Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Ready To Fast


DebNC84

Recommended Posts

DebNC84 Apprentice

i just want to vent - I have DH - I've managed to do real well since June of 2007 with only a couple mild outbreaks... I have now spent the last 3 weeks itching like a fiend and breaking out all over the place. something is "getting" me and I can't pin point it! I think i'm going to go on a fast - nothing but water for a few days and knock this crap out of my system - I could scream... really. ok - aaaaaaaahhhhhhhhhhhhH! did anyone hear that?

thanks for listening. :) It helps to know someone understands.

Debbie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I can understand your frustration. Those blasted little sores can be a bear and they do last for such a long time. Perhaps instead of starving yourself you could go for a bit with just naturally gluten free foods. Do check all stuff that you come into contact with. It may not be something you are eating but something that you are putting on your skin or feeding a pet. If your significant other isn't gluten free even a kiss can get you. I seemed to even have problems when using household cleaning stuff, since I have no time or inclination to check household cleaning products I learned the hard way to always wear rubber gloves when I dust or use a bathroom cleaner. Check your makeup, shampoos, any art supplies you use or household remodeling stuff. I hope this clears for you soon.

DebNC84 Apprentice
I can understand your frustration. Those blasted little sores can be a bear and they do last for such a long time. Perhaps instead of starving yourself you could go for a bit with just naturally gluten free foods. Do check all stuff that you come into contact with. It may not be something you are eating but something that you are putting on your skin or feeding a pet. If your significant other isn't gluten free even a kiss can get you. I seemed to even have problems when using household cleaning stuff, since I have no time or inclination to check household cleaning products I learned the hard way to always wear rubber gloves when I dust or use a bathroom cleaner. Check your makeup, shampoos, any art supplies you use or household remodeling stuff. I hope this clears for you soon.

Thanks for your suggestions - what happened was I got very comfortable with the fact that I was doing so well and before I knew it I was changing all kinds of products... hair (switched to Dove) - laundry detergent (bought some arm&hammer) - different brand of butter & sugar (generic butter & dixie crystals)- eating things I was pretty sure I wasn't supposed like lays potato chips -

I'm really thinking it was the new laundry detergent - but I'm not sure. So I'm going to rewash all my clothes today - I don't do a lot of cleaning... really - I hate it - so I think I would know if it was the cleaning products. but I should check just in case. since 07 when I would have a small attack - it would only last a couple days and go away- maybe I would have a small breakout but the cream I use would usually make them go away - this time it's constant and progressive - makes me think it's something I'm getting into daily - suspecting also the sugar i'm putting in my coffee - but dixie crystals is supposed to be gluten-free - I'm super sensitive and will have a flare up it seems from the slightest contamination -

I'll take your advice and go strict - no seasons - nothing processed - straight clean food and we'll see - Thanks again - I just needed someone to talk to. :)

ravenwoodglass Mentor
Thanks for your suggestions - what happened was I got very comfortable with the fact that I was doing so well and before I knew it I was changing all kinds of products... hair (switched to Dove) - laundry detergent (bought some arm&hammer) - different brand of butter & sugar (generic butter & dixie crystals)- eating things I was pretty sure I wasn't supposed like lays potato chips -

I'm really thinking it was the new laundry detergent - but I'm not sure. So I'm going to rewash all my clothes today - I don't do a lot of cleaning... really - I hate it - so I think I would know if it was the cleaning products. but I should check just in case. since 07 when I would have a small attack - it would only last a couple days and go away- maybe I would have a small breakout but the cream I use would usually make them go away - this time it's constant and progressive - makes me think it's something I'm getting into daily - suspecting also the sugar i'm putting in my coffee - but dixie crystals is supposed to be gluten-free - I'm super sensitive and will have a flare up it seems from the slightest contamination -

I'll take your advice and go strict - no seasons - nothing processed - straight clean food and we'll see - Thanks again - I just needed someone to talk to. :)

You can still have seasonings, just use McCormick single ingredient spices and you should be okay. I agree it sounds like something you are getting on a regualr basis. The Arm and Hammer for sensitive skin is for sure okay, it is the only detergent I use. You going about things the right way, it is tough with DH but eventually those pesky antibodies will leave again. Lays for me are like playing Russian Roulette, you may have found your culprit right there. What I do when I suspect something is drop it and then try it again after I am better. Sometimes that helps figure it out. I would agree to drop that brand of sugar, go with an organic even a raw sugar for a bit and then try the crystals again. Sugar should be gluten free but I seem to have had a CC issue with a large container of that brand. I thought it was great cause it came in a reusable plastic canister but I ended up giving it away. I still don't know for sure if that was it because I chose not to challenge it later. I do hope you figure it out soon.

Sometimes we do need to vent and that is perfectly okay. Feel free to PM if you need or want to.

DebNC84 Apprentice

WELL - it turned out it my Dixie Crystals sugar that was causing my skin reaction - it took a few days but when I removed that particular sugar from my daily intake (in my coffee) I got better. AMAZING! I need to be more careful and always on my guard.

ShayFL Enthusiast

So glad you figured it out!!

I too use Dove for my hair and A&H sensitive for the laundry with NO problems. :)

  • 4 weeks later...
DebNC84 Apprentice
So glad you figured it out!!

I too use Dove for my hair and A&H sensitive for the laundry with NO problems. :)

i'm not so smart after all - it wasn't the sugar. I started having issues again and thought it was something else... now I'm almost positive it was my coffee filters... duh! never thought about it. I always make sure to by bounty and charmin but I NEVER considered my filters - not one time!!

maybe because I have not had any issues for over a year and just didn't get that deep... I got a new package a few weeks back and i've used about half of them - the timeline is perfect..

going to buy a washable filter and probably a new coffee maker today - sigh.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.