Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pediatric Gastro.


Trust Birth

Recommended Posts

Trust Birth Rookie

We got my son a referral to a Pediatric Gastro. My GP says it's obvious at the very least my son has a gluten intolerance but could quite possibly have celiac. I just want to make sure what the full celiac panel is and how much I have to gluten him for the test. Can anyone give me reliable information or point me in the right direction?

Thanks

Cinthia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Some say that the diet should be pretty glutened everyday for a good three months. 3 or so servings of a gluten food a day. Depending on his age he may get a false negative anyway (common in children under 6).

Here is the panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

You can always try a gluten-free diet to see if you get a POS result.

Trust Birth Rookie

Thanks,

I am certain he has a gluten intolerance as we've had him off gluten for a few months now. I am just concerned he may have something else going on like colitis or chron's. But for sure the gluten is a problem, as is; sugar, dairy, soy, and corn. I didn't know about the false negative in children under 6. WOW 3 or 4 months! I'm not sure if I want to do that! He's a very sick little boy when on gluten. I thought a couple of weeks for the test.....

*sigh* Now I'm not so sure I want to go through this. His IBS is SO very bad when on gluten, as is the DH. He looks so healthy now but every now and again has a problem with IBS. I just get worried there is an underlying cause I'm missing. kwim?

The GP is very supportive. He told me even if everything comes back negative I need to keep him off the things he's been reacting to in his diet, as obviously it's a problem. He sent him for a full blood work up and urinalysis. So we'll see what that yields. I wanted his sugar tested to be sure he doesn't have JD.

Thanks for all the info!

ShayFL Enthusiast
I am certain he has a gluten intolerance as we've had him off gluten for a few months now.

I would be shocked if you could get a POS now. He has been gluten-free too long. If it were me and mine, I wouldnt go through the Celiac tests. Just me. You have to do what feels right for you and yours.

The periodic IBS could be due to CC. It happens. Even when you are so very careful. Manufacturers change formulations, toothpaste, lotions, shampoo, dog food. CC can show up in the least expected places. :(

hallowedb Newbie

Can an infant be tested with a cheek swab to see if he/she even carries the gene for the celiac? I've asked my grandson's Dr. about it, but never really get a good answer. I know that adults and children can be tested this way, but not sure about infants.

Mother of Jibril Enthusiast

Yes... babies can be tested with a cheek swab. Depending on my results from Enterolab, I might do this with my three-year-old and seven-month-old. The instructions tell you how to do it with young children.

ek327 Newbie

If the DH breaks out quickly back on gluten, you could have a derm do a skin biopsy to "prove" the diagnosis without having to be on the gluten long enough for GI to be damaged.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.