Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Newbie In Town


Tsunami

Recommended Posts

Tsunami Newbie

Well...I was just diagnosed w/ celiacs and I'm full of questions. The dr will bring me in next week to discuss things, but in the meantime, I'm lost.

When I read food labels, some will say "natural thickeners." What does that mean? Is this ok to eat? The label says nothing about gluten free, but no wheat or wheat product is listed, so I'm a bit onfused.

Oats....what is up with oats? Are they ok to eat or not. I keep hearing both sides.

Finally, milk...should I give it up, or slow down on consumption. I've already slowed down on my milk intake, to just the occasional bowl of cereal, cream in coffee...yogurt and ice cream...I just feel overwhelmed and I'm not sure what to do until my dr. appt.

Thanks for any help...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

It is very overwhelming in the beginning. I remember having a breakdown in the middle of Walmart because I had no idea what my poor son was going to eat. I would stick to whole foods until you have a chance to speak to your doctor. Meats, fruits, and veggies are gluten free and there are no ingredient lists to stress over. Celiac's are told to stay away from oats due to contamination during processing. While your body is healing, Celiacs are also told to avoid dairy. You can slowly add it back in time. There is a link (and I'm sure someone will post it for you - I'm not that computer savvy) that lists all safe and unsafe ingredients. It's a big list and it will seem impossible to learn it all but it does get easier. Many companies will fully disclose gluten in their products (there is a link to this list too but I know Kraft is one of them) so it pays to learn these company names. My family is very brand loyal due to that. Walmart's Great Value brand states Gluten-Free on their products that are free of gluten. This forum has helped me so much. Danna Korn's book Living Gluten Free for Dummies also helped me. Good luck to you!

Tsunami Newbie

Hi Amyleigh...

Thank you for the advise....That is basically what I've been doing...with those occasional flings w/ dairy. I am going to hit walmart today, take a look around the place....

I was also wondering, just as an off the wall question if you know much about sushi? I imagine the sauces and flavorings are things to avoid, but I was wondering about the wasabi and the sea weed wrap. I already know most soy sauces are out.

Thanks again...and hang in there...

It is very overwhelming in the beginning. I remember having a breakdown in the middle of Walmart because I had no idea what my poor son was going to eat. I would stick to whole foods until you have a chance to speak to your doctor. Meats, fruits, and veggies are gluten free and there are no ingredient lists to stress over. Celiac's are told to stay away from oats due to contamination during processing. While your body is healing, Celiacs are also told to avoid dairy. You can slowly add it back in time. There is a link (and I'm sure someone will post it for you - I'm not that computer savvy) that lists all safe and unsafe ingredients. It's a big list and it will seem impossible to learn it all but it does get easier. Many companies will fully disclose gluten in their products (there is a link to this list too but I know Kraft is one of them) so it pays to learn these company names. My family is very brand loyal due to that. Walmart's Great Value brand states Gluten-Free on their products that are free of gluten. This forum has helped me so much. Danna Korn's book Living Gluten Free for Dummies also helped me. Good luck to you!
missy'smom Collaborator

The lists of safe and undafe ingredients are on this page.

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Remember that wheat is required to be listed by law but barley and is not.

Some nori(seaweed paper) is gluten-free, others are not. The one that they use for sushi is supposed to be unseasoned and gluten-free, but you should ask. The kind that is not gluten-free has soy sauce or teriyaki sauce in it. Fake crab meat is not gluten-free, ask to substitute with fresh real crab meat. The egg can sometimes have a broth or other non-gluten-free ingredients in it so ask about that too. There are many threads about sushi on the forum. Check them out before you go.

Here is the link to the list of companies that will disclose all gluten.

Open Original Shared Link

When in doubt, go without. And don't be afraid to call the 800 numbers. Most are helpful. You can also find info. on the company or product websites. Look in Contact Us or FAQ's.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.