Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And 4 Months Pregnant

mandigirl1

By mandigirl1
in Related Issues & Disorders

Recommended Posts

mandigirl1 Enthusiast
mandigirl1
Posted

I'm 4 months pregnant and have been gluten-free 10 yrs. Does anyone know when and how do you test your baby for celiac disease? While I do have an excellent OBGYN, I'm assuming she wouldnt know much about this. Please share any knowledge/experience.........Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RBC Newbie
RBC
Posted
I'm 4 months pregnant and have been gluten-free 10 yrs. Does anyone know when and how do you test your baby for celiac disease? While I do have an excellent OBGYN, I'm assuming she wouldnt know much about this. Please share any knowledge/experience.........Thanks!!

I am 4.5 months pregnant and this is what I have concluded from talking with my Dr. and reading online: when your baby is first born you can do the gene test which consists of swabbing its mouth with a cotton ball and sending it off for testing. This way if the baby does have the celiac gene, then you will know to watch for signs once gluten is introduced into the diet. If the baby does not have the gene, then you will know that it will not be an issue. I had the gene tests years ago and it was very simple. The only drawback is that it is a little pricey and most insurances do not pay for it. Anyway, that is what I plan to do. Hope this helps!

Rya Newbie
Rya
Posted

Another option outside of gene testing is to be very aware of when you introduce gluten into your little one's diet. Look for the same things you would look for in yourself, changes in bowel habits, signs of discomfort, changes in appetite. The current recs are 5-7 months of age. They say if you do it sooner, their intestines aren't mature enough and it increases their risk of developing allergies/celiac. They say if you do it later, I forget why but it also increases the risk. If you do opt to do this, I would take your baby in for a blood test about a month or two after you introduce gluten - just to be sure that all is clear. Sometimes little ones show no overt symptoms at all. Adults do the same as you probably know.

On the other hand, no one says you have to introduce gluten...

And breastfeeding has protective effects against Celiac according to a couple of decades of research.

  • 1 month later...
mandigirl1 Enthusiast
mandigirl1
Posted
  • Author

I've forgotten to check the responses to my question from August. Thank you for your replies. I'm still wondering if anyone else can add to this, based on their own experience? Now, Im 6 months pregnant and still unsure about when and even if to test my baby. I will not be breastfeeding. Does anyone know which formula is good? Or without gluten? Im not sure what formula would be safe to use if, in fact, my baby does have celiac disease.

Also, when should I give my baby that gene test? What is the name for it? How much will it cost?

Any help would be greatly appreciated! Thank you!

  • 2 months later...
LisaInTexas Newbie
LisaInTexas
Posted
I've forgotten to check the responses to my question from August. Thank you for your replies. I'm still wondering if anyone else can add to this, based on their own experience? Now, Im 6 months pregnant and still unsure about when and even if to test my baby. I will not be breastfeeding. Does anyone know which formula is good? Or without gluten? Im not sure what formula would be safe to use if, in fact, my baby does have celiac disease.

Also, when should I give my baby that gene test? What is the name for it? How much will it cost?

Any help would be greatly appreciated! Thank you!

Hi mandigirl~

I just found out I'm pregnant and I've been wondering the same questions. I plan to have a gene test done on my baby just to see which gene I pass along. I know it will either be a celiac gene or a gluten sensitive gene, so either way - I'll most likely avoid giving my child gluten whether they show symptoms or not. My husband hasn't been tested (and won't) so that info will be interesting to learn from our child as well.

I actually did the cotton swab gene test myself as part of a complete panel through www.enterolab.com. It's called the "Gene Test for Gluten Sensitivity/Celiac Sprue". When ordered seperately it is $149. Click on "Pricing and Information about Tests" and scroll down to read more about what they offer and how they work. If you have more questions, they are really good about answering the phone and they typically take the time to make sure you really do understand what they tell you. Of course, any doctor can do a gene analysis as well.

I plan to breastfeed so I don't know about gluten free formulas. I hope you'll reconsider breastfeeding your child as well - if, of course, you are able to. (I know some mothers are not.) It makes even more sense to breastfeed your child if it's possible they could have a gluten sensitive gene or a celiac gene. If you are still interested in gluten-free forumlas, I've read a few other threads on this forum - just do a quick search and I'm sure you'll find what you're looking for. I hope this helps a little bit. Congrats to you - I wish you all the best! :)

~Lisa

Becky6 Enthusiast
Becky6
Posted

My husband, daughter and I all have Celiac so I am not planning on introducing gluten to this little guy at all!

  • 2 weeks later...
MinRalph Rookie
MinRalph
Posted
My husband, daughter and I all have Celiac so I am not planning on introducing gluten to this little guy at all!

Wow... I've never met anyone besides me and my sister who has Celiac... That's really cool that your husband does too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
If the baby does not have the gene, then you will know that it will not be an issue.

Actually, this is not true. There are people who have biopsy-diagnosed celiac who do NOT have either of the 2 genes considered in the US to be associated with celiac.

There are another 5 genes that are considered to be associated with celiac/gluten intolerance in both Europe and Asia.

Also, there are a tremendous number of people (on this board, even!) who are "only" gluten intolerant who have gluten-caused reactions and systemic damage (permanent, for some) every bit as severe as celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    4. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    5. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.