Test Result Help?

[Salem]

I just got my results back:

IgA <0.05

IgA anti-tissue transglutaminase <2

I'm confused. At first the dr said I don't have celiac, and then the more he talked the more he started to lean towards maybe I do. He said that because my carotene levels were good, it doesn't look like I have malabsorption happening.

On my test result it says that "Celiac disease is unlikely. False negative results may occur in celiac disease patients who are on a gluten free diet or who have low or absent IgA levels."

I was told years ago that I was allergic to wheat and dairy. Since then I have been eating spelt and kamut, and wheat every now and then. However in the last year the gas, bloating, D and abdominal pains have gotten 100% worse. 2 days before the test I stopped eating gluten (because I wanted to die it hurt so bad). I was told that if I had celiac it would still show up on the blood test. Now I'm starting to wonder. I would love to be able to eat spelt and kamut again, as they are way better than any of the flours I've tried recently, but I don't want to be causing myself damage.

Either way, I have been gluten free for 27 days and feel 85% better. But if I don't have celiac, then what is it?

[fedora]

I ate spelt for years instead of wheat. At first I got better, but then I got worse. This winter I cheated with lots more wheat. I went gluten free in january and haven't looked back. No cheating ever again. I a feel so much better. Spelt has gluten but less than wheat. Since they don't sell spelt at restuarants, I didn't eat gluten out hardly. I think this can effect blood tests. They say you should be eating bread multiple times a day for the blood tests.

The blood tests can be false negative. I didn't even get one. I did enterolab after I went off gluten. I don't know if I had celiac-villi damage, but I definately am gluten intolerant

good luck

[lizard00]

IgA <0.05

Was that your total IgA? Or do you have more test results that you can post? The reason I ask is that if that is your total IgA, it looks awfully low.

[Salem]

Was that your total IgA? Or do you have more test results that you can post? The reason I ask is that if that is your total IgA, it looks awfully low.

Nope those are the 2 tests my dr requested. It says that the normal range is 0.9-5.5 g/L. So what does a really low number mean here?

[nora-n]

I think your very low number means you are IgA deficient and the ttg test that was done is invalid because you do notmake enough IgA at all. Your doctor should know that. Usually the lab automatically runs the IgG version of the Ttg test if the total IgA is low. Does not look like they did that in your case.

nora