Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Retesting For Hashimoto's


Di-gfree

Recommended Posts

Di-gfree Apprentice

I'm finally through my first week being on dessicated Thyroid (similar to Armour in U.S.) - I'm taking them sublingually to bypass my digestion. In 5 weeks, I'll be having my blood tested to check my levels to see where I go with the medication.

1. I'm on 30 mgs - should I stick with that until my blood work? I've heard not to stay too low for too long... but I'm not sure what to do.

2. Exactly what do I get checked? My doctor has t4, free t3, TSH, and CBC checked off on my blood lab requisition. Anything else I should get checked? Do I keep checking my antibodies?

I hope anyone who's experienced this can help me - thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

You generally should up your dose every 2 weeks in the beginning by small increments. I did 1/4 grain at a time (15 mg.). When I got to around 120 mg, the increases got longer apart. I am now up to 165 mg. It has taken me a year to get there....slowly. I had periods of being symptom free, but then they would come back. That is when I upped. My doctor let's me self dose.

I tested often in the beginning FREE T3, FREE T4, TSH and antibodies. But I have not tested in about 6 months now. My doc goes by symptoms and not labs.

georgie Enthusiast

I would be asking for a check on Antibodies too - and making sure the T4 test is Free T4. Does the CBC include a B12 and Iron test ?

30mg of thyroid is a very small amount. How do you feel ? If you still feel Hypo then you will probably need more. An average dose is 120mg or more. If you increase before your blood work make sure you tell the Dr - so he knows what dose you have been taking. And remember to not take any Thyroid meds on the day of the test.

Di-gfree Apprentice

Thank you, both. I'm writing down what to ask for in the tests, and will bring it to my doctor beforehand. Shay, I would like to self-dose myself, too. The dessicated thyroid tablets I'm taking (like I said, similar to Armour in the U.S.), come in 30mg tabs. I'm thinking of adding half a tablet (15 mgs, like you said) each time I up it. I'm hoping my doctor will go by symptoms and not numbers, too. I'm sensing he's number-oriented, though; but he's very open to my opinion, and goes along with my wishes, usually.

Georgie, I'll ask for the antibodies, too. No, the CBC doesn't include B12 and Ferritin. I just had those tested with the thyroid panel that lead to my Hashimoto diagnosis. Do you think I should be checking that each time, too? My B12 was low, but I've reversed that with sublingual B12; and my Ferritin is chronically low - it was 21 last time (up from the original zero (10 (!) years ago - it's taken 10 years! lol, though). Do you guys think Ferritin levels can be improved with the thyroid hormone treatment?

I know the 30mgs is a small amount, but it's my starting dose, and I've only been on it a week. Do you think we should start with even higher amounts? My pharmacist (after me asking him about increasing the dose) actually recommended I stay on 30 mgs for 6 weeks until I'm tested. This is contrary to everything I've been reading here and on the internet. I think I should add 15 mgs at 2 weeks?

How do I feel? Hmm... my energy level is low. I can't say I'm feeling fantastic. I wonder, though, I've been feeling badly for *so* many years, will I even recognize if I don't feel this way? If that makes sense. So, no, I can't say I'm feeling all that great. So, I know I need more. It's just when? And I was already thinking 15mg steps each time. I have to read stopthethryoidmadness again - I keep forgetting what to do when it comes to increasing the dose! (I blame it on my state of mind in correlation w/the Hashimoto's).

And thanks for the reminder to *not* take medication on the day of test.

georgie Enthusiast
I know the 30mgs is a small amount, but it's my starting dose, and I've only been on it a week. Do you think we should start with even higher amounts? My pharmacist (after me asking him about increasing the dose) actually recommended I stay on 30 mgs for 6 weeks until I'm tested. This is contrary to everything I've been reading here and on the internet. I think I should add 15 mgs at 2 weeks?

How do I feel? Hmm... my energy level is low. I can't say I'm feeling fantastic. I wonder, though, I've been feeling badly for *so* many years, will I even recognize if I don't feel this way? If that makes sense. So, no, I can't say I'm feeling all that great. So, I know I need more. It's just when? And I was already thinking 15mg steps each time. I have to read stopthethryoidmadness again - I keep forgetting what to do when it comes to increasing the dose! (I blame it on my state of mind in correlation w/the Hashimoto's).

Well....it sound like a raise is needed to me. 120mg is a fairly average dose ( maybe higher) and if you do the sums you will see it will take forever to get there if you only raise by 15mg every 6 weeks. Read sttm again but I think they suggest a faster increase than that - based on how Armour used to be used when it was the only medicine for HypoThyroid. The good old days ;) As you raise - split the dose over the day into 3 seperate doses... that helps. Keep a diary of symptoms for your Dr. Record everything and take a family member with you if possible to back up your claims.....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.