Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms From Coming Off Gluten

runlikeagirl

Recommended Posts

runlikeagirl Rookie
runlikeagirl
Posted

After two weeks off of gluten I have become extremely fatigued...like going to bed at 8pm. I also have a huge appetite. Is this normal? Will it pass? Does anyone know the science behind this and what causes it? And are there any other symptoms that I need to look out for while coming off gluten?

thanks a bunch! Oh yeah, and I'm also a runner. I run about 40 miles a week right now...don't know if that affects anything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFree2 Newbie
GlutenFree2
Posted

The part about being tired is completely natural. I am not sure about the eating one though. When I was diagnosed, I barely ate anything. I had no appetite. There are a few more that you might want to know. If you are coming off of gluten and dairy at once, it is exactly like coming off of drugs. Everything seems to be louder, brighter, more annoying, all of that stuff. It is like that because the opium (spelling?) pockets in your body that are filled with gluten and dairy are being removed. Good luck.

Rya Newbie
Rya
Posted

Opium pockets? First I've heard about this...

Runlikeagirl - the only thing I might recommend is a multivitamin if you start craving gluten. Or at least taking extra care to find B vitamins in your diet, depending on your feelings toward vitamins.

irish daveyboy Community Regular
irish daveyboy
Posted
After two weeks off of gluten I have become extremely fatigued...like going to bed at 8pm. I also have a huge appetite. Is this normal? Will it pass? Does anyone know the science behind this and what causes it? And are there any other symptoms that I need to look out for while coming off gluten?

thanks a bunch! Oh yeah, and I'm also a runner. I run about 40 miles a week right now...don't know if that affects anything.

.

Hi,

here are a few links to articles that you should read,

remember, it always gets worse before it gets better.

.

Open Original Shared Link

.

Open Original Shared Link

.

Best Regards,

David

.

GlutenFree2 Newbie
GlutenFree2
Posted
Opium pockets? First I've heard about this...

Sorry about that, I guess that I said the wrong word...

ShayFL Enthusiast
ShayFL
Posted

Your symptoms are typical. Lots of fatigue (it is hard work for the body to heal damage). Energy is going to finally healing you. :) Once you reach a certain level of healing, you will have MORE energy than you had before. Extreme hunger.....your body is finally absorbing nutrients and it is making up for lost time (and needs those nutrients to facilitate healing). These are good signs and they will pass. It is different for everyone. It took me a good 6 weeks to reach that turning point.

I was even waking up in the middle of the night starving. Talk about annoying. But it did go away and I feel much better now.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,984
    • Most Online (within 30 mins)
      7,748
    MARYANN RICHARDS
    Newest Member
    MARYANN RICHARDS
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.