Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rough Week


kenlove

Recommended Posts

kenlove Rising Star

Had the roughest week in the past 2 years (2 years trying to be gluten-free on the 21st)

Have to feel sorry for my wife and I know she feels bad.

Glutening #1

On Monday she decided to get a real bagel when I was out, missed some crumbs which got into something I tried to eat.

Sick with D and DH for 2 days.

Wednesday she tried to make up for it with a salad she made 10 times in the past few months. Within minutes I was sick again.

Tonight she made Pamala's brownie mix, that was it but again running back and forth to the throne room and all broken out with dh on top of the dh.

Sometimes its just rough trying to do it right!

ken


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Am sorry to hear its been so rough Ken! I think sometimes when its been so long it may be harder.

My sister Peggy is visiting from Southern California and she too got sick for the first time in 2 years. Sicker than a dog!! I am having her stay with me now rather than upstairs with our aged mother who hasn't completely cleaned up her act.

Hope you remember to take probiotics, marhsmallow root, slippery elm and the rest once you can tolerate anything. Peggy is doing much better using blackberry leaf tea--against the D.

Bea

kenlove Rising Star

Thanks Bea,

Usually I just sort of float around between my projects with no problems but for some reason last week was different.

I'm going to look for more S elm tomorrow and hope I can find it here. Leaving on the 29th so no time ot order from internet.

Hope your sister is better soon.

thanks again

ken

Am sorry to hear its been so rough Ken! I think sometimes when its been so long it may be harder.

My sister Peggy is visiting from Southern California and she too got sick for the first time in 2 years. Sicker than a dog!! I am having her stay with me now rather than upstairs with our aged mother who hasn't completely cleaned up her act.

Hope you remember to take probiotics, marhsmallow root, slippery elm and the rest once you can tolerate anything. Peggy is doing much better using blackberry leaf tea--against the D.

Bea

sickchick Community Regular

Aww, bummer ken I hope you feel better quick! :)

kenlove Rising Star

Thanks Collette!

A little better today -- as long as I don't eat --

having to much fun to eat planting fig trees around the house

Aww, bummer ken I hope you feel better quick! :)
sickchick Community Regular

figs! :o:D

we finally had our first day that was hotter than 55 degrees I am beside myself :) HAHAH

2 nights ago it was 36 F and my poor varigated basil died...

be well!!

kenlove Rising Star

Condolences for your basil.

. Had a new road and driveways put in Saturday which created a number of new places to plant. We're finally getting some rain

so is a good time + I want to do it now so its alal groqwn up by the time i get back mid august.

take care

figs! :o:D

we finally had our first day that was hotter than 55 degrees I am beside myself :) HAHAH

2 nights ago it was 36 F and my poor varigated basil died...

be well!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
Condolences for your basil.

. Had a new road and driveways put in Saturday which created a number of new places to plant. We're finally getting some rain

so is a good time + I want to do it now so its alal groqwn up by the time i get back mid august.

take care

Ya know, I bet if you ask really really nice, Collette would be happy to share some rain with you! Maybe you could even swap rain for warmth! :D Sounds like a win-win trade to me! :P

Seriously, hope you feel better soon!

kenlove Rising Star

We always love rain here --

thanks much!

Ya know, I bet if you ask really really nice, Collette would be happy to share some rain with you! Maybe you could even swap rain for warmth! :D Sounds like a win-win trade to me! :P

Seriously, hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.