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Do You Ever Just Wish

sickchick

By sickchick
in Coping with Celiac Disease

Recommended Posts

sickchick Community Regular
sickchick
Posted

You could lay down, take a year long nap, and when you wake up it's your time and your body is all healed? lol B)

I'm setting my alarm for Oct 2009. Cool! I just washed my sheets! :lol:

ni ni!

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munkee41182 Explorer
munkee41182
Posted

Good Night!!! 44 days until I get married...I got contaminated Tuesday night, had my first fitting last night with a bloated belly. SO PO'D!!!!! I'd love to sleep for the enxt 43 days......wake up, everything fit, not have a bloated belly and call it a wedding! I gues I need to wash my sheets now too!

ShayFL Enthusiast
ShayFL
Posted

Honestly, I feel every day is a blessing even if I am sick. I almost died at birth, drowned but was revived at 9, almost died at 13 with a ruptured appendix and survived a horrible car accident. Clearly I have a purpose here. :) I hate being sick. But at my lowest and sickest point I asked God to help me be able to mother my daughter (she is now 12) and I feel that getting that privilege is worth staying positive. I dont want to miss a year of teaching her and watching her grow. I also wouldnt want to miss a year of snuggling with my husband every night and playing with my doggies everyday.

sickchick Community Regular
sickchick
Posted
  • Author

Jami... you must be a little frazzled to say the least :lol:

WOW Shay that is pretty awesome :):):)

lovelove

roxie Contributor
roxie
Posted

Your post reminded me of a dream I had not too long ago. I dreamed that I jumped out of an airplane and started floating through the beautiful star-lit sky. I kept saying, "I'm Free - I'm Free!" I was thinking of NOTHING but floating. I feel like Celiac Disease has consumed my life. I want to be free again!!

Chrissyb Enthusiast
Chrissyb
Posted

Yes there are days I feel like that and today was one of them. I deal with other illnesses also so today I had to get a 4 hour iv infusion for one and the nurse had a hard time finding the vain and since I have to do it again tomorrow she just let the cath in and it is in the top of my hand not a fun place. And to think I get to do this every month oh well such is life and it could be worse. I have many many blessing and I remember to thank God for them each day.

sickchick Community Regular
sickchick
Posted
  • Author

Oh roxie, I wish I could give you a big hug :D

OWWW Chrissy that sounds very painful... :huh:

hang in there everybody.

we are ALL blessings! xxx :)

I was just incredibly exhausted today and felt like if I laid down to sleep I'd sleep for a year at least ;)

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munkee41182 Explorer
munkee41182
Posted

I'm not too frazzled....I just had to tell the seamstress not to take in the top yet because of my belly. She actually offered to have me come back tomorrow (Saturday) for the fitting, which she usually doesn't do because she works out of her house. So I took her up on the offer and have been eating very plain rice, chicken and plain veggies just to get the belly down (which it has).

Besides, I got everything done about 10 months ago because I know how I am (I'm very uptight) and didn't want to be too frazzled around this time. Just waiting for stupid RSVP's so I can do the place cards and need to find wrapping paper to wrap the bridal party's gifts in. The hardest part now, trying to not get contaminated from now until October 26th (when we come back from our honeymoon). That's what I'm most freeked out about! One week in Antigua...I hold my fiance to throw me on the beach and make sure that I'm stocked with Lara bars and fresh fruit and hopefully I'll come home not ill!

And I agree, we're all blessings. Shay, your picture should be of a cat, you have so many lives!!!!

sickchick Community Regular
sickchick
Posted
  • Author

Good for you Sweetie! I hope your wedding is truly blissful:):):)

roxie Contributor
roxie
Posted

Collette,

You sound so free spirited and Happy/Positive!!! I envy you!!! Roxie

sickchick Community Regular
sickchick
Posted
  • Author

wow! that is incredibly sweet, roxie

and another hug for you :)

purple Community Regular
purple
Posted
Honestly, I feel every day is a blessing even if I am sick. I almost died at birth, drowned but was revived at 9, almost died at 13 with a ruptured appendix and survived a horrible car accident. Clearly I have a purpose here. :) I hate being sick. But at my lowest and sickest point I asked God to help me be able to mother my daughter (she is now 12) and I feel that getting that privilege is worth staying positive. I dont want to miss a year of teaching her and watching her grow. I also wouldnt want to miss a year of snuggling with my husband every night and playing with my doggies everyday.

AMEN!

purple Community Regular
purple
Posted

I live in a town, so small there are only 5 or 6 stop signs and no stop lites. I shop in the big city 1 hour away. I am not a celiac. When I go to town I think of all you people that are gluten-free. I am mostly gluten-free. I drive past all the fast food places (none in our town) and other restaurants, thinking about how hard it is for you guys. I shop quickly down some of the store aisles b/c there is nothing there "we" can buy. I am thankful for all I have learned on here from you great teachers! My dd is gluten-free and the other dd (19/17)is trying to be and dairy/egg free. Celiacs are very strong even when the body is weak. If you asked a gluten eating person to just give it up...they couldn't, most anyway. I am so proud of everyone here!

My heart is heavy for all the children. They go through so much. Babies thru college kids. So hard. And moms.

I went shopping last night and chose to eat a banana and some chips instead of fast food. I realize how hard it is except I don't know your physical pain. Not only physical but emotional. The list goes on. Friends, family, relatives, co-workers, waiters, etc., don't get it b/c they don't walk in your shoes.

We are blessed b/c we are eating healthier. Gluten eaters don't know what all their food is doing to their bodies.

Just peek into other peoples carts. Picture the products as boxes and bags of chemicals with the green Mr. Yuck sticker on them. Poison. Toxic. Early death. Time bomb waiting to explode. We are blessed.

Think of starving kids that may only get a bowl of rice for the day. We are blessed. Think of concentration camp prisoners that only got bread and watery parsnip soup. Sickly bodies and in prison, losing all they had and knew. We are blessed.

I and my family are eating more healthy. We are blessed.

I have prayed for many of you. You are blessed.

I want to quote a bible verse.

Revelation 21:4

And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain; for the former things are passed away.

My prayer is that all of you will be included in this group called: "their"

My God's peace with you all. I love you guys!!! :)

Chrissyb Enthusiast
Chrissyb
Posted

Wow thank you purple, you brought tears to my eyes, I love that verse. I truly am blessed and I consider it a blessing to find out that I have celiac disease and I am no longer poisioning my body. Sometimes I miss certian foods but it passes and I am learning how to cook things that are better tasting. (still looking for fluffy yummy pancakes :lol: ).

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    • trents
      how much gluten do I need to eat before blood tests?

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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