Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Before I Heal


Froger850

Recommended Posts

Froger850 Rookie

I'm 26 and have just been diagnosed with Celiacs Disease just short of having my gall bladder removed. I am completely freaked out and shocked by all the foods that I can't have. My question is how long does it take for the small intestine to heal? And say I eat something on accident, hopefully not by choice, that has gluten in it, will it put me at square one with recovery or possible pass through the system with minimal effect?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
I'm 26 and have just been diagnosed with Celiacs Disease just short of having my gall bladder removed. I am completely freaked out and shocked by all the foods that I can't have. My question is how long does it take for the small intestine to heal? And say I eat something on accident, hopefully not by choice, that has gluten in it, will it put me at square one with recovery or possible pass through the system with minimal effect?

Hi, and welcome to this board. Believe me, it will get easier after a while and second nature.

No, an accidental glutening, while setting you back somewhat, will NOT put you back to square one. Unfortunately, especially at the beginning while you learn, accidental glutenings are pretty much unavoidable. Try not to freak out when it happens but consider it part of the learning curve.

It is actually easier to completely change your diet to all natural foods at the beginning, like meat, fish, eggs, vegetables and fruit rather than trying to substitute things you like with gluten-free alternatives.

First of all, you will recover faster if you don't substitute junk for junk at the beginning. Officially gluten-free foods are hard on the already damaged digestive system.

And secondly, it will be easier to eat naturally gluten-free foods while you learn what is safe when it comes to everything else. If you have prepared it from scratch, then a glutening is a lot less likely.

It is advisable that you eliminate all dairy at first, as the tips of your villi are supposed to produce the enzyme lactase that enables some people to digest dairy (many people can't tolerate dairy, period). Since the tips of your villi are damaged or gone, it is best to avoid dairy at least for a while to heal faster.

If you decide to eat gluten-free bread, you absolutely need a new toaster. It is not possible to clean your old one to be safe. The same goes for plastic colanders that have been used for wheat pasta and wooden cutting boards and wooden cooking spoons.

I am sure you will figure it all out soon enough. No need to panic, we are all here to help.

Eric-C Enthusiast

A lot of it too deppends on your reaction too.

Some people on here can't walk into a bakery, some people can ingest small amounts by accident and never notice.

I've become more intolerant since I gave it up...before I could have small amounts regularly and it wasn't a big deal, now that I've totally given it up the most I can do is a little soy with sushi.

Here is my feeling on the issue. Flour is not good for you. Even from a non-celiac standpoint it wreaks havoc with your pancreas, blood sugar levels, etc. I believe its one of the leading causes of diabetes in this country. I should be more specific, the flours we use today which are more refined than in past decades.

So your eliminating a huge source of future medical concerns from your diet. If your worried about having to give up bread and other things then I always say you must not have gotten sick enough :) You get this to bother you enough and you'll gladly give things up.

There are tons of foods out there most American's have never tried. You'll find as you eliminate flour and flour based foods your tastes do change. Just like if you give up sugar for a month and go back and drink a Coke it tastes like your drinking pure sugar.

The need for bread is more mental to me. Gluten free bread tastes horrible IMO...we tried it, we tried alternative flours, gluten free pizza, etc...there was just no substitute for the real thing.

It is what it is....look into Indian, Vietnamese, Japanese, etc...you can get Tamari instead of soy sauce and cook Asian. Get a BBQ too if you don't have one.

My wife has really gotten into the BBQ this year. This week alone we had Jerk chicken w/ brocolli, zuccini, and squash on skewers with corn on the cob. She made an excellent Shrimp skewers basted in Rum, Agave, and orange zest that was phenomenal. Last night we did pork chops seasoned in yogurt and an Indian curry mix.

There is a lot of food out there....not having bread is not the end of the world. Giving up pasta was a bit of a downer but rice pasta is pretty good.

Mexican food is great too with corn based tortilla's.

My wife makes an incredible chocolate flourless cake....if you have a Bonefish Grille in your area try the flourless cake dessert they have. Its chocolate cake with rasberry sauce, ice cream, and chocolate sauce.

Get Arrowroot to replace flour as a thickener and you'd never know the difference. We go for Italian and I have them bread my veal in corn starch instead of flour.

As I said, it is what it is....you've been given a chance to eat much healthier than you, or I, or most of us on here have eaten in the past.

I'm down 20lbs and feel a million times better. We went from a menu of maybe 5-6 things we made at home to a menu of over 50 items.

I personally also think Celiac's is just natures way of correcting the extreme processing of the foods we've been eating. We don't eliminate them ourselves so we're being forced to.

I suspect Celiac's will become more mainstream every day. I have it, a woman I work with her friend has it, another guy I work with his neighbor at his cabin up north has it. We went on a cruise and the people we sat with each knew someone with it, mostly friends of their children in high school.

1 in a 100 I think is the number they quote but I believe its much higher and will continue to get higher.

If your fortunate enough for the condition not to be life threatening then IMO just improved your quality of life.

AliB Enthusiast

Hopefully, going gluten-free will help you not to have to have your gall-bladder out at all. It is a necessary part of your body and not having it will make life more difficult. With gluten out of your life your body will have a chance to sort itself out.

I took some milk thistle capsules for a few weeks to support my liver and when I had an ultrasound I didn't have any gallstones at all - not one! I was amazed. Just after I went gluten-free my liver had a clear-out too. Left it a bit sore for a few days after, but better out than in, as they say!

My poor old liver was very sluggish for a long time but it is improving all the time. The healthier it gets, the healthier I get! My immune system has started to work again.

This is not a life sentence. It is about making your body well. You have a chance to halt the damage and start treating your body properly. The body is only as good as what goes in our mouth. If we eat garbage then it is not surprising if our body eventually starts to collapse.

Be kind to yourself. Eat well and simple. Keep well away from too much in the way of carbs. Gluten intolerance is a huge problem. Most people out there carry on eating all those gluten-laden 'goodies', completely oblivious to the fact that it is killing them. It is responsible for a vast amount of sickness and disease.

I am just so grateful that I have been given the opportunity to get better. Don't focus on what you are missing. It may taste nice, but it is garbage. Focus on what you are gaining. No, it's not always easy - good gluten-free foods can be somewhat difficult to get hold of (unless you can cook them yourself), but as more people 'come on board' - and they will - things will get progressively easier.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

    2. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    4. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    5. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,254
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.