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Hashimoto's, Vitamin D3 And Gluten Intolerance

JWSoFla

By JWSoFla
in Related Issues & Disorders

Recommended Posts

JWSoFla Newbie
JWSoFla
Posted

I was just told by my health pratitioner today that my low thyroid hormones require steady doses of Vit D3 and that I should stay off gluten. I have studied celiac disease for the past 20 yrs before it was suspected in many autism cases and back then participated in several diets from Macrobiotic to Natural Hygiene and realized the benefits. In the past 4 yrs however I slid down the rabbit hole and am now concerned about an underactive thyroid that could be related to Gluten sensitivity and that the D3 can help preserve what's left of my thyroid. I never connected the gluten and thryoid. Anyone else hear of this and, if so, am I stating it correctly? PS: I'm a new member today. JWSoFla

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ShayFL Enthusiast
ShayFL
Posted

We see a lot of similarities among Celiacs/Gluten Intolerant individuals.

Hashimotos/Thyroid Disease

Low Vit D

Low Iron/Ferritin

Low B12

And others.......

still tiredofdoctors Rookie
still tiredofdoctors
Posted

JWSoFla - welcome to the board. Even though my "history" shows very few posts, I am an "old-timer"! Just couldn't get my password . . . That being said

Given that Celiac disease is an autoimmune disease, it is not uncommon having concommitant autoimmune diseases. Hashimoto's Thyroiditis is very common with Celiacs.

I was treated for years for a "multinodular nontoxic goiter" . . . I had to change endocrinologists due to insurance constraints. Even though the the right lobe was 2 1/2 x the normal size and the left was 3, the physician to whom I was referred did not believe in using Synthroid to control the condition. He discontinued the medication and I remained off it for ten months. I ended up hospitalized and in extremely poor condition.

I returned to my prior endocrinologist at the urging of the hospitalist treating me at the time. She then tested me and it was determined that I did, in fact, have Hashimoto's. Because of this, despite Vitamin D3 treament, my thyroid continued to grow at a rapid rate. It actually grew inward, with the left lobe wrapping around my trachea and extending in the front down under my breastbone.

At one point, my endocrinologist asked, "How would you feel about having your thyroid removed?" Given that I had seen her previously for years and this had never come up, I said, "Well, we really haven't talked about it before." She said she just didn't like how it felt . . .

The otolaryngologist I saw didn't agree with her suggestion and wanted me to wait three months. Within that time frame, I had a follow-up appointment with the endocrinologist. She was trying out an ultrasound machine she was considering buying, and asked if I would allow her to use me as a "guinea pig" and obtain images. I readily agreed.

She found that the cysts had become hemorraghic - a precursor to thyroid cancer. The biopsy after rapid removal of my thyroid indicated that it was consistent with long-term Hashimoto's and was indeed pre-cancerous.

The reason for this very long post is to confirm your suspicion that gluten-sensitivity and/or Celiac can very much be concommitant with Hashimoto's. It is important to continue monitoring your TSH, T3 and T4 levels, along with Thyroid antibody levels in addition to monitoring your D3 level.

It may be well worth your time and money to have at minimum your antigliadin antibody level checked. If you have insurance coverage that will underwrite the costs, you may then want to ask that your antitransglutaminase and antiendomysial antibody levels be checked as well.

I wish you the very best during this endeavor - the advice I could best give you is that maintaining consistent documentation and having tenacity will be your strongest mechanisms with regard to managing your conditions.

ShayFL Enthusiast
ShayFL
Posted

My Mom's thyroid panel came back "normal" with NO antibodies just a few weeks before they removed her thyroid (after a scan showed problems). She had SEVERE Hashi's and thyroid cancer. The doctor said the reason she had NEG antibodies is that there wasnt much tissue left for her body to attack and she had very low total IgA. The blood tests dont always tell the whole story. My Mom could very likely be dead if they had gone by blood alone.

Get an ultrasound of your thyroid too.

LIS-Guy Rookie
LIS-Guy
Posted
We see a lot of similarities among Celiacs/Gluten Intolerant individuals.

Hashimotos/Thyroid Disease

Low Vit D

Low Iron/Ferritin

Low B12

And others.......

Now that's very interesting to hear, Shay. As it so happens, my Vitamin D and B12 are severely deficient (as measured by blood test last spring), and my doc says I'm starting to show signs of Hashimoto's, which runs in my family. The more I read on this board, the more it seems certain that I am Celiac.

LIS

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      High DGP-A with normal IGA

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    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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