Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain In Lower Left Rib Area

Pain in Amanda

Recommended Posts

Pain in Amanda Newbie
Pain in Amanda
Posted

Just got back from another emergencey room visit, with nothing but laxatives and nausea mediation. Pain is unbearable. It originated 5 years ago in my lower left rib cage. Misgianosed since then I believe because nothing has helped the pain.

I take 3 Oxicotins and 3 Lortab 10's a day for severe nerve damage, but this does not touch the pain. I am going in for a neurostimulator trial on Wednesday and they are thinking of putting a lead to my ribs to help with unexplained pain.

I am on Plaquinil for several forms of arthritus, I also have osteoperosis. I have had many pain blocks and nothing is helping. I have been disabled for one year now and can barely ride in a car.

I have had one pain free experiance. I was in the hospital for over a month and on a gluten free diet. I thought it was because I was not using my "rib muscles". I have a new GI consult Monday. I have been diagnosed celiac from a biobpsy I do not have a blockage and only "poo" a couple times a month.

Could this be all related?

Thank you in advance

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

You say you are a diagnosed celiac. Are you currently on a gluten-free diet (I would assume so, especially as this helped you before)? Constipation (or diarrhea), osteoporosis, arthritis are frequently associated with celiac disease. Other posters have described the kind of pain you are having (run a google search). I would suspect that your problems are caused by celiac disease. Good luck with your Gi appointment - I hope you get a good doctor. Also, good luck for relief of your pain.

plantime Contributor
plantime
Posted

The pain you are describing is what I get when I have been glutened. Nothing stops it except time. Even after the worst of the pain is gone, the area is still very sensitive to pressure. Make extra sure that you are not getting gluten anywhere. It takes 6 to 8 weeks for my pain to stop when it happens.

Pain in Amanda Newbie
Pain in Amanda
Posted
  • Author

I am embarresed to say, I just put the two and two together today. Never associated the pain with my celiac. Have not been on a gluten-free diet, but started back again today. Never really gave it a chance. Did not realize how serious this condition is.

I thought it was the bed rest that helped and not the diet at the hospital. Looking back over my life all of my health and emotional problems, down to lack of memory can be linked to this. I feel as if I have found the magic pill.

Thank you for your time to reply. I really needed to hear from someone to know if this could all be possible. Seems unimaginable that Gluten can destroy your life.

Happy to have a second chance.

Best wishes to you and your health.

Pain in Amanda Newbie
Pain in Amanda
Posted
  • Author
The pain you are describing is what I get when I have been glutened. Nothing stops it except time. Even after the worst of the pain is gone, the area is still very sensitive to pressure. Make extra sure that you are not getting gluten anywhere. It takes 6 to 8 weeks for my pain to stop when it happens.

I am so sorry to hear you feel my pain. How did you finally figure it out? I was diagnosed at 34 and wish I could start over gluten-free.

I have been reading about trouble gluton spots. Is this a common one?

Can a crumb cause your pain to return for months?

plantime Contributor
plantime
Posted

I was diagnosed in 2004. I don't get pain for months from a crumb anymore, but it does last for two days. I have found that doing the arms-over-head-lean-to-the-right stretches help relieve the pain. I don't know why or how it helps me, but it does.

For the longest time, I thought it was being caused by an ulcer or dairy. I had quit eating all dairy, but still had the awful pain. Then I read about celiac in an issue of Woman's Day, and tried eliminating gluten. After a couple of months glutenfree, the pain went away. Now it only comes back when I gluten myself.

Try eliminating all gluten for a couple of months and see if it goes away. Treat yourself nicely, and remember that gluten hides in many places, and it is up to you to look for it.

Pain in Amanda Newbie
Pain in Amanda
Posted
  • Author
I was diagnosed in 2004. I don't get pain for months from a crumb anymore, but it does last for two days. I have found that doing the arms-over-head-lean-to-the-right stretches help relieve the pain. I don't know why or how it helps me, but it does.

For the longest time, I thought it was being caused by an ulcer or dairy. I had quit eating all dairy, but still had the awful pain. Then I read about celiac in an issue of Woman's Day, and tried eliminating gluten. After a couple of months glutenfree, the pain went away. Now it only comes back when I gluten myself.

Try eliminating all gluten for a couple of months and see if it goes away. Treat yourself nicely, and remember that gluten hides in many places, and it is up to you to look for it.

Dessa ~

Is your pain in your left or right rib cage? I'm scared to stretch the wrong way as all movements aggrivate my pain. I am almost wheelchair bound 100% of the time due to the pain. Unable to work for a year now.

Treat yourself nicely, and remember that gluten hides in many places, and it is up to you to look for it.

Another night unable to sleep and reading your last statement has given me a peace I truely needed. I am boiling eggs now to eat and just finished drinking half a jar of pickle juice. Sound familiar?

Did you think you were crazy? I am so proud of you for connecting the pain with celiac from a magazine article. Life changing I am sure.

Up to me to look for it...any other places your having problems? Depression and anxiety have been huge issues in my life and nothing has ever helped. My memory is so poor I can't remember family members names of my boyfriends that I have known for 8 years. The more I research the more I find things that gluten has caused.

Thank you again for your reply. I do not feel completely alone now.

Blessing to you and yours,

Amanda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Generic Apprentice
Generic
Posted

I have been having pain in my left lower rib cage and it isn't from my celiac. (I get that pain under my belly button).

It started out with gallstones, then a stone in my bile duct. After 9 months of severe pain they figured out that I have

a 8 mm kidney stone. They figured this out by doing a full torso cat scan. I never presented with the classic pain for either problem. Just another option to add to the puzzle if the gluten-free diet doesn't clear up all your pain.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.