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Crohn's & Celiac?


powerbraid

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powerbraid Rookie

Hi - I was diagnosed with Celiac 1 year ago. The gluten-free diet isn't seeming to totally clear up the diarreha and I am having a "tight" feeling in my lower right abdomen. From what I can figure out, where the illium is?

Does anyone else have both Crohn's and Celiac, and if so, what were your symptoms.

My Mom has Celiac, and I have an Uncle with Crohn's, so it does run in the family.

Thanks for any help!


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ShayFL Enthusiast

Have you tried cutting out dairy and soy too? These are problematic for A LOT of celiacs.

powerbraid Rookie
Have you tried cutting out dairy and soy too? These are problematic for A LOT of celiacs.

yeah, I have. :( Dairy doesn't bother me. In fact, yogurt and kefir are great for my tummy! But, yeah, soy I definitely have problems with and I don't eat it at all....

mftnchn Explorer

Do you know if you are carbohydrate sensitive? Maybe you haven't been able to heal enough to start making the enzymes to digest carbs.

That's been true for me, even after 15 mo gluten-free and 11 months SF. Now I am doing SCD and am responding better.

SCD is supposed to be good for both Crohns and celiac.

ShayFL Enthusiast

Im doing well with SCD too. It is worth looking into.

powerbraid Rookie

I think I am sensitive to carbs too.

After I was diagnosed and went off gluten, all of a sudden, I couldn't handle rice/corn/quinoa etc....

I just recently have reintroduced dairy (only in the form of goat's milk yogurt and kefir) and seem to be doing ok with buckwheat and quinoa.

It's extremely frustrating! :(

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    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
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