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New In Rochester,mi

don 2

By don 2
in Introduce Yourself / Share Stuff

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don 2 Newbie
don 2
Posted
:D:D new to celiac disease. just found out i have disease would like location of gluten free stores in my area.
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AMQmom Explorer
AMQmom
Posted

We have a lot of sources near us. Welcome to the group! I am over in Ortonville, MI - not too far from you. You may want to check out the Tri-County Celiac support group at www.tccsg.com. They meet a little far from us, so I have yet to go to a meeting - I just enjoy the newsletter and the annual food fair. You have a health food store on Rochester Rd. in a shopping plaza across the street from the Target and Meijer's. There is a Starbuck's in the shopping center and I want to say that it is "Rochester Health Food". Whole Foods in Rochester is very helpful. The consierge is Aimee and she will give you a tour of the gluten free items that they have. Even the new Wal-Mart off of 59 has a gluten-free section. My favorites by you are the health food store that I can't remember the name of, the Whole Foods, Trader Joe's (across the street from Whole Foods). Both Trader Joe's and Whole Foods have print-outs of their gluten free items if you ask for them. Still read labels, though! My daughters were diagnosed earlier this year (February and April) and I have noticed it getting significantly easier even since then to shop. We have a new health food store in Clarkston that is taking requests for items to stock and our local little, tiny grocery store just opened up a 4-foot section of gluten-free items. I hope that you are pleasantly surprised at the availability! Local restaurants with GIG menus (gluten-free menus) are Outback and Caraba's. In Sterling Heights, there is an entirely gluten free restaurant that is yummy - gluten-free Cucina's. Also on Rochester Rd., south of the 59 is Noodles & Co - they cater to food allergies. Just ask for rice noodles and look at their allergen chart for what toppings/sauces that you can have. Hope this helps you a little bit....

dandelionmom Enthusiast
dandelionmom
Posted

The previous poster had great recommendations.

-I haven't tried gluten-free Cucinas yet but it sounds great Open Original Shared Link

-I highly recommend Celiac Specialties, their stuff is fabulous Open Original Shared Link

-I don't know how far Holiday Market in Royal Oak is for you but it is my favorite grocery store www.holiday-market.com/

StrongerToday Enthusiast
StrongerToday
Posted

Welcome! I also belong to the glutenfreeannarbor group on yahoo - you might have some luck there as well. I love, love, love!! gulio's itallian in Livonia. gluten-free breadsticks, pastas, deserts.... did I mention I LOVE this place? Also have had great luck at Red Robin, my RR has a seperate fry fryer for only french fries; I'd check at your local one to see if they have the same set up. Also they will wrap the burger in lettuce so it's sort of got a "bun" to it (I but I still prefer to eat it w/ fork and knife on a plate).

AMQmom Explorer
AMQmom
Posted

I forgot to mention Papa Joe's in Rochester. For their location, look them up online or phone book. I have only been there once. They had a nice selection, but were more costly than Whole Foods.

mommida Enthusiast
mommida
Posted

If you're ever out towards the Lake Orion Area, Paisano's pizza on Baldwin Road at Maybee does a gluten free pizza. You can pick up a few gluten free mixes at the Urban Gourmet next door too.

Cucina's is GREAT!

I haven't been out to the new Lifesmart Foods off of M-59 (Sterling Heights) yet, but they just rebuilt a huge place after fire destroyed the first store.

I've got to run out the door, but I know I'm forgetting a ton of places.

From Brandon myself. (in between Oxford and Ortonville)

  • 2 weeks later...
Celiacsuperman Newbie
Celiacsuperman
Posted
:D:D new to celiac disease. just found out i have disease would like location of gluten free stores in my area.

Hi, I'm new to the posting board activity but thought I'd give some insight. I'm from Clarkston and my wife and both daughters were diagnosed a year ago. Tough to get used to but we are getting it down now. Restaurants and stores are all getting better. The more we eat out and ask...the more they will hear the need for gluten-free Menus.

I agree with all the other postss. Paesanos actually delivers to us which makes sleep overs and school functions much easier. I did go to the Life Smart foods on M59 near lakeside and it is very good but a bit pricey. Also good ideas are Hillers market (big in the Farmington Hills Big Beaver and Ann Arbor areas) The one in commerce is not too far and they carry filled pasta (Ravioli, pierogi etc) from Contes Pasta out east that kids love. Also Maggianos in Troy on always has gluten-free Pasta available and they are working on lasagna. The Sous Chef will come out to personally take your order. Wing Lauks is a chinese restaraunt in Waterford on Dixie highway and its is great and the owners (Tony and Diane) really understand and take care of you.

Make sure to talk to your food service director in your school district and understand your rights. We have had great luck in Clarkston and we now have a gluten free menu at the school. Our girls can get a hot lunch every day. Makes things much easier and they don't feel left out.

Finally (for now) the Good Food Company on 15 mile in Troy (down past Somerset) is worth the drive. Tons of gluten-free choices and they will order in bulk for you.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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      how much gluten do I need to eat before blood tests?

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      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
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