Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Relocation To Germany


AMQmom

Recommended Posts

AMQmom Explorer

My husband is considering a 2-3 year position in Germany. We would be relocating from the United States. Both of our daughters (ages 3 and 7) are celiac and one has severe food allergies in addition to celiac. Are any of you able to let us know how easy or difficult it is to live with food allergies in Germany? I am concerned about their well being. Also, the 3 year old suffers from speech delay due to celiac (she is gluten free and improving, but quite behind in speech still). Are there speech services in Germany like they have in the U.S.? Many thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
My husband is considering a 2-3 year position in Germany. We would be relocating from the United States. Both of our daughters (ages 3 and 7) are celiac and one has severe food allergies in addition to celiac. Are any of you able to let us know how easy or difficult it is to live with food allergies in Germany? I am concerned about their well being. Also, the 3 year old suffers from speech delay due to celiac (she is gluten free and improving, but quite behind in speech still). Are there speech services in Germany like they have in the U.S.? Many thanks in advance!

I don't know for sure but I have a friend whose grandchildren are in Germany for the same reason, so I will ask her the next time I see her. Celiac runs in her family, so she is aware of the needs.

I do know that here in the USA parents have the option of homeschooling their kids if that seems to be the best option for whatever reason, including constant exposure to gluten and other allergens from what other people bring into the school. That is not an option in Germany. The state will actually remove your child from your custody if you dig your heals in. Some families flee to other European countries. That isn't always enough. One family has moved to Canada and another has moved to *Iran* :o of all places, all in the name of the freedom to educate their own kids as they see fit.

If you don't home school your kids and have no intention of doing so, that isn't an issue, but I thought I'd give you a heads up, just in case.

  • 3 weeks later...
theceliachusband Rookie

OHNE GLUTEN.

ZOELIKALIE

Those are the two words to translate gluten free and celiacs disease I think.

For research purposes (my wife is opening a gluten-free bakery & pastry shop), I surfed around the net in Germany, to see how they do it.

There are some options available and I am sure many more I did not find.

Schaer, widely available in drug marts, like the DM chain. Soso stuff, we ate some on our last trip to Austria.

Hammermuehle, a corn producer, they have a shop near Frankfurt I think.

But the best I could find while surfing was an actual Baeckermeister, Thomas Kaufman, who dedicated his craft to gluten free bread. We exchanged some emails since and he is really into his bakery, which when it comes to gluten-free is so important. Passion for quality is it. He ships via his website. Here is his website. Under "links" you can find a whole list of celiac related websites in Germany.

Open Original Shared Link

Just so you know, Italy is the the most advanced country when it comes to Celiacs screening. Every child before school age gets tested. Italy is not far from Germany at all and you can find tons and tons of gluten-free products there as well.

Heidi13 Newbie

Hi!

I recommend you to get in contact with the "Deutsche Z

theceliachusband Rookie

Here is a super blog post for Germany and Austria for you:

Open Original Shared Link

  • 2 months later...
GermanMia Newbie

Hi,

I'm a German celiac and live in the north-western aerea of Germany, at the dutch border. If you have any special questions, you're welcome :)

Mia

  • 2 weeks later...
kwalsh Newbie
Hi,

I'm a German celiac and live in the north-western aerea of Germany, at the dutch border. If you have any special questions, you're welcome :)

Mia

Hi Mia,

I have never blogged before but am getting ready to visit Germany at the end of the year for 2 weeks. I came across this while doing as much research as possible and I am very excited you offered to help. I am going with my boyfriend and he has a friend who lives in Germany. I do not know where we will be staying but would love to get some suggestions from you for eating out. Oh, and what chocolate we can eat. I am a chocoholic. LOL I will certainly find out and get back to you, if you do not mind. Thank you

Kim in AZ (USA)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GermanMia Newbie

Hi Kim,

if you can tell me exactly where you will go I'll be able to find out about eating out there. How sensitive are you to gluten? I know that some celiacs can tolerate chocolate which says "may contain traces of gluten" but some even get sick with those traces. There is chocolate which is declared to be gluten free, though. Do you prefer dark chocolate or milk chocolate?

AMQmom Explorer

Thank you all for your responses! The move did not go through, but I truly appreciate all of your support!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,488
    • Most Online (within 30 mins)
      7,748

    MimiD
    Newest Member
    MimiD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K.   Vitamin A toxicity does not cause Celiac disease.  Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation.  Fish contains thiaminases, chemical compounds that destroy thiamine, Vitamin B 1, making the thiamine unusable.  Excessive intake of foods containing thiaminases can precipitate low thiamine.   Low thiamine can also be a result of bacterial or yeast infections.  A high carbohydrate diet encourages Candida and bacterial infections.  High carbohydrate diets promote SIBO and Candida because they feed on the excess carbohydrates and suppress the beneficial bacteria.  Other types of bacteria can take advantage of this and set up housekeeping outside the gastrointestinal tract, including bacterial vaginosis. Thiamine Vitamin B 1 can alter the microbiome.  Thiamine has been shown to suppress Candida, SIBO, and other bacterial and viral infections, and favor the growth of beneficial bacteria.  My SIBO cleared once I supplemented with Benfotiamine, a form of thiamine that has been shown to promote intestinal healing, and a B Complex.  Thiamine works in concert with the other B vitamins and magnesium. Thiamine helps to lower histamine levels by calming mast cells that release histamine at the slightest provocation.   Following the Autoimmune Protocol diet also helped immensely in getting my digestive system calmed and able to tolerate more foods. Have you discussed with your doctor and dietician supplementing essential B vitamins while healing?  What is your Vitamin D level?  Vitamin D helps calm the immune system.  
    • cristiana
      Update - my Active B12 is 36.  Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal.   I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great, because from what I understand, in the UK our normal levels are set low and 'lower normal' levels would be considered a deficiency in such countries as Germany and Japan. Regarding B12 levels, it doesn't look as if my levels are low enough to be offered B12 injections.  That being the case, I remember reading that sublingual tablets can still be very effective but one particular type is better than another - I can't remember which type.  Can anyone help?
    • cristiana
      Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test?  I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests.  My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals seem to be taking any interest in it although this is  my fault as last time I saw my Consultant I failed to mention my symptoms - I had so many other questions to ask him.  Anyway - here are the details for an A test: https://www.medichecks.com/products/vitamin-a-retinol-blood-test?gad_source=1&gad_campaignid=11996732820&gbraid=0AAAAAD9XHFyeAOrxlryOpWS_jXwZ8PCc1&gclid=EAIaIQobChMIyrjj2Pb2jwMVnJJQBh22CTkVEAAYASAAEgIGDPD_BwE
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      This is a very complex and difficult situation, and your intuition about a potential link to celiac disease is medically plausible. While Guillain-Barré Syndrome (GBS) is often triggered by infections, it can also be precipitated by other immune system events, including a significant gluten exposure in a person with celiac disease. The timeline you describe—neurological symptoms appearing after the GI symptoms subsided—is classic for post-infectious (or in this case, post-exposure) GBS. Furthermore, there is a recognized, though rare, neurological condition directly linked to celiac disease called Gluten Ataxia, which affects coordination and can cause gait problems. However, the rapid onset of paralysis and cranial nerve involvement you experienced is more characteristic of GBS than typical gluten ataxia. It's also important to know that a negative EMG early in the course of GBS does not rule it out, and "Functional Neurological Disorder" (FND) is not purely psychiatric; it is a real and complex disorder where there is a problem with the functioning of the nervous system, not its structure, and it can be triggered by physical illness or stress. The most critical step is to continue working closely with your neurologists. You should absolutely bring up your celiac history and your theory, as it is a relevant piece of the diagnostic puzzle. They may consider specific antibody tests related to gluten neuropathy or ataxia to help differentiate the cause. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.