Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Question?


LisaN

Recommended Posts

LisaN Rookie

I remember when I read the symptoms for Celiac and I KNEW, without a doubt, that was what I had. I think I may have done it again, but I need your honest input please!

I am sooooo frusturated I can barely stand it! I was diagnosed with Celiac back in Nov of 07 and have been gluten free since then. My stomach issues have improved 99% and i am so pleased. However, I am still exhausted, zero energy, having major hair loss, dry skin, brain fog, aches and pains, can't lose weight. I am gluten free and also a vegetarian so it makes no sense to me why i am 30 lbs overweight! I eat very healthy. I have gained and lost 30lbs twice in my life without changing my eating or exercise habits. Within the last week i feel like there is a lump in my throat, choking on food, and constant need to swallow. Also having a hard time breathing and yawning a lot.

I have been tested for Lupus and RA both with negative results. My thyroid has been tested numerous times. The 1st time I was on the verge of being hypo and everytime after that has been normal. I did have epstein bar back in feb of 07.

After reading some info, my symptoms are almost dead on for hypothyroidism. I read that if you have celiac that you are more likely to have other autoimmune disease. So... could I have Hashimotos? Which can have both hypo and hyper symptoms... which might explain the unexplained weight gain and loss?

Please help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dedrasmom Rookie

Hi Lisa, definitely sounds like thyroid to me. I am a long time thyroid patient. You should go to thyroid.about.com. and post questions to their forum. (lower left corner of main page) The hardest thing will be to find a good doctor as you will understand after you do some reading on that site. Where do you live? There is a list of top docs on the site for different states. check it out. If you can find a good doc that will treat symptoms and not just look at numbers from your bloodwork, hopefully you can feel better soon.

Good luck! Belinda in NC (my hubby has celiac & thyroid issues)

I remember when I read the symptoms for Celiac and I KNEW, without a doubt, that was what I had. I think I may have done it again, but I need your honest input please!

I am sooooo frusturated I can barely stand it! I was diagnosed with Celiac back in Nov of 07 and have been gluten free since then. My stomach issues have improved 99% and i am so pleased. However, I am still exhausted, zero energy, having major hair loss, dry skin, brain fog, aches and pains, can't lose weight. I am gluten free and also a vegetarian so it makes no sense to me why i am 30 lbs overweight! I eat very healthy. I have gained and lost 30lbs twice in my life without changing my eating or exercise habits. Within the last week i feel like there is a lump in my throat, choking on food, and constant need to swallow. Also having a hard time breathing and yawning a lot.

I have been tested for Lupus and RA both with negative results. My thyroid has been tested numerous times. The 1st time I was on the verge of being hypo and everytime after that has been normal. I did have epstein bar back in feb of 07.

After reading some info, my symptoms are almost dead on for hypothyroidism. I read that if you have celiac that you are more likely to have other autoimmune disease. So... could I have Hashimotos? Which can have both hypo and hyper symptoms... which might explain the unexplained weight gain and loss?

Please help!

Ursa Major Collaborator

I agree that you sound like you have hypothyroidism. Do you remember what your numbers were when you were tested?

Check out this website, they have great information. Also, make sure your adrenals get tested as well. Most people have adrenal fatigue when their thyroid has been out of whack for a while.

Open Original Shared Link

ShayFL Enthusiast

Stopthethyroidmadness has some great information (and some not so great). But one thing you need to check is that your doctor is using the latest lab values for TSH. It used to be up to 5 was normal and now the cut off is 3. Some experts think it should be 2. My TSH was 2.8 and I was very hypo. Im on Armour. It helped a lot. My doctor treats by symptoms and not just labs anyway. The Armour has supressed my TSH. It did with the first small dose, but I needed to keep increasing my does to get rid of the hair loss (and I had a weird patch of severly kinky hair). Muscle twitches. Those went away once I got to the right dose for me. My doctor ignores the TSH now. And asks how I feel. It helps that I am well aware of the symptoms of excess (anxiety, insomnia, rapid pulse, sweating, etc.). And I am good.

KimmyJ Rookie

Sounds like a thyroid deal to me. I would have it tested - make sure to ask to be tested for the autoimmune diseases that cause thyroid problems if you suspect Hashimoto's. Have them test your T3 and T4, as well as test for the thyroid antibodies. I'm going through this whole thyroid mess too right now, only with major symptoms of hyper-thyroidism. I hope you figure out what's causing it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Inconclusive results

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    3. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    4. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    5. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      https://onlinelibrary.wiley.com/doi/10.1111/joim.70025 Very recent (September 2025) Finland study may be of interest. Borderline negative and low positive ant-TTG, with negative and positive EMA tests in patients diagnosed with Celiac Disease.
    • nanny marley
      Thanks for the list too makes me realise why I still get symptoms after cutting gluten , all that reading has just made sense to why I'm still struggling , thankyou Scott Adams very insightful , I've been baking to and there is xanthum gum in the flour , I understand now why I still have issues with that too, and ive had to cut dairy also , i had a terrible flare few months ago and my throat also was very irritable and I had sinuses issues all makes sence 👍
    • nanny marley
      Thankyou yes I read up on it beforehand , because or my trapped nerve when I have a bowel flare up it's impossible to keep still  which I will have to do for the MRI ,and it's so painful , and I know if this is what I'm thinking it to be it will cause me terrible issues , sometimes I get to the point where I just want to diagnose myself and act accordingly, because I've been at this year's , and I clearly have all the symptoms , it's so frustrating when you have all this going in and still feel no further ahead 😳
    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.