Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back In England For First Time Since Gluten Free


Alex J

Recommended Posts

Alex J Apprentice

I'm English, living in the US, going back to visit for the first time since my son was diagnosed with celiac. He also has severe allergies to nuts, fish and peas. And our baby has multiple (but less severe) food allergies.

As far as I understand it, the 'gluten free' label in the UK is not very helpful as it relates to the Codex Alimentarus (surely spelled wrong) which is 200ppm or less. We aim for zero gluten - don't use products made on shared lines, no gluten in the house, etc etc. 200ppm is way too much.

So I thought that it would be OK anyway, because under EU regs gluten was listed as an allergen that had to be clearly labelled - see here, where it says it must be clearly labelled even if it the source (eg wheat) has been treated to remove it:

Open Original Shared Link

So theoretically it could say 'gluten free, contains gluten' (ha ha, or not). But on further reading I'm not sure that's the case. For instance see here - though it does say gluten must be clearly labelled, it says glucose syrup derived from wheat wouldn't have to be labelled as containing gluten:

Open Original Shared Link

Having read through the site, it seems pretty clear all four gluten containing grains have to be clearly labelled, but not that clear whether this is the case if they have been treated to remove the gluten.

Can anyone give me any suggestions on how to proceed?

Or can anyone suggest a good brand of absolutely gluten free (and nut free) bread? Or of rice milk?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
I'm English, living in the US, going back to visit for the first time since my son was diagnosed with celiac. He also has severe allergies to nuts, fish and peas. And our baby has multiple (but less severe) food allergies.

As far as I understand it, the 'gluten free' label in the UK is not very helpful as it relates to the Codex Alimentarus (surely spelled wrong) which is 200ppm or less. We aim for zero gluten - don't use products made on shared lines, no gluten in the house, etc etc. 200ppm is way too much.

So I thought that it would be OK anyway, because under EU regs gluten was listed as an allergen that had to be clearly labelled - see here, where it says it must be clearly labelled even if it the source (eg wheat) has been treated to remove it:

Open Original Shared Link

So theoretically it could say 'gluten free, contains gluten' (ha ha, or not). But on further reading I'm not sure that's the case. For instance see here - though it does say gluten must be clearly labelled, it says glucose syrup derived from wheat wouldn't have to be labelled as containing gluten:

Open Original Shared Link

Having read through the site, it seems pretty clear all four gluten containing grains have to be clearly labelled, but not that clear whether this is the case if they have been treated to remove the gluten.

Can anyone give me any suggestions on how to proceed?

Or can anyone suggest a good brand of absolutely gluten free (and nut free) bread? Or of rice milk?

I'll check out the rice milk, not something I use.

Supermarket bread you can get the DS loaves in supermarkets. They are wheat free and gluten-free and dairy free. They do contain Soya though.

As to labelling, READ EVERYTHING.....

While they should list allergens they often seem to manage to hide them.

I prefer to find a brand that states (for instance) glucose syrop from wheat and then find another prodct that doesn't or one specifies from corn/potato etc.

nikki-uk Enthusiast
I'm English, living in the US, going back to visit for the first time since my son was diagnosed with celiac. He also has severe allergies to nuts, fish and peas. And our baby has multiple (but less severe) food allergies.

As far as I understand it, the 'gluten free' label in the UK is not very helpful as it relates to the Codex Alimentarus (surely spelled wrong) which is 200ppm or less. We aim for zero gluten - don't use products made on shared lines, no gluten in the house, etc etc. 200ppm is way too much.

So I thought that it would be OK anyway, because under EU regs gluten was listed as an allergen that had to be clearly labelled - see here, where it says it must be clearly labelled even if it the source (eg wheat) has been treated to remove it:

Open Original Shared Link

So theoretically it could say 'gluten free, contains gluten' (ha ha, or not). But on further reading I'm not sure that's the case. For instance see here - though it does say gluten must be clearly labelled, it says glucose syrup derived from wheat wouldn't have to be labelled as containing gluten:

Open Original Shared Link

Having read through the site, it seems pretty clear all four gluten containing grains have to be clearly labelled, but not that clear whether this is the case if they have been treated to remove the gluten.

Can anyone give me any suggestions on how to proceed?

Or can anyone suggest a good brand of absolutely gluten free (and nut free) bread? Or of rice milk?

My best advice like Steve says in his post above is READ all labels....doNOT just rely on the allergen box, do NOT rely on 'safe for coeliacs' statement either (as can contain codex levels)

If anything in the ingredients is derived from wheat...run for the hills!!!!! :o

My recommendation for a gluten-free nut free bread would also have to be the Dietary Specials loaves available in the 'free from' shelves in most supermarkets and for rice milk my preferred is Provamel.

Don't hesitate if you have any more questions :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,005
    • Most Online (within 30 mins)
      7,748

    Peg55
    Newest Member
    Peg55
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.