Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enzymaid


AliB

Recommended Posts

AliB Enthusiast

Just wondered if anyone has tried this product. Although it can help in gluten digestion for non-Celiacs I am particularly interested in its Casein and Lactose digesting properties.

Anyone know anything about it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

I have used Gluten-zyme by country life which I think has similar properties to good effect after being exposed to gluten. It really helped a lot. I took a double dose as well as more bromelain/papain and pancreatic enzymes too. Hitting it right away really made a difference in my response. No D! and really nothing dramatic unlike previously. Just a little joint pain and twitching at night. The next day I took extra pro-biotics. the Gluten Ayme has pro biotics too as well as glutenase powder, strong acid protease, amylase, glucoamylase, and a variety of Peptidase activity items.

Bea

Rachel--24 Collaborator
Just wondered if anyone has tried this product. Although it can help in gluten digestion for non-Celiacs I am particularly interested in its Casein and Lactose digesting properties.

Anyone know anything about it?

I dont know about Enzymaid. Peptizyde by Houston Nutraceuticals is great for breaking down the proteins....particularly gluten, casein and soy. In addition, HN-Zyme Prime is good for breaking down fats, starches and carbohydrates, lactose intolerance, gas, bloating and general digestion of all foods.

These two enzymes have had good results with the autistic population. Many are able to go off the gluten-free/cf giet with the use of these enzymes.

For Celiacs Peptizyde *may* worsen the reaction to gluten. So its not recommended for Celiac's to use in case of accidental gluten exposure. For everyone else it works well.

AliB Enthusiast

Thanks for that. I just still keep getting the 'pounding'. Not a fast heartbeat but just feeling it right through my whole body which suggests that I am just not digesting something properly or something is exacerbating an infection in there somewhere. I've been having a little soy cream in my hot choc (dairy free) but I don't think I am coping with that very well. I can't cope with tea, I can't cope with coffee and now I'm not sure I can have my hot choc either and I am fed up.

I'm avoiding all gluten and all dairy but am still getting this and it is annoying as it often keeps me awake at night. Occasionally it is a little better but I don't know why! The thing is, it could be carbs and it could be sugar but having already cut out a huge part of my diet, if i drop those too there won't be anything left! I'm not having very much of them as it is.

Because my diet is so restricted I get so hungry and that is when I tend to eat more carbs and/or sugar than I should. I thought maybe, with the help of enzymes I might be able to cope with some dairy and carbs. I know I can't go on like this - it's driving me mad and I am getting pretty fed up with food all round.

Although my ticker has been checked out, I do wonder what damage might be going on in the long-term if I don't get this sorted. I know it's not my blood pressure as that came right down to normal since gluten-free. I just can't figure this one out.

Rachel--24 Collaborator

This is my guess as far as the pounding goes. I think its the chocolate. Not because of sugar and not because of carbs.....but because chocolate has a very high phenol content.

Its very rich in histamine.

Open Original Shared Link

For people who are sensitive to phenols chocolate is a definate trigger for reactions.

Its also high in oxalates...another compound which can cause alot of health issues for someone having problems with oxalates.

With the "pounding" I'd suspect a phenol reaction. This is pretty easy to determine. Eliminate the chocolate and see if the pounding goes away. Then you can try the chocolate again and see if the pounding returns.

With phenol sensitivity reactions are dose related....so it might not happen until you've had chocolate for several days.

Anyways, I'm sensitive to phenols and cholcoate does that to me...and it can keep me awake at night. In the beginning I thought it was the caffeine.

AliB Enthusiast

Thanks Rachel, I'll try that. I'd cut down to just plain very bitter choc with no dairy - just a few squares a day and one or two cups of hot choc. I figured, what the heck, I've cut out everything else - let me have just ONE indulgence! Seems I might end up being denied that, too! Sigh.

Gluten-Free Guy Newbie

You may want to do some research into the independent (not the manufacturer's) scientific and medical validations to confirm the safety and effectiveness of any enzyme product claiming to assist celiacs in the digestion of gluten. At the national conference of the Celiac Sprue Association in October 2007, an expert expressed his opinion that one of these enzyme products is "deceiving and potentially dangerous." It's likely that the same caution applies to the other similar products.

Currently, scientists at Stanford University and at the University of Leiden in the Netherlands are conducting research to find a pill that will assist celiacs in the digestion of gluten, primarily when consumed by accident. It appears, however, that it may be a few years before a safe and effective product (based on their research) will reach the marketplace.

I have not seen any endorsements for the current products by national celiac organizations. It seems that, if the products were safe and effective, the organizations would be communicating it to their members. Furthermore, if you read the product labels, you will probably see a sentence to the effect that "These statements have not been evaluated by the Food and Drug Administration."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
I have not seen any endorsements for the current products by national celiac organizations. It seems that, if the products were safe and effective, the organizations would be communicating it to their members. Furthermore, if you read the product labels, you will probably see a sentence to the effect that "These statements have not been evaluated by the Food and Drug Administration."

To my knowledge noone here is interested in these products as a "treatment" for Celiac. The enzymes aid in digestion of other proteins....including casein and soy.

Noone is making claims that these enzymes can be used to assist Celiac's in consuming gluten...although some people do use them prior to eating meals where there may be possibility of cross contamination.

Nobody is saying that its safe for a Celiac to consume gluten intentionally while using these enzymes. The manufacturers clearly state on their websites that the enzymes are not to be used as a replacement for the gluten-free diet for those who have Celiac.

Keep in mind that some people who are gluten intolerant do not have Celiac (such as myself) and for some of these people the enzymes can be very helpful. The enzymes have proven to be effective for many non-celiacs....including a large percentage of autistic children.

YoloGx Rookie

Hi Ali and all,

I have read that there are studies at Stanford that indicate taking pro-biotics is helpful against inflammation for those suffering from celiac after ingesting something glutenous that usually creates an immune reaction. I have also read scientific reference to the fact that bromelain is good against inflammation. Certainly these two items have helped me. Even just eating live yogurt and fresh pineapple in a pinch seems to help if its done right away. Fresh Papaya or papain helps too.

I also wanted to add (as I have said before) that by taking the co-enzyme b vitamins (the ones without sorbitol) my heart stopped its pounding upon easy stress and late at night in bed plus now I can use a sauna or jacuzzi without fainting. For me I was having a problem absorbing/making/utilizing vitamin B-1 which is essential for carbohydrate and protein metabolization which is essential for a healthy nervous system including the heart and brain. If I stop taking the co-enzyme B's I notice it right away with jumpy pains in my feet and calves. Soon I am certain my heart would start pounding too. I noticed a difference in less than two weeks with my heart improving amazingly once I started taking the co-enzyme B's. the cool thing about the co-enzyme b's is that they go directly into the blood stream. I have also ready that many people with celiac have difficulty creating or making use of B vitamins in their damaged intestines...

I too can't tolerate much chocolate. It keeps me awake at night and is hard on my kidneys. I sneak a little sometimes but am better off if I don't. I suggest using carob powder instead of chocolate. It really is a close cousin in taste. I make some mean carob brownies that you would swear were chocolate (also using stevia rather than sugar--plus a small amount of applesauce which seems to cancel out the bitter stevia taste). If interested I will list my art/poetry/commentary (including some gluten-free recipes) blog where I have the recipe listed.

Bea

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748

    bobadigilatis
    Newest Member
    bobadigilatis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.