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Iga Deficiency And Conflicting Articles

vmlehtonen

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vmlehtonen Newbie
vmlehtonen
Posted

I have been trying to read up on IgA Deficiency and Celiac. My daughter had a blood test and is IgA Deficient and her AGA IgG came back high. Some articles say to perform a biopsy if this happens, and some articles say that this is not a good determinate of Celiac. I have been reviewing tons of journal articles and I just don't know what to believe. I have a call in to the gastro doc to see if they would like further blood testing like TtG IgG, EMA IgG also. Anyone else IgA deficient want to share their blood work?

I decided to get myself tested as well and came back IgA deficient. The doc wouldn't initially order IgG's for all the celiac tests because she didn't think I would be IgA deficient, I was very frustrated, going back to ask her to order them now that we know I am too!

Trying to decide whether I believe she may have celiac based on that AGA IgG????

Vickie

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disneyfan Apprentice
disneyfan
Posted
I have been trying to read up on IgA Deficiency and Celiac. My daughter had a blood test and is IgA Deficient and her AGA IgG came back high. Some articles say to perform a biopsy if this happens, and some articles say that this is not a good determinate of Celiac. I have been reviewing tons of journal articles and I just don't know what to believe. I have a call in to the gastro doc to see if they would like further blood testing like TtG IgG, EMA IgG also. Anyone else IgA deficient want to share their blood work?

I decided to get myself tested as well and came back IgA deficient. The doc wouldn't initially order IgG's for all the celiac tests because she didn't think I would be IgA deficient, I was very frustrated, going back to ask her to order them now that we know I am too!

Trying to decide whether I believe she may have celiac based on that AGA IgG????

Vickie

Several years ago I had a ton of blood work done to figure out why I was not absorbing calcium. One of the things the hematologist told me was that I was "IgA deficient". I had no idea what it meant and he said if I ever needed a blood transfusion, I would have to be sure it was IgA deficient also. One year ago, my endo decided to test me for celiac because of the malabsorption problems I was still having. He ordered the testing and I came home and did research. One of the things that popped in many articles was IgA deficiency causing a negative test result. I called and spoke with the nurse and they ordered the IgG version of the TTG test first. It came back positive. Then they did the EMA and had to do the full panel (IgA and IgG) to get the correct result. I also checked with the lab first and they agreed. The EMA came back negative for IgA and positive for IgG. If I had not remembered what that other doctor told me, I would have had negative results and probably not questioned it. The note was in my records provided to the dr and they never noticed it until I mentioned it.

I would pursue the IgG testing just to be sure.

disneyfan Apprentice
disneyfan
Posted
I have been trying to read up on IgA Deficiency and Celiac. My daughter had a blood test and is IgA Deficient and her AGA IgG came back high. Some articles say to perform a biopsy if this happens, and some articles say that this is not a good determinate of Celiac. I have been reviewing tons of journal articles and I just don't know what to believe. I have a call in to the gastro doc to see if they would like further blood testing like TtG IgG, EMA IgG also. Anyone else IgA deficient want to share their blood work?

I decided to get myself tested as well and came back IgA deficient. The doc wouldn't initially order IgG's for all the celiac tests because she didn't think I would be IgA deficient, I was very frustrated, going back to ask her to order them now that we know I am too!

Trying to decide whether I believe she may have celiac based on that AGA IgG????

Vickie

This link exlains this very well. Good luck!

Open Original Shared Link

disneyfan Apprentice
disneyfan
Posted
This link exlains this very well. Good luck!

Open Original Shared Link

I meant to say "explains"....

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

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