Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worried And Embarrassed


MD2B

Recommended Posts

MD2B Newbie

Hi everyone. I guess I'm posting to get some encouragement...

I have pretty classic symptoms of celiac, and a huge part of me wants to go to the doctor and get it diagnosed...

but I'm a med student, and I don't want to be "that girl" that goes to the doctor saying "I think I have X disease," especially since I don't know how it would be received in general by my doc. As med students, we often fear that we are overreacting to our symptoms - and a lot of the time we are (every headache could be a brain tumor), and with something that many doctors think is rare, I can imagine that I might be brushed off as having "med student syndrome."

It's really embarrassing as a med student to go to the doc and possibly know more about it than they do - you really run the risk of looking like a complete jerk in a way a regular patient might not.

I know this all sounds kinda silly but I'm really worried about going in and saying something.

I'm worried about going to the doc, and just being told i have IBS or something, or the doc not wanting to order the tests. I know that if i saw a patient with my presentation, I would certainly have a strong clinical suspicion that it could be celiac, but I don't know how my doc will respond. I'm worried that the tests might come up negative, and then looking like I, in fact, am that crazy hypochondriac med student.

Plus, I have the normal anxiety about possibly having to change all my eating habits.

I'm just scared to make an appointment. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Does your doctor know you are a med student? If not, dont tell him. If he does, go to a different doctor and dont tell them.

Or if you dont want any bother with doctors and can afford it....order a Celiac panel yourself. Many online labs will order them for you without a doctor. I like directlabs.com but also use Healthcheckusa sometimes.

You always have options.

MD2B Newbie
Does your doctor know you are a med student? If not, dont tell him. If he does, go to a different doctor and dont tell them.

Or if you dont want any bother with doctors and can afford it....order a Celiac panel yourself. Many online labs will order them for you without a doctor. I like directlabs.com but also use Healthcheckusa sometimes.

You always have options.

Yes, doc knows I'm a med student - and unfortunately, with my insurance I can only go to the group of doctors associated with primary care practice associated with the school/hospital. I really can't afford paying for the tests myself. Plus, if they are in fact positive, I still would have to go to my doc, looking even sketchier with a bunch of self ordered tests in hand.

I actually just switched doctors within the practice to one I think will be more friendly about all of this. But I'm still kinda irrationally scared about going in.

ShayFL Enthusiast

Why not go and tell him your symptoms and just see what he suggests.

Do you have a family history of Celiac? Family members with auto-immune diseases associated with Celiac like thyroid and/or diabetes? Any family members die of intestinal cancer or lymphoma?

These could be valuable clues to give your doctor.

gfpaperdoll Rookie

So happy you are going to be a doctor!!! I am sure you will diagnosis a lot of people that are being missed!!!

Well you are in a sticky situation at the moment, You could tell a white lie & say someone in your family was just diagnosed... But I think that the truth is always better & I just tell it like it is. Also, you will need to think if you really want an official diagnosis. If I was you I would think very hard about that. You might want to just go with the wheat allergy... But, I guess you know that if you do, then later on if you really want a diagnosis you will not be able to get one. Because a lot of us know that once you go back on gluten it will make you so sick, you might not be able to do it... But, you can always get the gene test - be sure to test somehwere that will also check for the gluten intolerant genes like DQ1 & DQ3 & others...

If you want a diagnosis, (to go to the appointment with some info) maybe do a little homework & take a family history, of everything - I think there are at least 200 symptoms in the back of the Dangerous Grains book... & if you are Irish, just know that you have it - not that other people do not have a problem, but IMO those of us of Irish/Scotch/English descent are doomed... Especially the Irish...

(Be prepared to also give up dairy...& soy...)

Having caivities does not sound like much of a problem, but when you add it to IBS, anemic, low blood pressure, hives, depression & a bad temper you can connect it all with the gluten intolerance issues... Then there are the things that stand out like RA, Lupus, MS, Diabetes, Miscarriages, Fibromyalgia, thryoid issues, failure to thrive...

The real truth is that almost all the patients that you will see will have an underlying problem with gluten.

Good Luck & Thank You for the care that you will be giving people in the years to come...

*lee-lee* Enthusiast
if you are Irish, just know that you have it - not that other people do not have a problem, but IMO those of us of Irish/Scotch/English descent are doomed... Especially the Irish...

OMG is that true? my grandma is very Irish and was diagnosed years and years ago with Celiac. and i have Irish (of course), Scottish and German in me. wow, that's bizzare.

anywho - MD2B...just ask the new doctor to run the tests. don't worry about what they'll think of you. if they can't listen to their patients concerns without passing judgment, it's time to find a new doctor.

does Celiac run in your family? (all i had to say to my doctor is that my grandmother has it and i've had diarrhea for a few months and she ordered the full panel.) i agree with gfpaperdoll...maybe it's time for a little white lie. "my sister was just diagnosed...test me please!"

you could always do a gluten-free trial and see if it makes you feel better. of course if it does, you'd have to go back on gluten eventually if you were to be tested sometime down the line.

good luck - let us know how you made out!

Kitt1027 Rookie

I did the same thing when I had my blood tests just last week. I was really nervous that my GP was going to be an a-hole about it b/c he can sometimes be like that...depending on his mood. haha. Anyway, I just decided that it was important enough to me and so I kind of bent the truth and said my grandma was recently diagnosed. It was almost true, except that she has several symptoms of Celiac, but no official diagnosis. She has rheumatoid arthritis, lactose intolerance, psoriasis, and I don't know about the other symptoms.

Anyway, it was like flipping a switch. He was like, well Ok, let's get those antibodies checked. he ordered the Celiac Panel. It was alot easier than I expected. (BTW, still don't have results back)

Just remind yourself that you are the patient in this case. You are asking for tests that you will have to pay for. The doctor doesn't have to do anything other than order them. So, you deserve whatever test you ask for!

Good luck and congrats in advance on being a Dr. someday!

Kitt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cinnamon Apprentice

I did the same with my son. He had some symptoms that weren't classic celiac symptoms, but his younger brother and sister have done extremely well on a gluten free diet without a diagnosis, but I couldn't get my 16 year old to try the diet without a diagnosis. So in we went to the doctor, and I was nervous about asking him to do a celiac blood test on a seemingly healthy teenage boy with no digestive symptoms. But I just honestly told him my experiences and just asked him to please do the blood test to ease my mind and rule it out. We have the Irish thing going on too, which I didn't mention but the doctor brought it up, and he agreed to do the blood test.

If I were you, I would just walk in there and say, "look, would you please just order the blood test to rule it out? It would really ease my mind" and if he balks, say, "well, will you please just do the test to rule it out, then I can go on from there to figure this out" and hopefully he'll listen to you.

MD2B Newbie

thanks everyone for your replies. My brother has the same symptoms I do, and I have been trying to convince him to go to the doctor about it, just so that I can say he has a dx when I go in. But alas, he's a pain and doesn't want to go in.

I know just telling her what my symptoms are and what my risk factors are should lead to testing anyway, and she will probably agree my suggestion that celiac is a strong possibility. I also know how to present it in a way that will be the most medically suggestive, and I can certainly make any case for testing me giving such-and-such guideline, or the lecture given by so-and-so expert doctor at the hospital - I just don't want to get to that point, because it's pretty snotty. I just keep imagining the worst case scenario!

I never disliked going to the doctor until I got to med school! Now I second guess everything I say, and see it all through their eyes, and it freaks me out!

I think I'm going to make an appointment in the next few weeks - after enough time has passed since I made the switch to the new doctor.

MyMississippi Enthusiast

Another question that we might ask ourselves is WHY ARE WE SO WORRIED ABOUT WHAT THE DOCTOR THINKS ?????????

If not for all us sick folks, they could not buy their new boats, and new sports cars, new vacation homes, etc. etc. etc. WE ARE THEIR PAYCHECK--- :D

They should greet us at the door with hugs, and coffee and donuts. :)

Here's what I would do--- I would walk into his office--- informed, assertive and POLITE--- I would WITHOUT talking overly much TELL the doctor all of my symptoms and-- then say, I would really like to be tested for Celiac disease.

Have a sense of humour about it and tell him you are NOT another anxious, neurotic, female------- you are just not well and want to get to the bottom of the problem, and from what you know, Celiac disease might be a good place to start.

Good Luck--

gfpaperdoll Rookie

Well because in this case with a med student it is different. Doctors all know each other & word gets around...

I do not know if this has changed much but when I was around doctors all the time, they only associated socially with other doctors. So, it ends up being a tight community...

MyMississippi Enthusiast
Well because in this case with a med student it is different. Doctors all know each other & word gets around...

I do not know if this has changed much but when I was around doctors all the time, they only associated socially with other doctors. So, it ends up being a tight community...

"Word gets around" about what ??? A med student wants to be tested for Celiac ??? There is no problem here that I can see. Give the doctors some credit for having empathy for a med student---- they were once one.

I worked closely with doctors for 20 years, and just like all people. some are good , some are bad.

Pick a good one...... :)

As a med student she should have an inside track on whose who in the doctor zoo.

dogle Apprentice
Hi everyone. I guess I'm posting to get some encouragement...

I have pretty classic symptoms of celiac, and a huge part of me wants to go to the doctor and get it diagnosed...

but I'm a med student, and I don't want to be "that girl" that goes to the doctor saying "I think I have X disease," especially since I don't know how it would be received in general by my doc. As med students, we often fear that we are overreacting to our symptoms - and a lot of the time we are (every headache could be a brain tumor), and with something that many doctors think is rare, I can imagine that I might be brushed off as having "med student syndrome."

It's really embarrassing as a med student to go to the doc and possibly know more about it than they do - you really run the risk of looking like a complete jerk in a way a regular patient might not.

I know this all sounds kinda silly but I'm really worried about going in and saying something.

I'm worried about going to the doc, and just being told i have IBS or something, or the doc not wanting to order the tests. I know that if i saw a patient with my presentation, I would certainly have a strong clinical suspicion that it could be celiac, but I don't know how my doc will respond. I'm worried that the tests might come up negative, and then looking like I, in fact, am that crazy hypochondriac med student.

Plus, I have the normal anxiety about possibly having to change all my eating habits.

I'm just scared to make an appointment. :(

MD2B, follow your instincts you might be right. You will rely on them once you become a Doctor. I'm sure you will order your patients a lot of test that might come negative and positive, but you know the steps and protocols demand you to follow those guidelines. Go ahead and test yourself you might be right. I, as a patient, prefer to spend money to find out what I have rather than having a Doctor being so doubtful to order a test, don't become one of them and break the habit for the sake of you and your future patients. :)

home-based-mom Contributor

It sounds like you are afraid to have tests run that may very well save your life because you are afraid someone else might think you're a weirdo.

:o

Do some research, make printouts from reputable sources, and take them to your appointment. Keep a diary, make, notes, whatever it takes, and present them to your physician of choice explaining that this is why you are requesting the tests.

Make sure they run the entire panel, not just part of it.

You could wind up being as much the teacher as the student. ;)

gfpaperdoll Rookie

I do not think that ya'll are giving this young woman enough credit, she is a med student for pete's sake.

No one is going to think anyone is a weirdo...

But, the people that she knows in med school, will more than likely be the people that will follow her medical career. & just the fact that she goes to a doctor outside her hospital will be up for discussion, as will any tests that she has run & if they come back negative, then she will get that med student ridicule for thinking she has the disease of the month.

This has almost nothing to do with getting a medical test, but the impact of dealing with your potential employers, and fellow associates. Which is the reason that I think that this person posted in the first place.

As far as picking a good doctor, you should hear what they say when they go home...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      24

      Headaches / Migraines and Hypoglycaemia

    2. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    3. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,150
    • Most Online (within 30 mins)
      7,748

    TheaBr
    Newest Member
    TheaBr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      I am so sorry you are going through this; it sounds incredibly overwhelming and disheartening to be dismissed by the very medical professionals you're turning to for help. It is completely understandable that you feel lost and exhausted, not just from the relentless physical symptoms like the leg pain, stomach issues, and profound fatigue, but from the psychological toll of being told it's "just IBS" or that you need a therapist when you know your body is signaling that something is wrong. While it's true that a normal tTG test can indicate that celiac disease itself is being managed from a dietary perspective, it is a major oversight for your doctors to ignore your other diagnoses like SIBO, a hernia, and Barrett's esophagus, all of which can contribute significantly to the symptoms you describe. You are absolutely right to be seeking a new Primary Care Physician who will listen to your full history, take your Barrett's diagnosis seriously, and help you coordinate a care plan that looks at the whole picture, because your experience is not just in your head—it's in your entire body, and you deserve a medical team that acknowledges that. I had hernia surgery (laparoscopic), and it's not a big deal, so hopefully you can have your new doctor give you some guidance on that.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.