Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To celiac disease

dish23

By dish23
in Coping with Celiac Disease

Recommended Posts

dish23 Newbie
dish23
Posted

Hi all,

My mom just got diagnosed with celiac disease and we are both trying to figure this out together. Unfortunately, she is not PC savvy so I have joined some of these discussion groups and so far they are very very helpful.

Just wondering about the following products. Can we buy regular brand names found in local supermarkets, or do we have to buy from Whole Foods or Trader Joes?

Cooking oil

Cooking spray

Peanut Butter (looked at ingredients from Whole Foods 365 brand, and regular skippy and it seems the same)

Spices

Dairy (is all dairy ok - milk, eggs, cheese, parm cheese etc.....)

I also read somewhere (possibly on this site) that all Boars Head cold cuts are gluten-free. Is this true? If so my mom will be in heaven!!! LOL

Thanks in advance for all advice and resonses.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted
Hi all,

My mom just got diagnosed with celiac disease and we are both trying to figure this out together. Unfortunately, she is not PC savvy so I have joined some of these discussion groups and so far they are very very helpful.

Just wondering about the following products. Can we buy regular brand names found in local supermarkets, or do we have to buy from Whole Foods or Trader Joes?

Cooking oil

Cooking spray

Peanut Butter (looked at ingredients from Whole Foods 365 brand, and regular skippy and it seems the same)

Spices

Dairy (is all dairy ok - milk, eggs, cheese, parm cheese etc.....)

I also read somewhere (possibly on this site) that all Boars Head cold cuts are gluten-free. Is this true? If so my mom will be in heaven!!! LOL

Thanks in advance for all advice and resonses.

There are many mainstream products that are gluten-free. Wheat is required by law to be listed as "wheat" in either the ingredient list or the al;ergen statement. Barley is not required to be listed as "barley" so it is important to learn the names of ingredients that could be made from it. All mainstream oats are considered to be contaminated with wheat so we have to buy certified gluten-free oats. But some react to oats so it is advisable to wait until you've healed and introduce them slowly. They will say gluten-free the package. Here is a list of forbidden ingredients. https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

Kraft is one of a few companies that voluntarily discloses all gluten so if you don't see the words "wheat" "barley" or oats or rye, it's safe. Kraft has many brands under it's umbrella so look for their name on the back of the label too. Eggs are not dairy.

All pure plain cooking oil is safe.

National celiac disease organizations like The Celiac Sprue Association and Gluten Intolerance Group are good source of info. and have their own websites.

Don't be afraid to call the 800 numbers on the labels and ask if something is gluten-free. Many companies are very helpful. You can also access info on their websites. Click on FAQ's or Contact Us to find gluten-free info. or e-mail them if you don't find the info.

dbmamaz Explorer
dbmamaz
Posted

Yes, boars head meats are safe. Dairy is fine if she can handle it. Many celiacs have trouble digesting dairy until they start to heal.

loco-ladi Contributor
loco-ladi
Posted

beware of dairy for starters and start out slow and simple then add from there....

fresh veggies and meat.....

go thru the cupboards at home and do a "label day" get out the list of "suspect" ingredients and start tossing any that have them, yeah sometimes its hard but I ended up just taking my whole cupboard of spices and giving them to a friend and went out and bought all new!

Clean out the old wooden utensils (my much loved rolling pin got me once) and plastic dishes and dishware, cast iron (I cried over these) stoneware can harbor ill tummy woes as well... after all thats done

go on a shopping spree! your cupboards are bare, lol

start researching other brands and fill in all those blank holes!

after a while your restocked and healthy too!

redgf Rookie
redgf
Posted

Just adding my two cents here, but I have always had the best luck going on my local grocery store's website, be it Publix or Wegmans or Winn Dixie, and if I don't find a gluten free listing of their store brand products I email them and ask for one.... and I get a new one every six months, just to be sure. That has cut my grocery bills in half - really! Also a warning - Boar's Head is gluten free, but beware of the deli hand that doesn't wipe the previous scraps off the slicer before slicing your gluten-free meat... residual gluten got me twice before I became "that customer" who always asks for the slicer to be wiped clean before slicing my meat!

Good luck!

curlyfries Contributor
curlyfries
Posted

Skippy peanut butter is fine. McCormick seasonings will clearly label any gluten ingredients. This will also be helpful:

Open Original Shared Link

dish23 Newbie
dish23
Posted
  • Author
Just adding my two cents here, but I have always had the best luck going on my local grocery store's website, be it Publix or Wegmans or Winn Dixie, and if I don't find a gluten free listing of their store brand products I email them and ask for one.... and I get a new one every six months, just to be sure. That has cut my grocery bills in half - really! Also a warning - Boar's Head is gluten free, but beware of the deli hand that doesn't wipe the previous scraps off the slicer before slicing your gluten-free meat... residual gluten got me twice before I became "that customer" who always asks for the slicer to be wiped clean before slicing my meat!

Good luck!

I have Pathmark, Waldbaums and Stop and Shop by me. Not one of them has a gluten free aisle. They tell me gluten-free can be found in the organic aisle.

Wow, I never thought of that about the slicer needing to be wiped! Thanks for the heads up.

Sheryl, West Hempstead NY

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to xxnonamexx's topic in Related Issues & Disorders
      1

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      Not sure what you mean by "soy being like gluten". Soy does not cause a celiac reaction. However, soy is one of the foods that many celiacs don't tolerate well for other reasons. Eggs, corn and dairy are also on that list of foods that many of those with celiac disease seem to be sensitive to. But that doesn't mean that all celiacs are sensitive to any one...
    2. Scott Adams
      0

      Espresso Sea-Salt Brownies (Gluten-Free)

    3. Rejoicephd
      - Rejoicephd posted a topic in Related Issues & Disorders
      0

      Basic metabolic panel results - more flags

      Hey all Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium - nearly too low potassium - nearly too low chloride - high CO2 - low anion gap This is now after being nearly gluten-free for over a year (although I admit I make...
    4. xxnonamexx
      - xxnonamexx posted a topic in Related Issues & Disorders
      1

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang...
    5. knitty kitty
      - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold. Our bodies have difficulty absorbing and utilizing it. Only 30% is absorbed and less can be utilized. There's some question as to how well multivitamins...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,318
    • Most Online (within 30 mins)
      7,748
    acurn18
    Newest Member
    acurn18
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      By trents · Posted

      Not sure what you mean by "soy being like gluten". Soy does not cause a celiac reaction. However, soy is one of the foods that many celiacs don't tolerate well for other reasons. Eggs, corn and dairy are also on that list of foods that many of those with celiac disease seem to be sensitive to. But that doesn't mean that all celiacs are sensitive to any one of them or all of them. It just means it's common. You may not have a problem with soy at all. Celiac disease is not a food allergy. It is an autoimmune response to the ingestion of gluten that creates inflammation in the small bowel lining that, over time, damages that lining.
    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
    • xxnonamexx
      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      By xxnonamexx · Posted

      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang of it and more aware you realize how many places are gluten-free and contamination free practices etc. One thing I have read is how soy is like gluten. How would one know if soy affects you? I have eaten gluten free hershey reeses that say gluten free etc some other snacks say gluten free but contain soy and I dont get sick or soy yogurt no issues. Is there adifference in soys?
    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.