Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dosing Thyroid Medication


Di-gfree

Recommended Posts

one more mile Contributor
I know when I need an increase because my muscles start twitching and spasming non-stop day and night and my face/lips get numb. I up my dose and within a few days those symptoms disappear. There are also other more subtle signs I need an increase like: Hair starts falling out, eyebrows get thinner, tired, heart palps, anxiety and depression.

<_<

My thyroid was removed 2.5 years ago.

Do not eat for 2 hours before taking thyroid meds or an hour after. They are very fragile and food will cause you not to get the full dose that you have taken. I have found that several of my friends were never told this.

Try taking Calcuim Ditrate+ d on a daily basis. When my muscles twitch I need more Calcium Citrate+d.

The twitching can also lead to a hart attack. I always carry some Calicium citrate with me, Often when Hiking or doing hard physical work I need it. My parathyriod does not work very good due the the thyroid problems. and that is the part of your body that uses the calcium. I also keep tums in the car incase the twitching starts.

A blood test is really the only way to know what you need to take. You can do damage to your self but taking to much.

Dosages are increased slowly so your body does not go into shock.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast
A blood test is really the only way to know what you need to take.

This just isnt true. My doctor doses by "how the patient feels" the way it was done for years before "sophisticated" lab work was discovered. That fact is that people who can find a traditional thyroid doctor feel better and their hypothyroid symptoms go away. My Mom had her thyroid removed and was dosed by "labs for 2 years and she felt TERRIBLE. Now she is with a doctor who Rx Armour and goes by "symptoms". Her symptoms are now gone working with a doctor who actually understands thryoid.

Same for my sister, Rx by "labs" only for 7 years. She stayed fat, depressed, half-bald, unable to walk around the block and consitpated......all the while her doctor said...."There is nothing wrong with you. Your labs are perfect. You should feel great." Now she is on Synthroid and some additional Armour. A LOT MORE than she was taking before with those "perfect labs" and she feels great. She has lost 22 pounds, no more depression, her hair is growing back and she jogs 2 miles a day or more. This is only 3 months after adding the Armour. She says she is a "new person".

The labs are bunk!!

My doctor gave me an Rx that was high to allow me to dose myself as needed. She gave me a year's prescription. Not even testing labs after 6 weeks before an increase. She said there is no need for that. Just wastes the patients time and pads the doctor's wallets. She wants to see me in a year after my last visit. To call if ANY issues come up and she will talk with me on the phone or I can come in. You SHOULD work with a doctor and make the increases small. I am funny about hormones, so I only increase by an 1/8 grain at a time. This way I never "go overboard". She and I talked for a good hour and she is confident that I understand what too much thyroid feels like. And I do as I was hyper with PP Thyroiditis after my daughter was born. My thyroid dumped it's stored hormones over a 2 week period. You NEVER forget what that feels like.

No one should just get thyroid and take it at will, increasing indescriminantly, without knowledge of how the thyroid works and what is required. You should also have your parathyroid, adrenals, ferritin and B12 checked before starting thyroid. (I did all of those first.)

The twitching can also lead to a hart attack.

The body can twitch for MANY reasons and MOST are benign. A simple Google will tell you this. Please, if anyone out there has twitching muscles, to not panic and think you are going to have a heart attack. I have an uncle who has twitched his whole life since he was a kid. He is now 65. The best that the doctors have come up for him is Benign fasciculation syndrome. His heart is just fine.

For me, calcium and magnesium are not the answer. Generally magnesium will calm the nerves more so than calcium. For me it is a DIRECT indication that I need MORE thyroid hormone.

one more mile Contributor

I must have just had a different reaction. I see an endocrinologist. After my surgery I did not have any thyroid meds for a month. ( the surgon said that if there was cancer they could not treat it until i was of the thyroid meds. the thyroid dr was on vacation) My TSH was 80 with 0 being the goal. I was in so much pain and all I could do was sit and watch the wall. My hands and arms were all twisted up and I could barely walk. Thank God I have thick hair. because what was left covered what had fallen out.

But I had no twitching. When I started getting better and more active I asked the dr about the twitching that would start after a work out. He said I was not taking enough Calcium Citrate with D ( 1500 a day) He then put his pen down, looked me in the eye and spoke very clear and slow ( he is from South America) and said if you do not take the calcium you will have a hart attack. You must take this and not play with it.

I do feel weak when I have the twitching and tried to get him to up my meds. He was right though.( for me)

Yes there are lots of other reasons for twitching. It just panics me when I hear so many people with low thyroid not taking Calcium Citrate +d . He put me on it when I first came to his office. but My last endocrinologist did not have me on it. Nor did he tell me to wait an hour after I took my thyroid meds, in the morning, to eat. I had to fire him after he fought with me saying that my goiter did not hurt. ( goiters do not hurt, but fibroids in it do)

I take Levoxyl I was taking 150 but after going gluten free and losing some weight I am now down to 137 on week days and 150 on Friday and Saturday. As a person in 12 step recovery I am not the one to ask if i need to take more of a drug because my tenancy it to always say yes. For me leaving it up to the doctors yields better results. The blood tests have always been right on for me. but then He takes lots of other checks to make sure things are in line.

He did miss the gluten thing though he thought my prediabetics was making me tired. I will have to educate him a bit.

lol He was suprized at my weight loss. For two years I have been telling him what I eat has nothing to do with what I weigh.

one more mile

ShayFL Enthusiast

Yes, we all have VERY DIFFERENT experiences. I will not even go into the 2 endocrinologists that I have seen. I got into trouble in these boards once by explaining my experience with them. I would rather have a veterinarian treat me than either one of those experts in Tampa. :angry:

I do take calcium. I also know that calcium has to be carefully balanced with not only Vitamin D, but Magnesium, phosphorus and boron.

If your doctor just told you to take Calcium + D without balancing with magnesium, he has done you a health disservice. Calcium must be balanced with magnesium, and many people take too much calcium, when they are really deficient in magnesium. Americans eat plenty of calcium, but the reason so many end up deficient or with osteoperosis is because they do not take magnesium with it via supplement or in foods (tons of green leafy veggies).

Endocrinologists know a lot about a little. You may wish to consider consulting with a nutritionist or nutritional consultant. Taking all of that calcium without balance can lead to further trouble down the road (even if you feel fine now).

I earned a Phd in Holistic Nutrition to find solutions to my own health problems. Then I practiced for about 3 years consulting others. I now follow my dream.....I am a full-time artist. But I have not forgotten the basics of my studies and I continue to research as new things are introduced.

ShayFL Enthusiast

Before taking calcium supplements, read these:

Open Original Shared Link

You take calcium supplements to protect your bones and prevent fractures, but a recent study suggests they might be damaging to your heart.

The study, published online Jan. 15 2008 in the British Medical Journal (BMJ), found that healthy postmenopausal women (average age 74) who took elemental calcium citrate supplements daily were significantly more likely to have a heart attack than women who didn't take calcium. The authors say the supplements raise blood calcium levels, potentially leading to calcium deposits in the arteries that can block blood flow.

Open Original Shared Link

www.paho.org/English/CFNI/NyamnewsAug1-205.pdf

MAGNESIUM A magnesium deficiency is due to a nitrogen toxicity because magnesium is a scavenger of excess nitrogens (nitrates). Nitrogen toxicity may occur when the soil is deficient in calcium because the nitrogens are then released very rapidly from the food. And the treatment is magnesium. So magnesium is deficient if you are overloaded with nitrogen. A heart attack is a sign that you have a magnesium deficiency. As the nitrogen levels go up in your blood, the viscosity goes up. The blood gets thicker. When your heart can't beat the thick blood through the vessels, what is going to happen? You don't get oxygen and nutrients, and the heart then suffers as a muscle.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,134
    • Most Online (within 30 mins)
      7,748

    Driver
    Newest Member
    Driver
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.