Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chemical Sensitivities


mslee

Recommended Posts

mslee Apprentice

For those of you with Chemical Sensitivities how did you narrow it down to a specific chemical or additive? Is There some sort of testing for this or is it learned through trial and error???

Thanks!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

My allergist did testing but I don't think all allergists do.

Michi8 Contributor

I had patch testing done through my dermatologist. Found out that I'm allergic to potassium dichloride (chromium), nickel, cobalt...which are found in many products such as adhesives, cosmetics & hair/body products, paints, cements, etc. Also allergic to neomycin.

Michelle

For those of you with Chemical Sensitivities how did you narrow it down to a specific chemical or additive? Is There some sort of testing for this or is it learned through trial and error???

Thanks!!!

Lisa16 Collaborator

I had a "scratch test" done long ago and the only part that came back positive was the histamine control. I think it was worthless. But somewhere I read that it tests for only one type of allergies (acquired maybe?)

For food sensitivities, I have a strong immediate reaction in the form of a red rash that creeps up my neck and outlines my lips and bursts on my face to MSG, sulfites/ sulfates (these also make my joints swell) and nitrites/ nitrates. That is pretty easy to see/ deduce. Feed me a piece of bologna with nitrites in it and I will "blotch out" in less than 20 minutes. Same with wine or dried fruits preserved qith sulfates. And msg? Call the fire squad! I look like I got a really bad sunburn.

But the gluten took me years to figure out. In fact, I never really did. All I knew was that it was either everything making me sick or something so pervasive that I had no chance at figuring it out. I even suspected my morning tea at the lowest point. And I would eat spaghetti and get sick and think-- Oh, it is the tomato sauce. Ha! And I would quit eating tomatoes. And towards the end I was only eating "simple starches" and it nearly killed me. How stupid was I? But that is what conventional wisdom says is the easiest to digest. The headaches alone were the most painful things I have ever experienced and I know pain well.

For chemicals in things like shampoo, deoderants, lotions, creams and the like it can take the form of anything from a hot red, itchy rash to an outbreak of actual blisters. Sometimes whatever is doing it is a mystery. Sometimes I think it is the alcohol or the fragrance or some plant extracts. For sure I know SLS will do this to me. Once some pistachio foot cream really zapped me and it was organic (from desert essence!) Quite frequently (and ironically) hypo-allergenic creams get me. I have given up trying to understand it and just avoid stuff that is new. And I try something new with extreme caution. I try to keep track of suspicious ingreedients. It is my final frontier.

Good luck. Try to keep a record. And be careful.

Michi8 Contributor

Just an FYI... patch testing is different from scratch/skin prick testing. Many samples of allergens (typically different items than for food testing...such as metals, chemical ingredients, etc) are placed on your back (can range from 25 samples to over 100), covered up and left for a couple of days. They are then checked, recovered and left for another day or two. Not being able to bathe your back for a few days isn't fun, but the test can reveal some good information.

Michelle

I had patch testing done through my dermatologist. Found out that I'm allergic to potassium dichloride (chromium), nickel, cobalt...which are found in many products such as adhesives, cosmetics & hair/body products, paints, cements, etc. Also allergic to neomycin.

Michelle

mslee Apprentice

Thank You Guys!

Will be keeping a record of what bothers me...

I am going into the Allergist tomorrow, will post how it goes

:)

mslee Apprentice

:huh: oh that was just the preliminary let me take your cash and talk about it apt.

testing tomorrow am, will go from there


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mslee Apprentice

Yes he started with food allergies 75 tested

slight allergic responses to

soy, rice, corn, milk,coconut there were others but those were the worse

he said he could do patch testing, but again he is an old fashioned doc and didn't place much importance on it (the $ holds me back for now)

best bet is probably to avoid as much chemicals as possible.

he did say having any sort of allergy issues automatically makes you more sensitive to dyes, perfumes, chemical smells.

Thanks for the input, now I know about the arsenic hair test and can bring these issues up whenever I get into an alternative type Dr.

Thanks Again!!! :D

Lisa16 Collaborator

MsLee--

One of the greatest things I ever did was to see a dietitian with a list of allergies in hand as well as about three weeks of food diaries.

I am now pretty much down to down to fresh fruits and veggies, fresh chicken and minimally packaged/processed shrimp. It is a huge amount of work at first, but I make my own sauces from fresh ingredients whenever I can. Organic when possible.

I but my flours (Bob's usually), my peanut butter, pamela's pancake mix, hellman's mayo, heinz ketchup and mustard. gluten-free soy sauce and fish sauce are staples, as well as harissa (mustapha's is gluten-free.) I also buy my spices carefully, as well as oils and baking ingredients like cream of tartar, baking soda and vanilla. I try to get the simplest list of ingredients possible. I avoid as many chemicals as I can.

For toiletries, I use a mix of products from Tom's, LUSH, sundari, korres, caudalie, burt's bees and dessert essence. I like 100% pure cosmetics (online.) For laundry detergent I go with all free and clear or arm and hammer or seventh generation. I cop to using NARS mascara, but that is the only one I have found so far that is gluten-free.

Good luck.

Lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,565
    • Most Online (within 30 mins)
      7,748

    Gma Marsh
    Newest Member
    Gma Marsh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.