Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Think I Have Celiac?


coltoot

Recommended Posts

coltoot Newbie

Please help me... Below are a list of my symtoms and diagnoses. Most of them began about 2 years ago. Do you think this is Celiac? I've had two blood tests which show negative results. Any suggestions or comments would be greatly appreciated.

IBS - 1992 and 2007

Small Intestinal Bacterial Overgrowth - 8/2006

Endometriosis - 1992 and 2007

Breast cyst removed - 2/2007

Ovarian cyst removed - 2/2007

Brain cyst - 7/2007

Hypothyroid - 8/2006

B12 deficiency - 2007

Depression

Anxiety

Diarrhea / Constipation

Gas / Bloating

Numbness and tingling in feet and hands

Migraines - 1997

Fluid retention

Keratosis Pilaris on legs, thighs, buttocks, back and arms - 7/2007

Retinal hematoma - 7/2007

Irregular periods - since 2006

Night sweats

Faitgue!!!

Joint pain

Muscle cramps

Weakness

Light colored stools that may float or appear to have mucous

Geographic / Fissured tongue

Thank you for your help and support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor

Welcome! :)

Yes, those symptoms could definitely be pointing to Celiac. The problem is that the symptoms are so vague that they can also be attributed to many other ailments.

Which blood tests did you have run? You should get a copy of the results and post them here. Some doctors don't order the full Celiac panel:

IgA

IgG

tTG

Total IgA

If then all the results are negative, you could see a gastro and request an endoscopy with multiple biopsies. Only then should you try a strict gluten free diet for a few months and see what happens.

Good luck!

-Kim

coltoot Newbie

Kim,

Thank you so much for taking the time to read my post. As I'm sure you know, having the symptoms without a diagnosis is very frustrating. Over the past 2 years I have been tested for so many things to no avail. According to the sheet I have from my doctor, it appears that she checked all of the levels you mentioned. I don't have a copy of the results but I have requested one and expect to have it by the end of the week. If the results were negative would the specfic level make a difference?

The nurse at my GI doctor is working on getting me in to get a genetic test. What is your opinion on that? Can you have the gene and test negative on the blood test? Also, I had a colonoscopy about 2 years ago and they found nothing. Would I still need an endoscopy? The allergist says yes and the family doctor says no!

Again, thank you for your time.

Tonya :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    jimploszay
    Newest Member
    jimploszay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.