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Guest Leidenschaft

By Guest Leidenschaft
in Coping with Celiac Disease

Recommended Posts

blueshift Apprentice
blueshift
Posted

Well, I think I got this right..It should be in my signature showing that I live near Chicago..There are a lot of good stores near me..I am very fortunate for that.

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BamBam Community Regular
BamBam
Posted

Hi - I live in Miles City Montana - I updated my signature!!

I have access to a small health food store here in Miles. I go to Billings MT - and they have several. My sister lives in Washington and she goes to Trader Joes for me once in awhile. I also order on the internet - especially - "Manna From Anna" That is the best bread in the world!!

BamBam

Guest sushi
Guest sushi
Posted

Hi all,

I don't order anything from mainland companies because postage costs more than the food. I live in Kaneohe, Hawaii. Aloha

Susette :D

2old4 Rookie
2old4
Posted

Hello- I'm way far east- State of Maine ;) 2old4 Patty

psawyer Proficient
psawyer
Posted

I am in Markham, Ontario, Canada. Markham's southern border abuts the city of Toronto.

More about where I live: Open Original Shared Link

I was diagnosed, as shown in my signature, in 2000, but I know from symptoms that I had celiac disease for a long time before that. I had various gastric symptoms for more than 30 years before diagnosis. They got worse over time, and I am sure that I had full scale celiac disease in 1994. None of the doctors could figure it out. My wife learned about celiac disease from the Internet, and I asked my doctor about it...

The avatar is a recent photo of me.

sweeet-pea Rookie
sweeet-pea
Posted

Just seeing if mine worked!!! ;)

Bonnie Explorer
Bonnie
Posted

Is there NOBODY from my neck of the woods? I live in Durban, South Africa. Needless to say I can't get any of the products you guys discuss!

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Guest Viola
Guest Viola
Posted

That's too bad Bonnie that you can't get some of these products :( Can you get much there that is gluten free?

What about you susette? Can you get much in Hawaii?

citygirl114 Newbie
citygirl114
Posted

Just me.....great idea :D

Guest Viola
Guest Viola
Posted

Hi Penny, Tammy and I will be in your area next month. We have to go to Victoria for a wedding. Tammy (Leidenschaft) will be bridesmaid :D Do you know of a special place in Victoria?

citygirl114 Newbie
citygirl114
Posted

Hi Shirley

Are you looking for sight seeing adventures? I am in Nanaimo but there are so many great places to see. Have you been to Victoria before? Buchart Gardens is beautiful....tour the waterfront lots of neat places....china town is cool......the wax museum if that is your kind of fun.....search out Victoria on the web and you will find an endless amount of information....

One of my favourites is the Craigdarroch castle it is supposed to be haunted....

Open Original Shared Link

Hope this helps

Enjoy your vacation and have a safe trip. :D

Guest Viola
Guest Viola
Posted

Hi Penny, yes, we have done all of those except the castle! Will surely have to put that on my list. Tammy used to live in Victoria, so we have been several times, however at the time Tammy was not a diagnosed Celiac. I was wondering if you have a favoutite place to eat :P I love Nanaimo as well, quite a lovely city. We are hoping to get to Cobble Hill to visit friends, but will have to see how the time goes with all the wedding activities. We will be staying at my hubby's cousins place. Thankfully, they are quite careful with my diet :)

Bonnie Explorer
Bonnie
Posted

Hi Shirley,

I can get Glutano products but its a bit of a mission and so expensive. The crackerbread and biscuits are easily available though. Oh and I found some Envirokidz flakes - divine!

I just read the forum and drool over the donuts and stuff you guys can get!

Yvonne

Guest Viola
Guest Viola
Posted

Yvonne, if you can get the Envirokids flakes, can you also get their rice bars? They come in chocolate, peanut butter and berry, and are quite good. If you don't get them now, perhaps your shop can order them as they are already ordering from the same company. :rolleyes: That would give you something else, I know it isn't donuts and blueberry muffins, but at least it's a nice portable snack that you could stick in your pocket.

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      Help understand results

      By knitty kitty · Posted

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      Insomnia help

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    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
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      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
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