Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On Elimination Diet For 5 Weeks With Zero Results


marielynor

Recommended Posts

marielynor Newbie

Hi all,

Upon the suggestion of some of you here, I tried an elimination diet because going gluten-free just wasn't helping. I've cut out all common allergens. All I've eaten in the past five weeks are: bananas, grapes, pineapple, carrots, asparagus, broccoli, salmon, tilapia, shrimp, scallops, lamb, walnuts, pecans, and extra virgin olive oil, honey, and garlic for seasoning.

I don't feel the least bit better. I don't know what to do with myself anymore. This is so hard.

The one and only time I've felt normal in the past six years is when I tried the Atkins Diet my sophomore year in college. I basically only ate meat and cheese (and a few veggies here and there) and my stomach problems just stopped. Could this be a problem with carbohydrates and not with gluten? Does this ever happen?

I assumed it was gluten-related for a long time because I had some blood work done a while back that hinted at celiac, I get mouth sores, and I have other problems a doctor told me once could be signs of an autoimmune/connective tissue disorder (positive ANA, raynauds, joint problems), which I've heard is sometimes linked to celiac.

Oh, one more thing--probably not indicative of anything, but something I found strange: For four months last year, I was gluten free. Because I wasn't seeing results, I decided to have some gluten, to see if I reacted strongly. Well, I had a LOT of gluten (what can I say...I really wanted pizza and cookies), and not only did I not feel bad, I felt better than I had in months. And, as far as I know, I never had a reaction to that gluten. I realize we all react differently to things, but it still seems so strange.

What I'm getting at is, I'm at the end of my rope. I feel like I've got nothing else to try and I'm a student with crappy medical insurance. What do I do? Can anybody help me? I'm so frustrated.

Thanks for reading. I appreciate it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

If your insurance covers it you should try allergy testing.

I know it took me more than 5 months to be glutenfree because of hidden glutens. Did you make sure that you used glutenfree shampoo, make-up, and such? I have reactions when I use them.

I hope you find some answers. Good luck.

KaitiUSA Enthusiast

Yes are you sure you were gluten-free? Gluten can be hidden in makeup, shampoos, lotions, soaps, and even foods you would never think of.

You could have a celiac test done but you have to be on gluten of course for it to come back positive. York Labs test for a whole bunch of food intolerances so you might want to consider that. Hope you feel better :D

tarnalberry Community Regular

Unfortunately, you've left three of the major allergens in your diet - nuts, fish, and shellfish. You might look at eliminating those. Additionally, people can be allergic to garlic as well, and sensitive to olive oil or acid foods like pineapple. There are other approaches you might consider taking in trying to identify food issues.

But do consider other options that are non-food specific related as well, as it's quite possible that this isn't merely a food issue. (BTW, what are your symptoms? You talk about a number of symptoms that are typical of other issues (of course, there's always overlap) and note that eating gluten doesn't seem to bother you. So I'm lead to believe from just that information that it may not be a food - or at least a gluten - problem.)

marielynor Newbie

Thanks for the comments. In regards to what my main symptoms are, cramps, diarrhea, bloating, gas. And, as I mentioned before, the only time in the past six or so years I haven't experienced these any of things, was when I ate a very low carb, high protein diet.

It feels very much food-related. But I just can't figure out the food! My symptoms are completely sporadic.

Also, I gues I can't say for sure, but I'm close to positie I'm not allergic to nuts or fish. I rarely ate nuts and I never ate seafood when all this started. I only started eating these things in an attempt to feel better.

Any further comments would be really appreciated. You guys are great.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748

    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.