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At The End Of My Rope


rainbowgoddess

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rainbowgoddess Newbie

am 31 years old I have iron and folic acid deficient anemia, along with that I have extreme fatigue to the point I could sleep 15 or more hours continuosly and still feel like I have not slept a wink, with that comes with the loss of sex drive. There are times when I do not have a bowel movement in an entire week and then times when I have several loose in a day. I have had a headache for 1 month it stopped hurting for about 4 hours after the er gave me an IV with Torridol. I have brittle nails and hair .I also have left upper abdominal burning and pain, I have not been able to function normally for about a month and have no idea what to do next. They have completed blood work and so far the only thing that came back was anemia. The er completed a ct scan of my head and they said it was normal, They have prescribed percocet to me for the head ache which is not helping by the way. I am not one of the people who like the feeling of being drugged I would prefer someone find out what is wrong and help fix me then drug me. Does anyone have any idea what this may be? I have not told my dr about the pain because when I went for all of the other symptoms I was not having that pain. My mother told me 2 days ago that her grandmother passed away from leukemia so that has me worried as well. About 6 years ago I had my gallbladder removed so Im almost certain it is nothing to do with that. I believe I suffer from lactose intolerance I have severe gas, stomache pains etc with milk products but still feel nasueas all the time.


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sickchick Community Regular

Sex drive loss, extreme fatigue, constipation... could be Adrenal Fatigue.

Do you have light sensitivity or do you crave salt? Do you have dark circles under your eyes?

lovelove

rainbowgoddess Newbie

Oh My yes I do crave salt and I have dark circles under my eyes! I have been craving salt so much I feel like I could drink and entire container of it.

ohsotired Enthusiast

Wow. As I was reading this, I thought maybe I had written it and forgotten. You sound a whole like me, except for the gall bladder part. That and after my MRI for the head aches for six weeks straight, my doc didn't prescribe me a thing, or even suggest a follow up visit.

I have no real advice, as I'm still going through testing myself to see if we can figure out what the deal is. I just wanted to say that you're not alone, and I wish you much luck and a speedy recovery.

sickchick Community Regular

Kay Sweetie, Dr Collette is going to write you a prescription for Adrenal Fatigue :lol:

morning: 2 RAW ADRENAL caps (I eat Solaray)

1 vitamin C (1000 mg)

1 200 MG Magnesium Chelate

noon: 2 Raw Adrenal Caps

1 vitamin C (1000)

1 200 MG Magnesium Chelate

bedtime: 2 Raw Adrenal Caps

1 vitamin C (1000)

for mild adrenal fatigue it will take about a year to heal

severe 2 years.

For hair|nails take 5000 mcg of Biotin a day (that is from the adrenal fatigue too)

I have this... B)

Make sure your supplements are gluten free!

I get my Solaray @ Health food store you can order online if you do a search.

Be well!

ravenwoodglass Mentor

Are you gluten free yet? Your issues do sound like they could be celiac or gluten related. I would ask the doctor for a celiac panel if he has not done one yet. If he has and it was negative and you don't plan on having an endoscopy then give the diet a try. That should be your first step and if the issues don't resolve after a few months gluten-free then start looking for other causes.

For the fatigue you may not be utilizing B12. I would add a sublingual B12 to your diet on a daily basis and see if that helps.

The advice to supplement your glands is appropriate IF you know for sure that they are deficient or you are under the care of a naturopathic MD who has determined they would be beneficial.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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