Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And 4 Months Pregnant

mandigirl1

By mandigirl1
in Related Issues & Disorders

Recommended Posts

mandigirl1 Enthusiast
mandigirl1
Posted

I'm 4 months pregnant and have been gluten-free 10 yrs. Does anyone know when and how do you test your baby for celiac disease? While I do have an excellent OBGYN, I'm assuming she wouldnt know much about this. Please share any knowledge/experience.........Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RBC Newbie
RBC
Posted
I'm 4 months pregnant and have been gluten-free 10 yrs. Does anyone know when and how do you test your baby for celiac disease? While I do have an excellent OBGYN, I'm assuming she wouldnt know much about this. Please share any knowledge/experience.........Thanks!!

I am 4.5 months pregnant and this is what I have concluded from talking with my Dr. and reading online: when your baby is first born you can do the gene test which consists of swabbing its mouth with a cotton ball and sending it off for testing. This way if the baby does have the celiac gene, then you will know to watch for signs once gluten is introduced into the diet. If the baby does not have the gene, then you will know that it will not be an issue. I had the gene tests years ago and it was very simple. The only drawback is that it is a little pricey and most insurances do not pay for it. Anyway, that is what I plan to do. Hope this helps!

Rya Newbie
Rya
Posted

Another option outside of gene testing is to be very aware of when you introduce gluten into your little one's diet. Look for the same things you would look for in yourself, changes in bowel habits, signs of discomfort, changes in appetite. The current recs are 5-7 months of age. They say if you do it sooner, their intestines aren't mature enough and it increases their risk of developing allergies/celiac. They say if you do it later, I forget why but it also increases the risk. If you do opt to do this, I would take your baby in for a blood test about a month or two after you introduce gluten - just to be sure that all is clear. Sometimes little ones show no overt symptoms at all. Adults do the same as you probably know.

On the other hand, no one says you have to introduce gluten...

And breastfeeding has protective effects against Celiac according to a couple of decades of research.

  • 1 month later...
mandigirl1 Enthusiast
mandigirl1
Posted
  • Author

I've forgotten to check the responses to my question from August. Thank you for your replies. I'm still wondering if anyone else can add to this, based on their own experience? Now, Im 6 months pregnant and still unsure about when and even if to test my baby. I will not be breastfeeding. Does anyone know which formula is good? Or without gluten? Im not sure what formula would be safe to use if, in fact, my baby does have celiac disease.

Also, when should I give my baby that gene test? What is the name for it? How much will it cost?

Any help would be greatly appreciated! Thank you!

  • 2 months later...
LisaInTexas Newbie
LisaInTexas
Posted
I've forgotten to check the responses to my question from August. Thank you for your replies. I'm still wondering if anyone else can add to this, based on their own experience? Now, Im 6 months pregnant and still unsure about when and even if to test my baby. I will not be breastfeeding. Does anyone know which formula is good? Or without gluten? Im not sure what formula would be safe to use if, in fact, my baby does have celiac disease.

Also, when should I give my baby that gene test? What is the name for it? How much will it cost?

Any help would be greatly appreciated! Thank you!

Hi mandigirl~

I just found out I'm pregnant and I've been wondering the same questions. I plan to have a gene test done on my baby just to see which gene I pass along. I know it will either be a celiac gene or a gluten sensitive gene, so either way - I'll most likely avoid giving my child gluten whether they show symptoms or not. My husband hasn't been tested (and won't) so that info will be interesting to learn from our child as well.

I actually did the cotton swab gene test myself as part of a complete panel through www.enterolab.com. It's called the "Gene Test for Gluten Sensitivity/Celiac Sprue". When ordered seperately it is $149. Click on "Pricing and Information about Tests" and scroll down to read more about what they offer and how they work. If you have more questions, they are really good about answering the phone and they typically take the time to make sure you really do understand what they tell you. Of course, any doctor can do a gene analysis as well.

I plan to breastfeed so I don't know about gluten free formulas. I hope you'll reconsider breastfeeding your child as well - if, of course, you are able to. (I know some mothers are not.) It makes even more sense to breastfeed your child if it's possible they could have a gluten sensitive gene or a celiac gene. If you are still interested in gluten-free forumlas, I've read a few other threads on this forum - just do a quick search and I'm sure you'll find what you're looking for. I hope this helps a little bit. Congrats to you - I wish you all the best! :)

~Lisa

Becky6 Enthusiast
Becky6
Posted

My husband, daughter and I all have Celiac so I am not planning on introducing gluten to this little guy at all!

  • 2 weeks later...
MinRalph Rookie
MinRalph
Posted
My husband, daughter and I all have Celiac so I am not planning on introducing gluten to this little guy at all!

Wow... I've never met anyone besides me and my sister who has Celiac... That's really cool that your husband does too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
If the baby does not have the gene, then you will know that it will not be an issue.

Actually, this is not true. There are people who have biopsy-diagnosed celiac who do NOT have either of the 2 genes considered in the US to be associated with celiac.

There are another 5 genes that are considered to be associated with celiac/gluten intolerance in both Europe and Asia.

Also, there are a tremendous number of people (on this board, even!) who are "only" gluten intolerant who have gluten-caused reactions and systemic damage (permanent, for some) every bit as severe as celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.