Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Plain Happy, With A Few Questions


raen

Recommended Posts

raen Apprentice

alot of people seem to feel burdened by the gluten-free diet and obsessive steps it takes to "protect" your tummy.. but ive never been happier. im 18 and i have this gluten allergy really bad - i cnat even kiss my boyfriend closed-mouthed after hes had a sub or i get sick for 3 days.

for as far back as i can remember - and im told even as a baby - ive felt sick more often than okay..

at 4 i started complaining of joint pains all over and was labeled a hypochondriac (turned out to be hypermobility joint something - authritus). at 7 i was diagnosed as "stress-induced stomach pains and nausea" because my "parents divorced", at 9 i was diagnosed with 4 sleep disorders and some obscure disorder where soft spots on your lungs make it hurt to breath sometimes (turned out to be hyperventilation syndrome),was forced to drop out of highschool at age 15 due to chronic panic attacks between 15 and 16 i felt so sick i thought i was going to die (started as an ear infection then was labeled "sick from stress" again), at 16 i started an all organic diet, at age 17 i finally got on an all organic diet, at age 17 i monitored what i ate in order to figure out if i had food allergies/intolerances (i had many), all of my life ive had chronic tonsillitis, and IGA deficiency, at 18 i tried the ever-awful "candida diet" which only served to make me Faint on day 9. being diagnosed as celiac and not hypochondriac or deathly incurable ill was nothing short of cry-worthy after a life like that.

a message of tough-love for anyone stupid enough to be sad they are on a gluten-free diet .. : hey sucker, at least you know what makes you sick.

however, i have formed a very sensitive stomach and read it wont start acting "normal" until its fully healed which will likely take a year.

so is it okay to drink low acid coffee even if it upsets my stomach mildly, or will that lead to further damage? (regular coffee bothers my stomach all day - low acid organic for only 15 minutes, just between my stomach and small intestine, a dull "stretching" pain rather than anything dramatic.)

has coffee upset anyone else's stomach? how long did it last and what did you do?

im fully grown at 5'1'' and 86lbs, but now that im on the gluten-free diet is it likely i will grow and be tall like the rest of my family? i think im actually gaining a little weight, maybe up to 90lbs now!

i wear contacts, reeeally high proscription, could being gluten-free improve that too? and my seasonal allergies?

also, any advice on how to keep my boyfriend (of almost 7 years) from worrying about me while i am still healing? every little problem plants this worried helpless look on his face like he wants to rush me to a doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

You are right in saying that finally being diagnosed with celiac disease is a big relief after being ill so long! I was in the same boat, but didn't figure it out until I was 52. I was labeled a hypochondriac for most of my life.

As for the coffee, you really should avoid anything right now that upsets your stomach. Since coffee will do that, you need to stop drinking it for a few months. I am sure it will be fine within three to six months to have it again.

It would be best if you could just eat easy to digest foods for a while, like cooked vegetables, chicken etc., that are naturally gluten-free. All those replacement gluten-free foods are hard on your stomach and are best avoided for the first little while.

Also, it is likely that you can't digest dairy at this point, and it would be best if you would eliminate all dairy for a few months as well, to help with healing. The same goes for soy.

Jestgar Rising Star

You might get a little taller, it just depends on here you are in your own personal growth schedule. If have some "growth spurts" left, it could happen.

Ursa Major Collaborator
You might get a little taller, it just depends on here you are in your own personal growth schedule. If have some "growth spurts" left, it could happen.

I agree, I actually grew another inch or so when I was twenty! Two of my girls did the same thing. So, it is obviously possible.

raen Apprentice

ive never liked cooked vegetables, unlike most kids/teens i was always very close to vegan, and love raw fruits and vegetables to be a dominant part of my diet. why would raw vegetables be bad?

my mom is cherokee so i've been allergic to milk sense birth, ive always been strictly soy. considering that, would plain silk brand soymilk still be a problem? i cant drink the vanilla, buti couldnt understand why - is it hard to digest?

i notice that all acidic foods, even oranges, seem to upset my tummy though. i stopped eating oranges last week. apple cider vinegar is a big exception to that, and organic teas seem fine but i dont think they're acidic..? what about onion and garlic? potatoes?

i will definitely cut off on the corn, rice, and etc products. i knew rice was bothering me, and thought corn may be too, so i wont go near them for a few months (though tapioca bread seems fine, i may eat a piece with breakfast sometimes)

  • 2 weeks later...
CeliacAlli Apprentice
alot of people seem to feel burdened by the gluten-free diet and obsessive steps it takes to "protect" your tummy.. but ive never been happier. im 18 and i have this gluten allergy really bad - i cnat even kiss my boyfriend closed-mouthed after hes had a sub or i get sick for 3 days.

for as far back as i can remember - and im told even as a baby - ive felt sick more often than okay..

at 4 i started complaining of joint pains all over and was labeled a hypochondriac (turned out to be hypermobility joint something - authritus). at 7 i was diagnosed as "stress-induced stomach pains and nausea" because my "parents divorced", at 9 i was diagnosed with 4 sleep disorders and some obscure disorder where soft spots on your lungs make it hurt to breath sometimes (turned out to be hyperventilation syndrome),was forced to drop out of highschool at age 15 due to chronic panic attacks between 15 and 16 i felt so sick i thought i was going to die (started as an ear infection then was labeled "sick from stress" again), at 16 i started an all organic diet, at age 17 i finally got on an all organic diet, at age 17 i monitored what i ate in order to figure out if i had food allergies/intolerances (i had many), all of my life ive had chronic tonsillitis, and IGA deficiency, at 18 i tried the ever-awful "candida diet" which only served to make me Faint on day 9. being diagnosed as celiac and not hypochondriac or deathly incurable ill was nothing short of cry-worthy after a life like that.

a message of tough-love for anyone stupid enough to be sad they are on a gluten-free diet .. : hey sucker, at least you know what makes you sick.

I don't really know life any different because I was diagnosed at 11 months, so it doesn't bother me to be gluten-free at all, but I certainly don't like getting glutened!!!

however, i have formed a very sensitive stomach and read it wont start acting "normal" until its fully healed which will likely take a year.

so is it okay to drink low acid coffee even if it upsets my stomach mildly, or will that lead to further damage? (regular coffee bothers my stomach all day - low acid organic for only 15 minutes, just between my stomach and small intestine, a dull "stretching" pain rather than anything dramatic.)

has coffee upset anyone else's stomach? how long did it last and what did you do?

im fully grown at 5'1'' and 86lbs, but now that im on the gluten-free diet is it likely i will grow and be tall like the rest of my family? i think im actually gaining a little weight, maybe up to 90lbs now!

i wear contacts, reeeally high proscription, could being gluten-free improve that too? and my seasonal allergies?

also, any advice on how to keep my boyfriend (of almost 7 years) from worrying about me while i am still healing? every little problem plants this worried helpless look on his face like he wants to rush me to a doctor.

FaeLD Newbie
im fully grown at 5'1'' and 86lbs, but now that im on the gluten-free diet is it likely i will grow and be tall like the rest of my family? i think im actually gaining a little weight, maybe up to 90lbs now!

When I was about 8 months or so, I was half the weight I was supposed to be because my parents started feeding me things that contained gluten. So while you will not be as tall as you could have been, you might (and will probably) grow taller. Same for weight

has coffee upset anyone else's stomach? how long did it last and what did you do?

Sorry, no.

i wear contacts, reeeally high proscription, could being gluten-free improve that too? and my seasonal allergies?

If poor eye-sight is in the family, then probably not. Same for other allergies. My cousin was diagnosed as a celiac about age 20-ish after it having come out for about 3 months (though it stopped after a few months, since it came out because she was taking drugs, which rehab thankfully fixed). She never had problems with eye-sight or other allergies (external ones such as cats / pollen / etc.) Though she did have an outbreak of acne and a very very weak stomach

I suggest the same as Ursa Major. Avoid eating anything that could make your stomach quesy. Milks and Dairy products mostly, at least until you get back on your feet.

Here's hoping for the best!

why would raw vegetables be bad?

They shouldn't be that bad, but they are still heavier on the stomach than cooked once. Though again, they shouldn't be a problem

would plain silk brand soymilk still be a problem?

Soy milks are more easily digested, and are easier to digest than normal milks, but are still not that easy to digest.

If you can cut back, at least until you feel healthier it would be best. If you feel you cannot stop drinking it, just don't drink too much.

organic teas seem fine but i dont think they're acidic..?

According to which. Some have acids, some don't. I don't drink a lot of tea, but a quick google for tea shows that some don't have acids (Jasmine Tea) while some do (Orange Spice Assam).

onion and garlic? potatoes?

Onions have acids (Part of the reason they make you cry). I don't think garlic / potatoes do

Best case right now is to totally cut off wheats (obviously) and cut off other things that make you feel bad. Go for a case by case basis, since there isn't a common denominator to what is effecting you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    2. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,259
    • Most Online (within 30 mins)
      7,748

    Lindia
    Newest Member
    Lindia
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.