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What Tests Should I Ask For?


Hopefulmama

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Hopefulmama Apprentice

We suspect Celiac with our Dd. I removed gluten from her diet before I know I shouldn't because of testing. She improved so much, so that was my answer. I am still curious to know what a genetic test would reveal. She's been gluten free since Feb. and doesn't have a ped. appt. until September. What test should I ask for that she doesn't need to be glutened for? Will it be accurate if she's gluten-free? I would assume it would be. I heard something about a cheek swab? Please excuse my ignorance, I am trying to become more informed-swimming through all of the info. here and elsewhere. Thank you for any help.


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leadmeastray88 Contributor
We suspect Celiac with our Dd. I removed gluten from her diet before I know I shouldn't because of testing. She improved so much, so that was my answer. I am still curious to know what a genetic test would reveal. She's been gluten free since Feb. and doesn't have a ped. appt. until September. What test should I ask for that she doesn't need to be glutened for? Will it be accurate if she's gluten-free? I would assume it would be. I heard something about a cheek swab? Please excuse my ignorance, I am trying to become more informed-swimming through all of the info. here and elsewhere. Thank you for any help.

Hi there!

Try Enterolab! www.enterolab.com

They do the gluten sensitivity and gene testing through stools and cheek swabs. I just ordered yesterday! *Note that they test for gluten sensitivity, NOT Celiac! They can't diagnose if you have Celiac's, just if you have a sensitivity. But what's the difference - the treatment is the same anyway.

The best part is - you don't have to be eating gluten to take them! Lots of people here have used this lab, and some come out positive and some negative, so no reason to be sceptical. In the end, if her life has dramatically improved on the diet then that is answer enough. Some people never get a diagnosis but feel much butter on the diet.

Hope this helps, and good luck!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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