Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If This Is Celiac


Jodylynn

Recommended Posts

Jodylynn Newbie

Hi! Im a thirty six year old mother of 4 children and live a pretty hectic life. For many years starting after the birth of my first son ( I was 22) I have been coping with progressiveley worsening diahrea and cramping, gas and bloating. Over the last two years it has become very bad and I went to my family doctor and she said it was spastic colon and it was probably from stress. I dont think that this is what it is. I have hypothyroid and am under weight. I feel like my body cant be absorbing anything because it has been so long since I have had a regular bowel movement. I am fatigued all the time even though Im on medication for my thyroid (diagnosed at 18 yrs old). I have been under alot of stress the past two years but I dont think that is why . I can pretty much eat what I want and not put on weight because it seems to Go right through me and as soon as I eat anything my stomach makes awful bear like growling noises almost immediatly. I am afraid that I am damaging my body by not taking it further and getting another opinion. The doctor didnt take blood or do tests or anything. Am I just a worry wart or could this be Celiac disease? I have considered trying a gluten free diet to see if it helps. How long would it take to start seeing results? I appreciate any advise or opinions on this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor

Hi there!

Your symptoms definitely give you reason to consider Celiac. You should ask your doctor for the bloodwork and biopsy and you must do so BEFORE starting the gluten free diet because it will wreck the validity of the results.

Also, the fact that your symptoms started post pregnancy is common, lots of people experience a 'trigger' (such as pregnancy, stress, surgery) and then their bodies start to react.

Don't you just want to say to your doctor, "I'm stressed because I feel terrible?!" Don't let your doctor disregard your symptoms because of 'stress', atleast not before exploring other possibilities.

I hope that helps! Good luck :)

-Kim

Lisa Mentor

Hi Jody and welcome to this forum!

Celiac Disease can have up to 200 symptoms and yours certainly fits. It is important to know that if you should pursue testing, that you must remain on a gluten diet. Celiac can be diagnoses through a blood test, endoscopy exam and biopsy and positive dietary response.

If you elect to try the positive dietary response, it may indicate that you have a gluten intolerance, a gluten allergy or Celiac Disease. The others test are more specific toward Celiac Disease.

Many people here are self diagnosed and feel quite comfortable with that choice. Others feel that they need a more specific diagnosis for themselves and their family since it is genetically linked.

The diet is rather complicated in the beginning, but it can be done. With time and experience, it will become second nature. There are a lot of people here who can help you out with that, should you decide this is the avenue you wish to take.

If you would like to be tested, this is what you should ask you Doctor to order:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Good luck and feel free to ask away.

ShayFL Enthusiast

You and me could be exact twins except I only have 1 child. My pregnancy triggered mine and I was so miserable, I didnt want anymore children. gluten-free has helped me tremendously.

Ask to be tested. And if it is NEG (like mine were) give the gluten-free diet a try. It only took me 2 weeks to see results (no migraines) and about 6 weeks to see changes in my BM's. And I keep getting better everyday.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.