Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches


texas

Recommended Posts

texas Apprentice

Do anyones experience headaches even with being gluten free? I also gave up dairy and know I haven't been glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mariela Newbie
Do anyones experience headaches even with being gluten free? I also gave up dairy and know I haven't been glutened.

Hi Texas!

Three years ago I was eating gluten without knowing it and I had vertigo attacks, migraines and general weakness. The neurologist said that I had some "Partial Convulsive Syndrome", nothing conclusive, and did not care about the fact that I am Celiac.

On my own I checked everything I ate and found gluten in Dannon Yogurt, which I had almost every day. Now, three years later, I do not have all of those balance problems but I still get bad headaches about twice a month. Only migraine pain relievers help, but sometimes they can only lessen the pain. They are pretty bad. I eat dairy, soy, anything else, I do not think those affect me, but I could not find a link between a certain food and my headaches. And I know I am gluten-free, but I the headaches always come back.

Have you noticed anything that you may eat before having an episode? They say that cheese and chocolate may trigger them, although I do not think that I have eaten them before my episodes. May be you have some kind of migraine. Why did you give up dairy?

Good luck!

veggienft Rookie
.......On my own I checked everything I ate and found gluten in Dannon Yogurt, which I had almost every day.......

According to Dannon:

Open Original Shared Link

------------------------------------------------------------------

.....DANNON yogurt products are not

formulated to contain gluten, but they cannot be labeled as

gluten safe because DANNON

LuvMoosic4life Collaborator

I have been getting more headaces since being gluten free...maybe its withdrawl/body re-adjustment??

But I have also had a few other problems as a result of going gluten-free so the headaces could be related to that too, its so hard to pinpoint exactly where problems come from....

Shelly D. Newbie

Your profile and your name don't really specify a gender so I'll pass on my migraine problems and what I do to help. Some of my migraines are because I was in a carwreck about 25 years ago (that started them) and the only relief I've found is regular Chiropractic adjustments. Another reason I get migraines is related to hormomal shifts during my monthly cycle. Estrogen can be a bear sometimes! Hormone levels peak and drop 2x per month (ovulation and menses). I also get headaches when the weather changes quickly. I use Maxalt-mlt for these headaches with some success. The best thing you can do is to keep a log of signs and symptoms for a few months to see what kind of a pattern develops.

darlindeb25 Collaborator

Just a note about Dannon yogurt--Dannon can't be trusted. They have been notorious over the years for being unsafe and the only yogurts they will list as safe are plain yogurts...most of us do not want plain. Besides the fact, they do not dedicate their lines.

Now, for the headaches. There are many reasons for headaches, outside of celiac disease. My neurologist just diagnosed me with sleep apnea, which I had never thought about, and yes, headache is a major symptom. I also am getting physical therapy on my neck and shoulder, the muscles are all very tight, another cause for headaches. Work stress is a very big cause of headaches, stress of any kind, for that matter. Other allergies too.

ShayFL Enthusiast

I have suffered from migraines for about 7 years. I never had them until I was in a car accident. But I only got them right around ovulation and menses. So I dont know if the car accident was an initial trigger with hormones taking over.

I went gluten-free the beginning of April this year and have not had a single migraine so far. And I was at 2 a month. So this is great news for me!!

I also have vertigo/balance problems. And neuropathy in my hands and feet. The neuropathy is improving. And the vertigo was also becoming less pronounced.

However, I glutened myself on Friday night and have spent the entire weekend praying to God, Alah, Buddha and all the saints to make the room stop spinning. I am back to normal today.

Now back to the headaches. I did remove gluten, but at the same time started taking 400 mg of vitamin B2 and 200 mg of CoQ10 (both of which have been proven in trials to reduce migraine attacks and intensity). So mine was a three pronged approach and I cannot say for certain which one did the most to help.

But after being glutened and seeing how it affects me neurologically, I know it def. played a part in getting rid of the headaches.

I am in the process of lowering the B2 and CoQ to see what happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marie06 Rookie

Hello, I think you are suffering with migraines. If so have you ruled out them being caused by MSG (Mono sodium glutamate)? I get migraines from MSG, NitrAtes (not nitrites) and sudafed. Keeping them out of my diet keeps me migraine free. I have just recently been gluten and casein free and I am HOPING that it will eventually rid me of the tension headache that I have had since early 1999 (24/7). Good luck!

PS MSG in all its forms (that *I* know of):

* Food Additives that ALWAYS contain MSG *

Monosodium Glutamate

Hydrolyzed Vegetable Protein

Hydrolyzed Protein

Hydrolyzed Plant Protein

Plant Protein Extract

Sodium Caseinate

Calcium Caseinate

Yeast Extract

Textured Protein (Including TVP)

Autolyzed Yeast

Hydrolyzed Oat Flour

Corn Oil

From Autism book:E621, sodium hydrogen l-glutamate, flavour enhancer, aji-no-moto

* Food Additives That FREQUENTLY Contain MSG *

Malt Extract

Malt Flavoring

Bouillon

Broth

Stock

Flavoring

Natural Flavors/Flavoring

Natural Beef Or Chicken Flavoring

Seasoning

Spices

* Food Additives That MAY Contain MSG Or Excitotoxins *

Carrageenan

Enzymes

Soy Protein Concentrate

Soy Protein Isolate

Whey Protein Concentrate

Also: Protease Enzymes of various sources can release excitotoxin amino

acids from food proteins.

veggienft Rookie
Dannon can't be trusted.

You did not source or document this statement. Please do so.

Has Dannon lied about their yogurt?

..

darlindeb25 Collaborator
You did not source or document this statement. Please do so.

Has Dannon lied about their yogurt?

Years of experience, that's my source. We used to call Dannon, ask gluten free status, they would never answer. Then they told us (my sister and I) they do not use dedicated lines--they told us, THEY are the source. Dannon states they will not say gluten free, and this is from your own post:

.....DANNON yogurt products are not

formulated to contain gluten, but they cannot be labeled as

gluten safe because DANNON

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.