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Needing A Little Support

Nan2N

By Nan2N
in Coping with Celiac Disease

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Nan2N Explorer
Nan2N
Posted

Hi Everyone

I've been having a hard time lately and was hoping someone might be able to give me some advice. I've been gluten free for over 2 months now and seem to be getting sicker and sicker. I am being VERY careful about CC and eat very plain. My dietician wants me to eat tons of food every day to get my weight up, but I'm still nauseous all the time and the last thing I want to do is eat. It seems like every meal bothers me. I get a lot of stomach pain that goes through to my back and makes me miserable. My biopsy didn't show any damage, although it could have been missed but from what I'm told my intestines weren't that bad. The only thing I was low in was vitamin D which I have been supplementing. I've checked every med/supplement with the manufacturer and double check everything else by calling companies. But like I said, I eat mostly plain foods. I thought I'd feel okay by now, not worse, and have no idea what to do. My doctors are really no help. I never had any gut problems before being diagnosed and now it's relentless. I can't help but wonder if there's something else going on. I'm so sick of being sick and am really depressed about all the restrictions and food I can't eat. I just wish I could go to the store and buy what I want to bulk up. But even worse is the stomach pain, which I'm not even sure is a symptom of Celiac. I know soy and nightshades could be the culprit. But I don't have either of those on a daily basis. Any ideas?

Thanks tons!

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curlyfries Contributor
curlyfries
Posted
I get a lot of stomach pain that goes through to my back and makes me miserable.

Don't know if this is your problem, but for me, the back pain was a symptom of gallstones.

MELINE Enthusiast
MELINE
Posted
Hi Everyone

I've been having a hard time lately and was hoping someone might be able to give me some advice. I've been gluten free for over 2 months now and seem to be getting sicker and sicker. I am being VERY careful about CC and eat very plain. My dietician wants me to eat tons of food every day to get my weight up, but I'm still nauseous all the time and the last thing I want to do is eat. It seems like every meal bothers me. I get a lot of stomach pain that goes through to my back and makes me miserable. My biopsy didn't show any damage, although it could have been missed but from what I'm told my intestines weren't that bad. The only thing I was low in was vitamin D which I have been supplementing. I've checked every med/supplement with the manufacturer and double check everything else by calling companies. But like I said, I eat mostly plain foods. I thought I'd feel okay by now, not worse, and have no idea what to do. My doctors are really no help. I never had any gut problems before being diagnosed and now it's relentless. I can't help but wonder if there's something else going on. I'm so sick of being sick and am really depressed about all the restrictions and food I can't eat. I just wish I could go to the store and buy what I want to bulk up. But even worse is the stomach pain, which I'm not even sure is a symptom of Celiac. I know soy and nightshades could be the culprit. But I don't have either of those on a daily basis. Any ideas?

Thanks tons!

Hello

I am sorry you feel like this. I hope you will soon start feeling better.

Well just some ideas. For me nausea was because of IBS, candida overgrowth and other food intolerances.

IBS is something your doc can diagnose from your biopsy. Candida needs blood and/or stool tests. Other food intolerances need a specific test (sometimes a blood test / it depends on the doctor)

Something that helped me a lot was to stop eating raw vegetables and fruits. I realised that raw food was giving me abdominal pain and most of the times nausea. For nausea you can drink hot camomile just to feel better. it was very helpful for me.

But that was for me. .....Just check it out.

JNBunnie1 Community Regular
JNBunnie1
Posted

You said you were eating a very plain diet, but does this include dairy? A lot of people are lactose intolerant for a time after starting the gluten free diet, and some get over it and some remain intolerant. If you're not really able to skip th edairy for now for whatever reason, try getting some lactase pills and take one every time you eat dairy, see if that helps. I actually become lactose intolerant again for a time every time I get glutened, its feels very like what you're describing. The raw food suggestion is a good one as well, try sticking to steamed veggies and stewed fruits.

BRUMI1968 Collaborator
BRUMI1968
Posted

Folks have been giving good advice. I just wanted to say that my digestive systems prefers raw food. I am much less likely to have stomach problems (or intestinal problems) when I eat raw. That said, I don't mean lots of nuts or cabbagy foods.

Often these comfort foods like rice are not easy to digest. I don't eat any grains and since then, my stomach has felt better. Not so much nausea, which for me is an intermittent problem I have not quite solved.

For me nausea can be from:

eggs

too much fat

nervous/stress

I have not yet mastered why I sometimes have bouts of nausea - they do seem to show up around my period - not so much so that it's an easy connection - but I often wonder if I'm hormonally odd when I get the nausea.

Small Bowel Bacterial Overgrowth is a possibility. I have found when I eat too much sugar and not enough probiotics, or get out of balance sugar wise, I often get nausea. Another thing to check out.

I once had nausea so bad and for so long, I went on Xanax. That really fixed it, but only because it dulls your nervous system. I did it because I was losing too much weight. In my case, at least part of it was caused by stress (relationship dissolving.)

Peppermint tea helps. Peppermint also comes in pills.

Ursa Major Collaborator
Ursa Major
Posted

I have the opposite problem from Bully4You. I cannot handle too many raw foods without problems. In fact, I was unable to eat ANYTHING raw for the first six months of being on the gluten-free diet, or I would get terrible stomach aches and diarrhea. I had to cook all vegetables and fruits to a mushy consistency or it would be a problem.

I still can't eat a lot of raw foods. A small salad or at the most five carrot sticks is all I can handle. One pear or apple for fruit at a time.

Plus, dairy or soy (or both) could also be a huge problem at this point.

Raw foods are hard to digest, and may not be a good idea at the beginning, when your intestines are still inflamed. The same goes for the officially gluten-free foods.

confusedks Enthusiast
confusedks
Posted

I can't offer too much advise as far as nausea, but I do have something that might help. I deal with severe nausea a lot of the time and the only thing that helps take the edge off (so I can stop sweating, and swallowing to prevent vomiting) is Zofran ODT. It dissolves on your tongue and it has been a great help for me. It is a prescription medication so your Dr will have to write a script.

I have tried EVERY tea you can imagine, every supplement, every acupressure point/bands...and they all made me worse or just didn't do anything. I have also tried most anti-nausea meds, even just regular Zofran and none have worked the way Zofran ODT does.

Also, you might want to look at other causes of nausea. Were you officially diagnosed with Celiac or did you self diagnose? Did you have en endoscopy/colonoscopy to rule other things out?

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Crystalkd Contributor
Crystalkd
Posted

I've been gluten-free for about a year now. I agree with others. I would have your doc check for other allergies. I'm also corn and soy sensitive and if I eat too much it makes me almost as sick as gluten.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

The stomach pain going through to the back is exactly how I described my severe acid reflux. In my case, it did have a lot to do with the gluten, but there were other issues involved as well (a hiatal hernia, acidic diet, etc).

I think what everyone else is suggesting is probably more likely to be one of your issues, but just in case, I thought I'd post my experience.

I do hate to suggest drugs, as they mask symptoms rather than dealing with the root cause, but I wonder if an acid blocker would help? And if it does, then I wonder if you might be dealing with an h-pylori infection, which is a very common cause of such issues? Or perhaps an ulcer (on top of everything else)?

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