Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Question?

LisaN

By LisaN
in Related Issues & Disorders

Recommended Posts

LisaN Rookie
LisaN
Posted

I remember when I read the symptoms for Celiac and I KNEW, without a doubt, that was what I had. I think I may have done it again, but I need your honest input please!

I am sooooo frusturated I can barely stand it! I was diagnosed with Celiac back in Nov of 07 and have been gluten free since then. My stomach issues have improved 99% and i am so pleased. However, I am still exhausted, zero energy, having major hair loss, dry skin, brain fog, aches and pains, can't lose weight. I am gluten free and also a vegetarian so it makes no sense to me why i am 30 lbs overweight! I eat very healthy. I have gained and lost 30lbs twice in my life without changing my eating or exercise habits. Within the last week i feel like there is a lump in my throat, choking on food, and constant need to swallow. Also having a hard time breathing and yawning a lot.

I have been tested for Lupus and RA both with negative results. My thyroid has been tested numerous times. The 1st time I was on the verge of being hypo and everytime after that has been normal. I did have epstein bar back in feb of 07.

After reading some info, my symptoms are almost dead on for hypothyroidism. I read that if you have celiac that you are more likely to have other autoimmune disease. So... could I have Hashimotos? Which can have both hypo and hyper symptoms... which might explain the unexplained weight gain and loss?

Please help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dedrasmom Rookie
Dedrasmom
Posted

Hi Lisa, definitely sounds like thyroid to me. I am a long time thyroid patient. You should go to thyroid.about.com. and post questions to their forum. (lower left corner of main page) The hardest thing will be to find a good doctor as you will understand after you do some reading on that site. Where do you live? There is a list of top docs on the site for different states. check it out. If you can find a good doc that will treat symptoms and not just look at numbers from your bloodwork, hopefully you can feel better soon.

Good luck! Belinda in NC (my hubby has celiac & thyroid issues)

I remember when I read the symptoms for Celiac and I KNEW, without a doubt, that was what I had. I think I may have done it again, but I need your honest input please!

I am sooooo frusturated I can barely stand it! I was diagnosed with Celiac back in Nov of 07 and have been gluten free since then. My stomach issues have improved 99% and i am so pleased. However, I am still exhausted, zero energy, having major hair loss, dry skin, brain fog, aches and pains, can't lose weight. I am gluten free and also a vegetarian so it makes no sense to me why i am 30 lbs overweight! I eat very healthy. I have gained and lost 30lbs twice in my life without changing my eating or exercise habits. Within the last week i feel like there is a lump in my throat, choking on food, and constant need to swallow. Also having a hard time breathing and yawning a lot.

I have been tested for Lupus and RA both with negative results. My thyroid has been tested numerous times. The 1st time I was on the verge of being hypo and everytime after that has been normal. I did have epstein bar back in feb of 07.

After reading some info, my symptoms are almost dead on for hypothyroidism. I read that if you have celiac that you are more likely to have other autoimmune disease. So... could I have Hashimotos? Which can have both hypo and hyper symptoms... which might explain the unexplained weight gain and loss?

Please help!

Ursa Major Collaborator
Ursa Major
Posted

I agree that you sound like you have hypothyroidism. Do you remember what your numbers were when you were tested?

Check out this website, they have great information. Also, make sure your adrenals get tested as well. Most people have adrenal fatigue when their thyroid has been out of whack for a while.

Open Original Shared Link

ShayFL Enthusiast
ShayFL
Posted

Stopthethyroidmadness has some great information (and some not so great). But one thing you need to check is that your doctor is using the latest lab values for TSH. It used to be up to 5 was normal and now the cut off is 3. Some experts think it should be 2. My TSH was 2.8 and I was very hypo. Im on Armour. It helped a lot. My doctor treats by symptoms and not just labs anyway. The Armour has supressed my TSH. It did with the first small dose, but I needed to keep increasing my does to get rid of the hair loss (and I had a weird patch of severly kinky hair). Muscle twitches. Those went away once I got to the right dose for me. My doctor ignores the TSH now. And asks how I feel. It helps that I am well aware of the symptoms of excess (anxiety, insomnia, rapid pulse, sweating, etc.). And I am good.

KimmyJ Rookie
KimmyJ
Posted

Sounds like a thyroid deal to me. I would have it tested - make sure to ask to be tested for the autoimmune diseases that cause thyroid problems if you suspect Hashimoto's. Have them test your T3 and T4, as well as test for the thyroid antibodies. I'm going through this whole thyroid mess too right now, only with major symptoms of hyper-thyroidism. I hope you figure out what's causing it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    2. HAUS
      - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free...
    3. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    4. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    5. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,433
    • Most Online (within 30 mins)
      7,748
    Caty
    Newest Member
    Caty
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.