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How Long Does It Take To React To Gluten?

CCR

By CCR
in Coping with Celiac Disease

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CCR Newbie
CCR
Posted

I had the weirdest experience yesterday. I have never had a reaction to gluten but was diagnosed celiac by biopsy, so I have been gluten free for about a month. Yesterday, I ate a gluten-free breakfast and a gluten-free lunch (both in the safety of my home and my husband ate the same food and was fine...he's not celiac), then made gluten-free cookies for a barbecue. Got to the barbecue and spent the next hour

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BallardWA Rookie
BallardWA
Posted

Hi Carin, and welcome.

I'm sure there will be many more experienced replies to your post, as I am newly diagnosed. It generally takes me 12-24 hours to experience a reaction to gluten. Yes, it could have been your cookie sheets - I now line mine with foil. If I have a major glutening, like say from a clueless restaurant, it can take me 7-10 days to recover.

Good luck on your journey to health, I'm feeling better every day.

Best,

Karen

utahlaura Apprentice
utahlaura
Posted

For some reason right now it takes me almost exactly 20 minutes to react to gluten.

loco-ladi Contributor
loco-ladi
Posted

With me its anywhere from 15- 30 minutes before "I know" then spend the next week wishing I were dead.

celiacsista Newbie
celiacsista
Posted

For me I know in about and hour to two hours. Then look out! Projectile vomit style.

jerseyangel Proficient
jerseyangel
Posted

I know after about 2-3 hours. Some react right away and others will not react for 24 hours or more.

JayinUT Newbie
JayinUT
Posted
I know after about 2-3 hours. Some react right away and others will not react for 24 hours or more.

I'm one that reacts right away, within 20 to 30 minutes. Then when I'm done in the bathroom I need to lay down for some time. I find a nap has always helped.

Being new to this (3 weeks in) I've noticed this week that I've had more issues with certain foods that are gluten free (tomatoes are the big one). Is it possible I just don't have a tolerance for them and thus I suffer since not enough time has gone by to heal the villa?

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loco-ladi Contributor
loco-ladi
Posted
I'm one that reacts right away, within 20 to 30 minutes. Then when I'm done in the bathroom I need to lay down for some time. I find a nap has always helped.

Being new to this (3 weeks in) I've noticed this week that I've had more issues with certain foods that are gluten free (tomatoes are the big one). Is it possible I just don't have a tolerance for them and thus I suffer since not enough time has gone by to heal the villa?

My officially diagnosed cousin has issues with tomatoes I so far do not but it was one other thing I was very cautious about at the begining and still use sparingly now, my cousin doesn't touch tomatoes.

gfp Enthusiast
gfp
Posted

I don't mean to undercut people BUT...

In the interests of you being well....

How long people take to 'react' is based on at least two things...

1) Identifying the reaction ...

This sounds simple, it's not... it takes experience... just like riding a bike.

There really is a feeling.... BUT it takes experience to get used to it.. not being smart..not being a MD etc. it's just a feeling... and it is pretty distinctive and it's identification is largely based on experience.

2) Different people take different times to react anyway... but ... the actual identification of the 'feeling' generally gets shorter and shorter as you're experience increases BUT this feeling is often not in the gut (in the literal sense).

The longer answer : There is more to celiac disease than the 'inconvenience' of diarrhea .... you should satisfy yourself of this and search this forum for brain fog.... peripheral neuropathy.... sometimes, some of us will get a reaction not in the gut if we consume a tiny tiny amount or perhaps preceding the reaction in the gut.

Most people get more sensitive as they are gluten-free.

The better you are doing gluten-free .. well the more sensitive but this is an indication you are doing well!

Remember the damage is not the D... its lots of far more serious complications...

Imagine a 60 a day smoker... anyone else would be seriously ill smoking 60 cigarettes in a day.... or a seasoned drinker drinking 2 bottles of Vodka at breakfast ... just because we feel 'normal' doesn't mean it's not doing harm.

If a 60 a day smoker gives up for a certain time and smoked 60 cigarettes they would vomit way before the 60 ..... long enojgh and it would be 5.... etc.

Gluten is like this, the body gets used to dealing with the toxin.... even though it is doing damage we feel 'normal'... BUT just like the 60 a day smoker... normal isn't really normal...

CCR Newbie
CCR
Posted
  • Author

I have found everyone's contributions to this topic to be very helpful. Thank you for sharing your personal experiences. I am figuring out how I react as I go along. Now that I have had (I think) my first reaction to gluten, I am feeling very gun shy about any ingredient I can't identify. I'm sure I will gain confidence as I go on from here.

It's nice to know that having that reaction could mean I'm healing and doing better! I am looking forward to having bloodwork in about 8 weeks and seeing if my anemia is improving.

In the meantime, I rely so much on the kindness of strangers! Thanks!

A-Swiss Rookie
A-Swiss
Posted

Though it seems you got a good mix of answers, my take is a little different. I was diagnosed 3 months ago and went 100% gluten free right away (didn't wait, just jumped in - the pain was way too strong). When I get glutened, it usually takes about 6 hours and I feel heavy pressure in my gut and needle like pain for about 3-4 days. I think we all have it differently. Frankly, I have been stabbed twice and didn't go the hostipital on the second one - so I really don't get bothered by pain. However, I notice the gluten reaction and I would rather take a knife!

ChristinaKs Newbie
ChristinaKs
Posted
I'm one that reacts right away, within 20 to 30 minutes. Then when I'm done in the bathroom I need to lay down for some time. I find a nap has always helped.

Being new to this (3 weeks in) I've noticed this week that I've had more issues with certain foods that are gluten free (tomatoes are the big one). Is it possible I just don't have a tolerance for them and thus I suffer since not enough time has gone by to heal the villa?

You know, I'm new to this too. I haven't even been diagnosed, but I noticed I felt so much better with no gluten. I'm about three weeks in, I've had a few mishaps. My reactions can be anywhere from 20-30 minutes to 24 hours. I've noticed I have had problems with things with seeds since I've cut the gluten out. And I was wondering the same thing about the villi not having enough time to heal.

Christina

zip2play Apprentice
zip2play
Posted

Mine depends on what it is. When I inhale raw flour or such, it is almost immediate. I wear a surgical mask when I am baking for my kids functions and such. But if it is a more cooked form, it can take 24 - 48 hours.

Hope things improve for you soon!

Monica

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    • Jane02
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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