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puggirl

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puggirl Apprentice
puggirl
Posted

hello everyone, I've been checking out the webiste for a couple days. I like it alot, and great info. Just the other day My Doctor and I decided trying a Gluten Free diet to see if it will Help me. I really need to make sure I do it, thats the thing! haha its hard to give up the food you love, but hates you. I've been looking at alot of info, and it seems like alot of the stuff I like I can still eat, except bread, I have to change that.

My doc and I determined that if the gluten free diet doesnt work, I will have to do a Colonoscopy in a couple of months, because my Pill Cam endoscopy had mixed results, so in order to know for sure, if its Crones or Celiac I will have to get a biopsy. TOTALLY not looking forward to that. Im sure most of you have been through it though. I look forward to talking with you all, Im sure Ill have lots of Questions.

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GFinDC Veteran
GFinDC
Posted

Welcome to the forum puggirl! Lots of people post questions in the pre-diagnosis screening area about testing and such. And then there is the post diagnosis coping area for getting along the way in style. There are plenty of threads on various topics that may relate to your concerns, and there also are articles to read. You might want to search for threads on endoscopy. See you around the board!

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  • Recent Activity

    1. trents
      - trents replied to Rebeccaj's topic in Super Sensitive People
      7

      symptoms.

      You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
    2. Rebeccaj
      - Rebeccaj replied to Rebeccaj's topic in Super Sensitive People
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      symptoms.

      @trents thank you for that information. My parents feel that cooking flour in toaster isn't a thing as its already cooked product before made? but Airbourne particles is my fear. Like I have had symptoms from 6 meters away had to leave massive migraine.
    3. knitty kitty
      - knitty kitty replied to Rebeccaj's topic in Super Sensitive People
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      symptoms.

      Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies. Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine. Vitamins are needed to break down histamine released from immune cells like mast...
    4. trents
      - trents replied to Rebeccaj's topic in Super Sensitive People
      7

      symptoms.

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and...
    5. knitty kitty
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  • Posts

    • trents
      symptoms.

      By trents · Posted

      You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
    • Rebeccaj
      symptoms.

      By Rebeccaj · Posted

      @trents thank you for that information. My parents feel that cooking flour in toaster isn't a thing as its already cooked product before made? but Airbourne particles is my fear. Like I have had symptoms from 6 meters away had to leave massive migraine. 
    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies.  Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine.  Vitamins are needed to break down histamine released from immune cells like mast cells that get over stimulated and produce histamine at the least provocation as part of the immune response to gluten. This can last even after gluten exposure is ended.  Thiamine supplementation helps calm the mast cells.  Vitamin D helps calm the immune system.  Other B vitamins and minerals are needed to correct the nutritional deficiencies that developed while the villi were damaged and not able to absorb nutrients.  The villi need vitamins and minerals to repair themselves and grow new villi. Focus on eating a nutritional dense, low inflammation diet, like the Autoimmune Protocol Diet, and supplementing to correct dietary deficiencies.  Once your body has the vitamins and minerals needed, the body can begin healing itself.  You can have nutritional deficiencies even if blood tests say you have "normal" blood levels of vitamins.  Blood is a transport system carrying vitamins from the digestive system to organs and tissues.  Vitamins are used inside cells where they cannot be measured.   Please discuss with your doctor and dietician supplementing vitamins and minerals while trying to heal.  
    • trents
      symptoms.

      By trents · Posted

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Newly Diagnosed

      By knitty kitty · Posted

      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
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