Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Argh Stupid Doctor (test Results)


samcarter

Recommended Posts

samcarter Contributor

My husband picked up my lab results from the doctor's office. He only did ONE celiac-related test: for EMA. It was negative. He didn't do any other IgA, IgG, or Ttg tests. The jerk.

He did test a whole wad of other stuff, though, including glucose, cholesterol, and a few things which worry me (but naturally the doctor didn't mention those when he called with the results):

BUN/Creatinine level: 29 (normal range 7.0-25.0)--mine is the low side of high

Neutrophils: 78.2 (normal range 40-75)--mine is the low side of high

Lymphocytes: 16.9 (normal range 18-47)--mine is just under a low normal

I looked up the last two and an elevated neutrophil count can be a sign of acute inflammation in the body. :huh: A low lymphocyte count can be associated with malnutrition or high stress level (we have had some personal stress around the home lately).

All my CBC and red blood cell counts were normal, so no anemia.

My husband doesn't trust the results, and is going to see if our insurance will cover a trip to the allergist. Would an allergist be able to do a full celiac blood panel and a gene test as well? Problem is i don't want to go back on a gluten diet to get the celiac panel....but at the same time i want to know for sure.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



neesee Apprentice

Well.... He did use the most specific test for celiac disease, however, it is subject to human error. The tests that seems to be the most highly favored right now are the total Iga along with the ttg. Igg seems to point to some sort of gluten intolerance, but not usually celiac.

I know i had extremely low cholesterol with my celiac. 96 total. 20 years later, I'm around 150. I eat a fair amount of fat. I just don't seem to absorb it all that well.

Good luck whatever you decide to to.

neesee

samcarter Contributor

He didn't even do a total IgA. The lab report says "Endomysial IGA". And that was negative. No idea whether I'm IgA deficient, or anything.

My cholesterol was spiffy, though: total was 152.

ohsotired Enthusiast

Call them up and ask why they didn't do the whole panel, and then calmly but assertively request that they do the rest of the tests. I'm right there with ya.........on my way out the door to the doc's office now..........good luck!

salomeh7 Newbie
Call them up and ask why they didn't do the whole panel, and then calmly but assertively request that they do the rest of the tests. I'm right there with ya.........on my way out the door to the doc's office now..........good luck!

I called ahead last week to ask for the celiac panel from my doctor. The medical assistant said, "okay," on the phone and I made certain to list the five tests I wanted. She sounded as if she wrote them down but strangely didn't ask me how to spell them. I should have known at that point. How many people who are unfamiliar with these tests know how to spell them. So, I went today and there were only two tests ordered, the EMA and the ttG. Needless to say I didn't get my labs drawn today because of course the doctor was busy with patients and could not be asked about the additional labs. My baby was fussing and it was so frustrating. Medical offices seem to have little regard for other people's time. Perhaps if I charged per visit they would pay more attention.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.