18 Month Old Just Tested

[Avasmom12]

Hi,

My 18 month old was just tested yesterday for celiac disease. They did the Celiac Panel. If it is negative,( I havent gotton the test results back yet.) How accurate are the results? I have read about false negatives. At what age are they more conclusive? The Symptoms she is having... MILK Allergy and Bloated belly. And I just got diagnosed as well, about 1 month ago. That's why the Doc wanted to test her for it. Thanks for any feedback:)

[Jules]

Hi

My daughter was tested for celiac disease several times in her blood work and was negative all 4 times they did it. She did end up havng biopsies done and it shows early warning signs of it.....

Hope this helps. I still question this diagnosis and am waiting for another biopsy to confirm that she is getting better after 6 months of no glutten...

[celiac-mommy]

Our dd was 4 when she was tested, the only noticable symptoms were bloated belly and severe cramps after eating a high gluten meal, her blood tests were positive and her biopsy was visually positive (pathology confirmed), BUT, our son was tested at 2yo, he had no symptoms other than he was growing at a very slow rate maintaining 10% in height and weight. At 2.5yo he developed chronic D multiple times a day for almost a month. I took him off gluten without talking to the dr 1st and he responded very well. We put him back on gluten for almost 2 weeks before the biopsy, since he was only off gluten for 2-3weeks. Visually the dr said it was suspect, but the positive response he had before was enough for me and he was gluten-free from that day on. Turns out, the biopsy was negative but our GI diagnosed him from a "significantly positive dietary response" we may revisit the sitation later if he's sneaking gluten at school-re-do the tests.

So, I guess my point is, just because the tests come back negative, doesn't necessarily mean there isn't a problem.

[bear6954]

My two year old was tested by blood 2 times and they both came back negative. He had the diaherra, projectile vomiting, bloated belly, short stature, abnormal liver function tests, and failure to thrive. The dna test came back positive. We had a bioposy done and it was very positive. I think that the blood work is not accurate for children under 2 yrs old. Hope this helps.

[Avasmom12]

Hi,

Thank you for your replies. Your info was all very helpful. I am bringing my daughter back to the Dr. tomorrow for a routine vaccination. Hopefully they will have the test results back by then. (They drew the blood on Monday). If the results are negative then I will probably do the gene test, Since I have celiac disease.Iam just concerned with how other family members are going to react to this. They don't know that the results could be negative and she "could" still have the disease. (Please don't think that I am hoping she has this) I just want to make sure she is healthy.

Back to the other family members. They still have a hard time with the her milk allergy ( Her bottom gets really red and the poo is this orangy color and she screams when we wipe her) But they are upset when they can't give her Ice cream. So I can only imagine how they will get if she can't have gluten. The "they" I am talking about are the grandparents so naturally they want to spoil her with food. But they are also her caregivers when I work. I guess well just have to see and get on the same page when we get the results back and go from there. Thanks for letting me vent.