Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Budesonide Is A Miracle!

Canadian Karen

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted

It is nothing short of a miracle!!! I started the budesonide just under one week ago, and this morning is the first "normal" bm I have had in over a decade...

Also, I have had no gluten reactions to this drug, so I believe it to be gluten free.

I absolutely, positively, cannot believe after suffering with permanent diarrhea for a decade that I found a medication that could cure my collagenous colitis in such a short period of time!!!!! I feel like my life is going to change so much now. I am daydreaming of going out shopping and not having to run to the bathroom, no accidents, etc.

I have been doing the happy dance all morning!!!!!

Have a wonderful day, everyone!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Happycat Rookie
Happycat
Posted

That's great!! I know what it's like to suffer like that. Well, not for 10 years but a couple.

Enjoy shopping!!

Lisa :lol:

celiac3270 Collaborator
celiac3270
Posted

Yay! I'm really happy for you--truly :D

Guest gillian502
Guest gillian502
Posted

I wanted so badly to take Budesonide, but was told by the company as well as my dr. that this is NOT a gluten-free drug and to avoid it. They said they use wheat as their binder, and the dr. told me if I went on it anyway it would improve my colitis but make me lose all the headway I'd made with the Celiac Disease. Could this be because it is manufactured differently where you are, and if so what company do you use for Budesonide?

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Hi!

I just checked with Shoppers Drug Mart (the pharmacy I get my prescriptions from) and I got the name of the manufacturer. The manufacturer is Astrazeneca Canada Inc. and their customer service number is 1-800-668-6000. I just called them but their business hours are from 8 a.m. to 5 p.m. and it is now 5:10 p.m... I will try again tomorrow.

I can't believe the difference in me in such a short period of time though. I honestly never thought I would see the day that I actually had a normal bm again.....

Have a great day!

Karen

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Hi!

I just talked to the company and they said their budesonide is both gluten and lactose free..... Maybe the Canadian version is gluten-free, but not the U.S version?

Have a great day!

Karen

celiac3270 Collaborator
celiac3270
Posted

So how are you now? On the road to recovery or almost completely symptom-free?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest gillian502
Guest gillian502
Posted

Wow, I can't believe AstraZeneca in Canada is so different from AstraZeneca here in the states...I think the AstraZeneca over here needs to get off their butts now and start manufacturing Budesonide as a gluten-free drug! I have colitis too and Budesonide is my only hope for totally correcting symptoms (the harsher drugs don't work well for me) but I am unable to take it due to the gluten factor. Hopefully things will change soon! :) congrats on feeling better!

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

It's amazing how the same company can manufacture the same drug but put different fillers in it depending on the country, eh? I wonder if there is any way you can get your hands on the Canadian version instead..... I remember reading a story a few months ago about a bus load of seniors taking a trip up to Windsor to get their prescriptions filled. Maybe you can hop the border too!!!

celiac3270, I would have to say I am finally on the road to recovery. I have noticed alot of the bloating, abdominal pain etc. has lessened since the diarrhea has stopped. I was so worried that when a finally started having normal bms, that my bowels would have long forgotten how to "push" anything out, since they have spent years just have things "explode" out of them, but I guess it's like riding a bike, they just kicked in and started doing what they are supposed to do....

I still have a lot of joint pain. I posted awhile about my right shoulder and left hip really bothering me. That seems to be increasing in the discomfort. I can't understand why though, since my bone density test showed my bones were actually in pretty good shape. Also, I get these burning sensations in my arms and legs that feel really weird, too. Also, the back of my neck between my shoulder blades feels like it "seizes up", if that makes any sense....I am wondering about maybe nerve damage or something.... I think I am going to ask my dr. to refer me to a neurologist.

I hope all is well with everyone and have a great weekend!!

Karen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748
    TGreen
    Newest Member
    TGreen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.