Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Fmla?


gfsweetness

Recommended Posts

gfsweetness Newbie

Hi everyone,

I have browsed the boards here at the gluten-free forum for several years and have just not ever gotten around to joining. I am currently having some issues that I would really like some input on, though. My situation is one that I'm sure a lot of you can identify with. Four years ago, I began having a multitude of problems- dizziness, extreme fatigue, tremors, "brain fog," short-term memory problems, mood swings, insomnia, severe stomach pain, nausea, D., C., and others. I had a brain MRI, heart monitor, glucose test, various bloodwork and everything came back negative. I found out that my aunt has celiac disease and I put myself on a gluten-free diet. Within 2 weeks, I felt better than I ever knew it was possible to feel! I went back to my doctor after about 2 months and he had the blood test run. It came back negative and his admonition to me was, "Well, the blood test came back negative but you seem to be doing better so just keep eating gluten-free." By that time, I had piles of medical bills and, being a single woman living on my own making about 20k a year, I was not only sick of all the testing but I also couldn't afford to have any more tests run. I have been eating gluten-free ever since and most of my symptoms have disappeared.

I have moved several times in the past several years and returned to my home state 2 years ago. The doctor that had run all of the previous tests was no longer in practice and I did not have health insurance again until about a year ago (I was off work to care for my mom, who has Stage IV breast cancer, so I have not bothered to find another primary care physician. I am very careful about my diet and adhere to a strict gluten-free diet, but as we all know there are going to be mistakes at some point. Herein lies the problem: I work for a large company and am allotted 17 paid days off per year (14 vacation & 3 sick). I have used 14+ of those days sick with my Celiac. When I have an accidental ingestion of gluten, I am incapacitated for a minimum of 4 days (migraines, vomiting, extreme dizziness & weakness- I can barely move, much less go to work). As careful as I am, I have had about 4 "incidents" over the past year. Because I work for a large company, the corporate policy states that I need to be written up and if I miss any more time, I will be terminated from employment. My supervisor suggested that I request intermittent FMLA for the time off because she knows that I work hard and am not calling in just to blow off work. My problem is that I have not seen a physician until this month. I know I have Celiac and I know why I get sick- why should I run to the doctor every time I accidentally ingest gluten? That simply gets too costly.

I am now facing another round of testing because I've begun the process of re-introducing gluten into my diet so that I can get the biopsy and have the diagnosis set in stone for this very reason (and also because I strongly suspect some other immune deficiencies). This means that I will be missing even more work for doctor's appointments, testing, etc. My physician would not sign any FMLA paperwork because I am a new patient and she was worried about legal ramifications. Has anyone else gone through a similar situation? If so, what are some things that I can do to protect myself? How can I guarantee the safety of my job? What are some ways of getting around the clause regarding the "ongoing supervision of a physician" clause in the FMLA? Does anyone have any suggestions for me?

I know this was a long post. Thanks for reading all of it! I am looking forward to hearing your response.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

FLMA generally is available when you have a serious health condition that removes you from work for more than 3 consecutive days. I'm not sure that intermittent doctor

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,552
    • Most Online (within 30 mins)
      7,748

    Bethann Sheridan
    Newest Member
    Bethann Sheridan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
×
×
  • Create New...