Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Much Mucus/water In Stool

dixonpete

Recommended Posts

dixonpete Community Regular
dixonpete
Posted

My first post, hi guys.

I'm about a month and half into finally figuring out what was causing my non-stop diarrhea. I guess I've mis-stepped into gluten about 6x since then. I'm learning.

My question though to the forum is about mucus and watery stools. The problem is rather intense for me since I have a damaged sphincter from surgery. Today I had to rush for a bathroom 8-10x. The volume of the very low viscosity mucus was probably 3-4 cups worth distributed through the day. It's liquid enough to be hard to block with pads and mucusy enough not to be absorbed like water would be.

Does anyone know how to stop this or have a handle on how long it's going to go on? Today I fasted to see if that would make a difference. It did, it seemed double the volume! :(

Pete

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

I hope it doesn't last long Pete! I don't know if this will help any, but I do have a couple suggestions. You could try some probiotics. It could be your bacteria balance is off some. Have you eliminated dairy from your diet? Dairy can cause lots of GI symptoms. You could also try some fiber, I like pysillium husk powder myself, but there are probably others as good.

It sounds like you gut is trying to heal, the mucous could be a protective reaction against something. Six glutenings in 1 1/2 months is quite a few. Your gut needs tiem to heal and that means avoiding all gluten sources. It takes me about a week to get over a glutening accident. So if that were true for you, 6 times would fill your 1 1/2 months with nothing but recovery from glutenings.

I really suggest you try to simplify your diet to start out. Try making it mostly rice and veggies with some meat for protein. Forget aout bread and rolls and those other nasty things that make you sick. You can always do those with gluten-free products once you have had some time to heal. It is far easier to make sure you are gluten-free with a simple diet. Are you a cook? Could be the time to start learning if you are not. Hang in there pete, it is tough getting started but it does get better in time!

ShayFL Enthusiast
ShayFL
Posted

Perfect advice. :)

dixonpete Community Regular
dixonpete
Posted
  • Author

Seems like. I was despairing since after I figured out it was Celiac Disease I thought I was finally clear, but then I encountered the mucus issue. Looking back I guess it could have been there for a while but I wouldn't have known since the diarrhea was overwhelming enough.

Yesterday was the first day the mucus finally let up. It's still unbelievable in a way after all these years of being trapped in my apt; the thought be able to do things as simple as walking a block to the store without weighing the odds of a successful trip vs the downside of making do with a mostly empty fridge.

Thanks for the good advice. I'm seeing a dietitian Monday. A bit late since the landscape seems mostly known now but I'm curious what she has to say. I found her on www.dietitians.ca

Perfect advice. :)
dixonpete Community Regular
dixonpete
Posted
  • Author

Unlike some of the reports of encounters with nutritionists/dietitians I just had a remarkably good experience with a Registered Dietitian on Bloor West near Royal York in Toronto. Susan Fyshe, her web site is Open Original Shared Link

Pricey at $175 for a hour consult but I got my money's worth. Susan did a fair amt of prep work looking at my 3 day diet report that I had submitted and had some great suggestions on changes as well as local companies that could supply foods and supplements. She was very knowledgeable on Celiac disease. Highly recommended.

Thanks for the good advice. I'm seeing a dietitian Monday. A bit late since the landscape seems mostly known now but I'm curious what she has to say. I found her on www.dietitians.ca

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    2. knitty kitty
      0

      Vitamins I Take

    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run...
    5. pothosqueen
      - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,993
    • Most Online (within 30 mins)
      7,748
    Tchudi
    Newest Member
    Tchudi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      Mallorca Guide

      By hjayne19 · Posted

      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.