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Joint/muscle Pain With Celiacs


souzahanson

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souzahanson Apprentice

Has anyone ever had severe joint and muscle pain and been placed on steriods? Has anyone ever had these pains but no stomach/stool issues. My MD is trying to say that my current symptoms are related to celiac, but I doubt his diagnosis.


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Lisa Mentor
Has anyone ever had severe joint and muscle pain and been placed on steriods? Has anyone ever had these pains but no stomach/stool issues. My MD is trying to say that my current symptoms are related to celiac, but I doubt his diagnosis.

Sure, it can be very common for Fibromyalgia and Rheumatoid and OsteoArthritis to be associated with Celiac. Many here have those issues. I, after three years gluten free have OsteoArthritis. My doctor has not prescribed steroids, but rather two Aleves in the am and two in the pm. For the time being it seems to work.

I am not sure that I can pinpoint my arthritis on Celiac or just the aging process. Either way, I've got it.

Here is some information you may be interested in:

https://www.celiac.com/categories/Celiac-Di...-and-Disorders/

Nancym Enthusiast

Gluten gave me awful joint pain, but I also had intestinal issues too. Diary actually seems to make my muscle spasm oddly enough.

Why not try giving it up for a while and see what happens?

ajewel Newbie

I actually dont have celiac disease but i have a wheat/gluten allergy .. my primary issue is server joint pain.. achyness all over.. Been told i have fibrya milga.. because of the issues i have .. My naturlist doc believes that is not my issue she strongly believes i have a horrible allergy to wheat.. I know beening off it i have felt so much better ... until recetnly been having issues again cause my body is reacting to dairy now witch is normal from what I been told and read. I do totally understand the frustration of pain been living with it for six years and it basically makes you misreable and depressed.. I still have alot of healing to go 6 years of being in pain and only three months gluten free .. But it is worth it end :)

*lee-lee* Enthusiast

i had joint pain in my hips which also consisted of general leg aches for about 8-10 months before i suspected i had Celiac. i was tested numerous times for mono, Lyme's Disease, arthritis, thyroid, etc (all negative, of course) and also went through a month of physical therapy and multiple cortisone injections before being diagnosed with trochantaric bursitis. i was told to stretch better before going to the gym/extensive walking.

after nearly a year, my pain finally subsided. then i began to suspect Celiac (chronic D for a few months among other symptoms)...positive blood, negative biopsy, positive reaction to the diet. after reading this board, i've come to the conclusion that my joint pain was just another symptom of the Celiac.

i was never put on steroids but for some time i was on 800mg 3x/day of Motrin in addition to a few cortisone injections. the cortisone didn't too a whole lot - actually nothing really helped...i recovered on my own and i make sure i stretch my legs well before going to the gym just to be safe.

i'd try gluten free just for kicks...

ravenwoodglass Mentor

I also had severe joint and muscle pain, and they developed in childhood although the severe arthritic damage didn't start till much later. I also had neuro impact in childhood. I did have C, at times bad enough to impact but constant daily GI distress in the form of D did not happen until much later after my children were born.

There is a gluten sensitive gene, mine DQ9 that is considered an RA gene here. My joint and muscle pain and the resulting damage to the joints has been in remission now since a couple of months into the diet. The only time I flare now is if glutened, which is now rare.

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    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
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      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
    • trents
      Welcome to celiac.com, @Teaganwhowantsanexpltion! Joint pain is a well-established symptom of celiac disease. But joint pain may also be caused by other medical problems such as rheumatoid arthritis, chronic fatigue syndrome, etc. Make sure you share these concerns with your physician so that he or she can initiate testing or make referrals to specialists. As someone with celiac disease it is very important that you be consistent with the gluten free diet.
    • Scott Adams
      Let us know how things go.
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