Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Had Egd And Biopsy Today...few Questions


starrymazed

Recommended Posts

starrymazed Rookie

I talked to my dr after the procedure and recieved a copy of the report itself. While I have to wait a week for the biopsy results, I did find out that I have GERD, a small hiatal herna, a gastric ulcer, and possibly gastritis. The report also says they biopsied for gastritis, duodentus, and to rule out H. pylori as well as celiacs disease. He told me my that my twenty years of taking over the counter pain medicne for headaches probably caused the ulcer, and not to take anymore. He also gave me Prilosec, and told me to go back to a gluten free diet. What realy does all this mean? When I asked if they suspected celiacs, he said they need to wait for the biopsy results. Are this many stomach issues normal? Does anyone have any similar experiences? I just don't know what to think. Celiacs? Or something else altogether? In any case, I am gluten free as of today, my stomach feels awful, and I am more confused than before. Any input would be GREATLY appreciated! Thank you so much for reading!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



starrymazed Rookie

I forgot to mention that report also stated they suctioned 150cc of biliary fluid and that they biopsied a section with "scalloped mucosa". I thought that the scallpoed mucos was consistant with celiacs, but why would they suction fluid out? I am so overwhelmed right now. And the fact that there is a week wait for the biopsy results really stink. The worst is my stomach right now. I feel absolutely horrible :(

ravenwoodglass Mentor

((((((((hugs)))))))) I hope you feel better soon. The report he gave you has strong indications of celiac but many doctors will not diagnose unless the villi are totally destroyed. It sounds like you have a smart GI who recognizes the celiac changes, I would agree with him that you should get on the diet. You also should not stop the diet if the biopsies are negative, there is a lot of small intestine there and biopsies are hit and miss. I am betting you will feel much better soon.

starrymazed Rookie
((((((((hugs)))))))) I hope you feel better soon. The report he gave you has strong indications of celiac but many doctors will not diagnose unless the villi are totally destroyed. It sounds like you have a smart GI who recognizes the celiac changes, I would agree with him that you should get on the diet. You also should not stop the diet if the biopsies are negative, there is a lot of small intestine there and biopsies are hit and miss. I am betting you will feel much better soon.

Thank you. I am feeling pretty crappy today, with my stomach and muscle aches. I am not sure, but I would imagine it has something to do with the EGD and the biopsies. Thank you for your response.

ravenwoodglass Mentor
Thank you. I am feeling pretty crappy today, with my stomach and muscle aches. I am not sure, but I would imagine it has something to do with the EGD and the biopsies. Thank you for your response.

That is a possibility. I had a hard time after mine cause my body really does not like Versed and my doctor gave me a great deal of it, more than he should have in my opinion since there was no anesthesiologist there. I counted at least 8 'pushes' and still wasn't out. He told me I was on the next visit though, till I repeated every word he had said. That shut him up.

It can take a couple of days for the after effects to go away for some of us. If your discomfort increase or does not go away you may want to let him know. Pamper yourself and take it easy today if you can.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.