Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain In Arms And Legs


cherishlife

Recommended Posts

cherishlife Rookie

Does anyone have any recommendations for pain in arms and legs. I have tried a few supplements, they did not seem to help. It is almost like my skin hurts to be touched and they have an acheing sensation that makes it near impossible to grip things or sometimes walk properly. I have only been on the diet for eight months, and have just had an accidental gluten intake, been very sick and now dealing with extreme pain.

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salem Rookie

Have you seen a dr about it? It may have nothing to do with celiac. To me it sounds neurological rather than muscular (because of your skin being so sensitive.)

ravenwoodglass Mentor
Does anyone have any recommendations for pain in arms and legs. I have tried a few supplements, they did not seem to help. It is almost like my skin hurts to be touched and they have an acheing sensation that makes it near impossible to grip things or sometimes walk properly. I have only been on the diet for eight months, and have just had an accidental gluten intake, been very sick and now dealing with extreme pain.

Thank you!

If this has appeared only with the glutening it may be part of the inflammatory response in your body. It does sound like neuro impact are you taking a sublingual B12 supplement? That won't help with the pain but will help the nerves restore proper function which may help in the long run.

When I get glutened I haven't found much that will completely relieve this other than the time passing and the antibodies reclearing my system. I do find that hot baths and showers help and I take baby asprin for the inflammation. If this continues make sure you are not reglutening yourself and do keep in mind that not everything is celiac. If you continue to feel worse and don't recover in a reasonable amount of time do check with your doctor just to make sure you don't have anything else going on.

almosly Rookie

I have same pain before... when I consult my dr. tell me to take B complex vitamins especially B-12 tablets daily after mils and it was very useful indeed

RiceGuy Collaborator

I definitely agree with the sublingual B12 recommendation. I'd also recommend magnesium, and possibly zinc.

But it is also true that symptoms often become pronounced after being gluten-free a while. So it may be more a matter of recovery from the glutening.

cherishlife Rookie
I definitely agree with the sublingual B12 recommendation. I'd also recommend magnesium, and possibly zinc.

But it is also true that symptoms often become pronounced after being gluten-free a while. So it may be more a matter of recovery from the glutening.

Do you have a particular brand of supplements you recommend? I use to work in the supplement industry and I know there are a lot of products that are not very good. Thank you so much for your help.

RiceGuy Collaborator
Do you have a particular brand of supplements you recommend? I use to work in the supplement industry and I know there are a lot of products that are not very good. Thank you so much for your help.

The brand I prefer depends on the particular nutrient. The B12 is from Source Naturals, while the magnesium and zinc are from NOW Foods. You're right - there is a lot of junk out there in supplement land.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.