Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itch


njferrero

Recommended Posts

njferrero Newbie

Two-yr-old granddaughter has been gluten free since June 2004, but now has developed huge itchy skin which she scratches bloody. She cries and squirms and is miserable. We have tried Curel, Benadryl cream, Eucerin and Aquafor. Help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

The spots can be miserable. Be patient with her scratching. It is the most intense "itch" you can imagine...like thousands of tiny needles attacking you from underneath your skin.

I have found some things that help us in our family:

If the spots are getting red around them, she probably has a secondary infection. Let the doctor determine that and if so they will probably give her a prescription for something like Clindagel to rub on them.

My preferred choice for itch relief is to take a bubble bath in a Shaklee product called Basic H. It is a very mild household cleaner that can also be used on a baby's bottom to help control diaper rash. I put 1/2 to 1 teaspoon in a tub of warm water and soak. The bubbles don't seem to make my eyes burn, but you might have to warn a two year old to be a little more careful. My spots are even less red when I get out.

After bathing, I have found that keeping the spots moist and away from air helps with the itching. I use a Watkins product called Petrocarb. It is basically a petroleum jelly with camphor and such in it to help with the pain of the itch. I try to keep it on the spots so that they are not exposed to air or allowed to dry up and get itchier as they heal.

If she has been gluten-free for a while and the spots had pretty much gone away, you may want to search for the new gluten source she has come into contact with. Has her soap, shampoo, or clothes detergent changed recently? Has she eaten out at a new place or has a different brand of an item been purchased?

  • 1 month later...
snoopylian Apprentice

I used all of those for my son as well as 8 different prescriptions for eczema and none of them helped. I believe he has DH. There is also a DH online website that may be useful to you: Open Original Shared Link

I know that there are prescription meds for DH but I don't know any of their names. I try and control my sons through diet (no dairy, eggs, gluten), he takes borage oil, digestive enzymes, acidophilus, he only wears 100% cotton (even his bed sheets are 100% cotton). I've read that dust, dust mites, pet dander can contribute to the itchiness. So, we use one of those pleated allergen air filters at home. Currently we use dove sensitive skin at bath time but I am in the process of trying to learn how to make soap rich in hempseed oil and shea butter. Also, against some doctor's opinions, after bath before bed, I slather him down with Vaseline. All of the above have helped my son. Perhaps they may help your grandchild.

Also, I recently read, but have not verified, that people w/DH should be careful of the amount of iodine in their diet. I'm not sure about that, like I said I haven't had a chance to investigate it further.

Good luck. If I think of anything else I will let you know.

  • 3 months later...
lockett Newbie

Dear Snoopy, I learned recently much to my horror that most cotton fabrics sold recently (2 or 3 years) contain genetically engineered cotton to which the body reacts as if it were a synthetic. Only alternative is to buy organic clothes and sheets. I do buy in thrift stores cotton clothes that tend to be old but I can tell right away by my reaction if they contain GE cotton and your son may not be able to tell so try one set of organic and see if it makes a difference--Lockett

I used all of those for my son as well as 8 different prescriptions for eczema and none of them helped.  I believe he has DH.  There is also a DH online website that may be useful to you: Open Original Shared Link 

I know that there are prescription meds for DH but I don't know any of their names.  I try and control my sons through diet (no dairy, eggs, gluten), he takes borage oil, digestive enzymes, acidophilus, he only wears 100% cotton (even his bed sheets are 100% cotton).  I've read that dust, dust mites, pet dander can contribute to the itchiness.  So, we use one of those pleated allergen air filters at home.  Currently we use dove sensitive skin at bath time but I am in the process of trying to learn how to make soap rich in hempseed oil and shea butter.  Also, against some doctor's opinions, after bath before bed, I slather him down with Vaseline.  All of the above have helped my son.  Perhaps they may help your grandchild. 

Also, I recently read, but have not verified, that people w/DH should be careful of the amount of iodine in their diet.  I'm not sure about that, like I said I haven't had a chance to investigate it further.

Good luck.  If I think of anything else I will let you know.

<{POST_SNAPBACK}>

cdford Contributor

I did not realized about the iodine until recently. I have stopped it completely and it does seem to make a difference. Also realize that once glutened, the DH spots can come and go for months, long after any celiac disease symptoms have left.

watkinson Apprentice

Hi njferrero,

Have you check the source of all those lotions and meds you are puting on the skin? Could they possibly contain gluten? <_< One thing we do for itch is take milk baths, (Unless there is a sensitivity to dairy) We buy powdered milk and put 5 or 6 cups into a warm bath (it's cheaper that way!) You can also try witch hazel, you apply it with a cotton ball or soft towel, it is very sooting to the skin. Ask your doctor first but we have also soaked with epsom salts in the tub. Extremely soothing! I'm not sure with a 2 year old though. Especially if the rash may be infected.

Double check everything that comes in contact with the baby to make positive sure everything is gluten-free

Also... find out from your doctor what you can do to keep the skin moist from the inside out. Meaning...I take Omega 3 fatty acids (fish oil). It helps with every system of the body including the skin. :) I have no idea if children can take it though. do you live in a dry environment? What about a humidifier?

I hope all is well soon, Wendy

cdford Contributor

Those epsom salt baths are a life saver not only with the itch but also with muscle aches and spasms.

Our dermatologist and allergist had us put a tsp of clorox in our baths to cut the bacteria in the sores and help them heal. It also helped keep the redness down.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lbsteenwyk Explorer

My daughter has used a prescription topical med called hydrocortisone valerate which seemed to improve her itching and helped her heal. This was prescribed for eczema, so I'm not sure it would be appropriate for your child.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    3. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Are Lindt chocolate balls gluten free?

    4. - Dorothy O. commented on Scott Adams's article in Latest Research
      7

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,402
    • Most Online (within 30 mins)
      7,748

    alanhlam
    Newest Member
    alanhlam
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.