Ok- I Give Up!

[Gina C.]

It has been 6 months and I am closer to knowing what is wrong with me.

Starting in 3/08 I wound up in the ER with I was told was a very bad yeast infection. Took all meds after a few weeks I was right back where I started. Went to 2 different Naturopath's spent tons of $ and never got better. I then went to an ob/gyn. He said I had a nuclear yeast infection & UTI- sent me to a dermatologist ( I also have eczema) & I was given tons of meds- no better and wound up in the ER again with a reaction to the antibiotics.

I was put on Prednisone steriod for 2 months( for which I have been told my 2 subsequest doctors if I had candida (yeast) and was given Prednisone the results would have been tragic to me "putting gasoline on a fire" is what I was told most recently)- took Diflucan for 1 month. In the middle of all this I remembered that when I was put on a gluten-free diet the previous year from my Naturopath I felt really good. I did some research on the net and found out that the constipation, distended abdomen, flatulence, occasional stomach cramps, severe mood swings, lots of depression & nightmares to name a few symptoms, I have dealt with most of my life could actually be a gluten intolerance or celiac.

I took upon myself to have the enterolab test done my results are.....

Gluten Sensitivity 17 (normal= <10)

Anittissue Transglutaminase IgA 9 (normal <10)

Fecal Fat Score 744 (normal <300)

Cows Milk IgA 13 (normal<10)

HLA-DQB! Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0502

Serologic equivalent HLA-DQ 2,1 (Subtype 2,5)

*** I have no idea how to interpret these DNA results- spoke w/someone at enterolab and I am still unsure of what it means exactly- I evern tried to look it up online to no avail.

Chicken egg IgA 7 (normal <10)

Dietary Yeast IgA 6 (normal <10)

Anti-Soy IgA 23 (normal <10)

I started doing more research since I am still dealing with some issues after being off gluten since the end of May '08 and read some websites that mentioned that enterolabs results are not accurate or researched.

I then kept on looking for answers- went to another GP, to an infectious disease dr and finally last week to an allergist.

The allergist insisted to me that he can do the blood test for celiac (which is "the gold standard, just as good as a biopsy") even though I have been off gluten. After his assistant put me through hell to take my blood- He finally called me back today (even though I left him 2 messages on friday like he asked me to)- He told me that my results showed that I only have an allergy to egg whites (which of course I have been eating everyday!) and that the celiac panel was negative (<3 where normal =<5).

I once again argued the point that I have been strictly off gluten for 3 months and the test is not accurate due to all the research I have done. He stated that even though I have been without gluten for several months the antibodies are still there and would show up on the panel.

He suggested that for now, I omit the egg whites from my diet and remain gluten free and we'll see what happens. He stated towards the end of our conversation that a diagnosis is more than just tests and if I am doing well without gluten he would suggest that I remain off gluten.

I am so tired of all of these different opinions/diagnoses/guesses.... I can't go through this anymore- I feel like all doctors are saying that I am healthy and nothing is wrong with me (so are their test results) the only other thing to say otherwise is my enterolab test and my inner-self. Maybe I am crazy - I give up- I can't do this anymore!

Sorry for the long rant..... Just had to vent.

[ShayFL]

I know it can be VERY frustrating.

But I am on a Gluten, Dairy and Soy free diet and feeling great FINALLY!! I was egg free for about 4 months and just recently started eating a few here and there with no problems.

It might sound overwhelming, but a gluten-free, DF, SF and EF diet can be quite healthy and you may find that after a few months or so, you start feeling really good.

You have NOTHING to lose by trying.

[dogle]

Gina don't give up, I know how it feels not to know what one has but you have to keep on trying. It took me half my life in order to know what I had. I started to beleive that I was even hypochondriac or something, Doctors really thought I was a freak, their faces expressed that. You seem to have high levels of fat in your stool, seek for the causes of such high levels, maybe your pancreas is not secreting enzymes, maybe your gallbladder is not working properly, maybe you have an other disease that resembles celiac disease or you have celiac disease (tropical sprue, inflamatory bowel disease, etc), find a Doctor that doesn't have a lot of work so he can give you plenty of time listening to you. Don't give up, we all are here to help, even the times when you find there's nothing else to do.

[dilettantesteph]

Before I found out that I had celiac and went gluten free I got a yeast infection every time I had sex. Not too good for my relations with my husband. Things are much better now. Apparently when the guts are inflamed they are a good place for yeast to live. I wouldn't assume the gluten free diet isn't working. There are so many things that contain gluten that you wouldn't imagine, it takes months to figure them all out. As time went on, I found that lots of things that say gluten free on the label still have enough gluten in them to make me sick. As you get healther you get better at being able to tell when you accidentally ate something with gluten in it.

It is perfectly likely to get a false negative blood test after 3 months gluten free.

The DNA tests can only tell you if you don't have celiac. 30% of the population have the genes that can give you celiac.

If you have been sick a long time it will take many months before you all all the way better. Best of luck.

[Damia66]

well then this might explain all the yeast inf. I have been getting for the last year. It is starting to get rediculus , what next ?