Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Blood Tests Are Back


crittermom

Recommended Posts

crittermom Enthusiast

Hi everyone,

Just wanted to share our joy. Katharine had her GI checkup in June. Her Ttg's came back at 85. I was amazed as I thought we were doing great. But obviously not. She hadn't had her rash or weird bm's or anything but they were up none the less. So here we go again on the hunt for hidden gluten.

I made 2 changes as far as food goes as everything else was gluten free printed on the packages or whole foods that we were using. I stopped using Kraft cheese as they won't garuntee gluten free, they just say the mark it clearly on the label. Now I use wal mart singles and walmart brick cheese which state they are gluten free on the package. And we no longer use Nestle tollhouse chocolate chips. We use good for life. With those 2 changes and having our house 100% gluten-free her numbers went from 85 to 56 in about 6 weeks! I am not sure which one did the trick, but it did. Hooray! I know we still have a ways to go to get under 20 but I am so happy we have made a break through! We are having the tests run again in a couple of months that way if they go above 56 we will know something is happening at school. First grade this year and a whole new ball game with the cafeteria, should be fun...

Wish us luck!

Thanks for reading and sharing our success with me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



April in KC Apprentice

That's great - I hope they keep going down. I have had my own experiences with elevated AGA-IGA after a year gluten free...made me want to send everything in my house off to a lab to be tested for gluten, lol. Thanks for posting your experiences and what you changed.

April in KC Apprentice

BTW, I have had some trouble (slight) with Kraft shredded cheese. Since they don't have any wheat labeled, I have assumed this was because of corn (I have symptoms with both). Maybe not...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,868
    • Most Online (within 30 mins)
      7,748

    Tess24
    Newest Member
    Tess24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
    • Colleen H
      Thank you.. Christina My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.   My heart is pounding and it won't stop.  Not sure what to do.   I don't have much support other than this forum.    Colleen 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.