Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! I Screwed Up My Life.


jsbs11

Recommended Posts

jsbs11 Newbie

Sorry for the dramatic title but I really feel like I screwed up. The irritability, laziness, depression, anxiety and ofcourse pain that this disease causes (stealth like) is indescribable. Marriage, business, friends...I've almost lost everything.

I thought my problem was candida and that did help, but I cheated on the candida diet with one type of food group---certain grains, cereal, and yeast free bread. Little did I know that I was injecting the gluten poison in my body as I tried so hard to live up to the other restriction of a candida free diet.

Well atleast I know now. I have a couple of questions right now and I am sure more to come. Is Psyllium whole husk allowed?

Is brown rice okay or should I switch back to white rice?

I really enjoy millet, can I keep eating it ?(I cook it in a skillet before boiling)

I checked my suppliments (multi, enzyme, fish oil) and they are gluten free. Is there any supplements you recommend to heal the sm intestines?

Thank all of you so much.

Joe


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sweetie101282 Apprentice

Wow! That was a dramatic title, but it got my attention so hey, it worked! The strain celiac disease can put on you and your family can be so overwhelming, even before you are diagnosed. I don't know your situation, but I do know that many of us have had to overcome huge relationship struggles because of the celiac disease. Believe me, you are not alone. Feel free to vent when you need to and ask as many questions as you want.

To answer a couple of the ones you posted:

Brown and white rice are both safe for celiacs as long as you are buying pure rice. None of those rice mixes like Zatarains or Side Dish packets are allowed.

Some online research I have done has said that taking glutamine-L as a supplement can help restore intestinal damage. Despite sounding like the word gluten, I checked a bottle at the health store and it is gluten free. Please talk to your gastro doc. before starting this because, as many have said, I'm not a doctor but I play one online! :D

Good luck getting answers to the rest of your questions!

Amy

KaitiUSA Enthusiast

I also have candida of the small intestine and I am on Nystatin for it.

Brown rice and white rice are fine for celiacs. Millet and Psyllium are ok as well.

Probiotics are very important and would highly recommend them if you are not on them. Probiotic bacteria favorably alter the intestinal microflora balance, inhibit the growth of harmful bacteria, promote good digestion, boost immune function, and increase resistance to infection.

I take enzymes,probiotics,multi vitamin(liquid), b complex, sublingual b12, cod liver oil, etc.

The most important thing is to build your body up and give it the proper nutrients and it will heal itself. I can't tell you that something will work because every body is different and something that may have worked for me might not work for everyone. By taking these supplements that really helped me get back to where I need to be.

Open Original Shared Link

This link is to this sites safe list for celiacs that may help you out a bit

Open Original Shared Link

This link is to this sites forbidden list for celiacs which is also a good guideline that would be useful

Good luck with everything and hang in there. :D

It gets easier

ianm Apprentice

We've all been there. The medical establishment in my experience is basically clueless about this disease but the members of this group are not. This disease really messed up my life too. I could go on and on about how it wasted the first 36 years of my life but that would be pointless. I have been gluten-free for a year and it has been a great year. It takes time but it is worth it. Yes you do have to make some sacrifices but consider the alternative.

Ianm

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    2. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Scott Adams replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,261
    • Most Online (within 30 mins)
      7,748

    bookcat501
    Newest Member
    bookcat501
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.