Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Anemic

New2Celiac

Recommended Posts

New2Celiac Newbie
New2Celiac
Posted

I was diagnosed over a year ago with celiac disease. I have JUST begun the gluten free diet due to being in denial for so long. My stomach issues have always fluxuated; however now I am noticing other symptoms which I believe are due to anemia.

First and fore most I am exhausted...I wake up and want to go back to sleep, at work I think about sleep, ALL I WANT TO DO IS SLEEP! I'm also lightheaded and cloudy and during my menstral (sorry guys) cycle I have dark blood and lots of cramping. The last few weeks have been pretty bad as I am getting headaches on a daily basis. I am on a gluten free diet for the past week, but it seems the damage has already been done. I have an appointment on Monday to test for Anemia, but I'm worried it's something worse. Does this sound like something ANYONE has experienced? From reading the threads I realize I am not education on celiac disease at all. Any comments would be appreciated :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted
First and fore most I am exhausted...I wake up and want to go back to sleep, at work I think about sleep, ALL I WANT TO DO IS SLEEP!

That sounded like me 7 months ago. My more pronounced symptoms were headache and nausea, but these went away almost as soon as I went gluten-free. The fatigue went on, and on, and on...

We are usually deficient in something, I wish I could tell you if I was. My doc tested me for vit d and b12 in april, but my levels were normal. I was feeling better by then though and had started supplementing and going out in the sun. A sublingual b12 worked wonders for me in helping with energy. So, I'm pretty sure I was low in B12. I started waking up more refreshed pretty quickly, but I had to take an afternoon nap for a few months. I hated it, but I had to let my body rest. Then one day, I noticed that it had been a week or so since I took a nap. What I learned from this is that when your body is down, it needs to rest. I didn't get sick overnight, and I wasn't going to get well overnight.

Anemia is always a possibility among Celiacs, but don't let your doc test you only for that. Have your doc run vit d, b12, potassium... there's a few more but my brain is turning to mush. It's late where I am... I'm sure others will fill in the gaps. And untreated Celiac can also lead to thyroid problems, so it probably would be a good idea to check that if you haven't already.

Hope that helps and hope you get yourself on the diet asap!!! You will feel so much better!!! This site is full of great info, the forum is full of incredibly knowledgable people, so ask any question you have. Everyone is happy to share their experience to help you get on track!

Take care!

RiceGuy Collaborator
RiceGuy
Posted

I agree with the suggestion of B12 - Open Original Shared Link to be exact. You cannot overdose, so I'd say try it and see. But from all your symptoms I'd have to believe there are other issues. No doubt there is much healing required, so it will take time, but there is probably a lot you can do to help your body along. Anemia is a good guess too, though I am aware that too much can be trouble, so it's good that you will be getting tested.

New2Celiac Newbie
New2Celiac
Posted
  • Author

Thank you for your advice! I will ask for my dr to test for all those as well. This is such a great place to find out answers to all my questions!!!!!!!!! I didn't realize how much damage I was doing to my body. I've been on this forum for hours upon end and I'm just floored. Thanks again!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748
    Pesto
    Newest Member
    Pesto
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.