach had ease and was going down :lol:

However - only last week suddenly overnight my stomach blew up again - and I am now completely unsure as to what to do next. I've just been diagnosed as anaemic as well and am on iron tablets form the doctor for two months. Some people say I should cut out dairy, some say it could be cereals, some say it could be rice cakes - everybody is telling me something different and I'm left very confused, still severely bloated and in a lot of pain - can anybody tell me if they had this and what they did?

Any advice appreciated


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

A lot of Celiacs react to Dairy. Some can eventually add it back in. If you are certain that you did not get cross contaminated, then I would suspect Dairy. Iron pills can totally screw with your digestive tract. I took "Gentle Iron" by Solgar and it didnt bother me.

MELINE Enthusiast
Was diagnosed with celiac disease only two months ago and from that date undertook a completely gluten free diet. My most severe symptom before this was extreme bloating (looking 7 months pregnant) and a lot of pain. Within 3 days of going gluten free my stomach had ease and was going down :lol:

However - only last week suddenly overnight my stomach blew up again - and I am now completely unsure as to what to do next. I've just been diagnosed as anaemic as well and am on iron tablets form the doctor for two months. Some people say I should cut out dairy, some say it could be cereals, some say it could be rice cakes - everybody is telling me something different and I'm left very confused, still severely bloated and in a lot of pain - can anybody tell me if they had this and what they did?

Any advice appreciated

Hello

I had the same problem and it was all because of lactose/casein and an endless list of other food intolerances AND IBS. So I just had a test for food intolerances and when I exluded the guilty ingredients my belly stopped existing.

Just to let you know that till now I thought that everyone was feeling abdominal pain/bloating after eating. I thought it was normal.....Silly me...

You are not getting any gluten by accident, are you?

And yes lactose/casein intolerance is very common for celiacs.

Good luck

Meline

feelingbetter Rookie

Just to echo what has been said here about dairy. I also had lots of problems with bloating, constipation etc until I gave up dairy.

ShayFL Enthusiast

Meline....what test did you take? Lame Advertisement

MELINE Enthusiast
Meline....what test did you take? Lame Advertisement

There is this lab here in greece that is running some tests , they call them nutritest. Without blood taking they measure the reaction of your body to some food combinations and they give you a list of your intolerances. I think my english is not good enough to explain the process in a better way....It cost me 250 euros to check 180 food ingredients. This can also be done with blood taking tests. It is 99% accurate (for me I think 100%.....)

I don't know the way you do it in your country but it was worth it for sure!!

Kisses

Meline

AliB Enthusiast

when I realised I was GI I dropped dairy at the same time as gluten, as well as most carbs and sugar. I thought "in for a penny, in for a pound!".

I had been tootling along fairly well for the last 3 months, getting odd reactions that I thought may be to other foods or just because my gut was still healing, but on Saturday I had a blatantly obvious reaction to gluten. I'm not sure what it was that did it but I suspect some oats that I used in some cookies I made.

Either I reacted to the oats or to some kind of contamination. I didn't sleep all night and was pretty dodgy for a couple days. Then Tuesday it happened again! This time I think it was some little nut and seed cookies that also have oats in them. I have been having them all the way through but lately I noticed that after one or two my stomach wasn't very happy.

What I am thinking is that I have probably been getting some gluten contamination from them all the way through, but suspect it is likely that my immune system is starting to kick back in now and that is why I am starting to get a lot more sensitive. Foods I thought were safe, aren't.

You may have the same problem. I am trying to completely avoid anything that might be a potential trigger or might even remotely have been contaminated.

Just out of interest, because I have had to now remove the oat milk I was having (the jury's out on soy and rice milk is too high in carbs - I am diabetic) I decided to try some cream in my (dairy-free!) hot choc this morning. My guts have been grumbling all afternoon and I have been passing the most obnoxious gas so that is definitely still a no-no. I might try the lactofree milk but although I am pretty sure my problem is lactose, it might be casein too.

Those who are Celiac/GI are typically reactive to other foods particularly dairy as the enzymes that produce lactase are situated at the tips of the villi and they usually are the first things to go in the damage process, mind you I do think you would have reacted to it sooner, but these things have a habit of not doing what we expect!

I still favour some kind of contamination, so look closely at what you are having and perhaps try a basic diet with nothing processed for a while to see if it makes any difference. I am doing the Specific Carbohydrate Diet and it does seem to help (the sweet oaty cookie things are not allowed so me eating them served me right!!!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.